I think we are talking about AD in a lesser degree is all. That sounds like a description of how it all begins with me. If you have a sore, well, that can sure do it. I guess, be glad you can't feel the pain like you would without the spinal injury. In most cases it is triggered by a full bladder, or bowel, or pain someplace were you obviously can't feel it but your body is feeling it. I take pain meds since my doctor had my x-rays done from neck to foot.(head was empty). I combine time release synthetic morphine with vicodin. Most days it works pretty well. I'm thoroughly addicted yet I've never gotten a buzz from any of it. I try to get up in my chair each day for six to eight hours. Often, toward the end of the day, I'm beginning to have the symptoms you described. They slowly fade after returning to bed and getting my chest raised above my knees. If I must stay up in my chair longer, I recline and tilt for longer periods. Like 10 minutes after 20 minutes of sitting up straight. Pot helps when I'm still having problems and I'm in bed. It is the perfect sleep assist medicine and it helps me not to get nauseas and throw up. I don't know if you have that trouble. I get other seizures now and again and they ruin any desire for food. These seizures are not like AD at all. If my doctor ever hits on a drug that works, I'll sure let you know. We are still trying different combinations of drugs with very little real results. I think it's all in my head! We should all be keeping a journal about the seizures we have. More and more, mine come with chest pain and that isn't a good thing. Most quads die from AD seizures that cause strokes and heart attacks. It is not just uncomfortable sweats. Definitely discuss it with your doctor and keep some blood pressure pills on hand.
All my best wishes, john ----- Original Message ---- From: Lori Michaelson <[EMAIL PROTECTED]> To: Paul Jacobson <[EMAIL PROTECTED]>; [email protected] Sent: Saturday, February 2, 2008 8:12:15 PM Subject: [QUAD-L] Re: Weird condition That, Paul, is most probably your problem and maybe you can pinpoint it better by when your sore started compared to when your symptoms began. No, no itching problems for me. Just those awful clammy sweats but, weirdly enough, those clammy sweats were on the upper left quadrant of my body while my little sore was on the right side of my right foot. Nothing new under the sun however... something was wrong and my body was reacting to it. More strangely however was that a little over two years ago I had a sore in that same spot but none of the terrible clammy sweats or any other symptoms from that one. But I think we caught that one quickly and I went without a right shoe long before any symptoms had a chance to start. Me no like football. :-) Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ On Feb 2, 2008 9:08 AM, Paul Jacobson <[EMAIL PROTECTED]> wrote: Hi Lori, WOW!!!!! That's it......you had exactly what I have! Right down to the sweating on just one side of my body! What I forgot to say.........is that I have a pressure sore (3 months now) that is healing well....on my right leg...the same side I sweat. One side of my forehead would be dripping soaking wet while the other is bone dry. It seems.....I have to wait until it heals.....before the 2ndary symptoms subside. Did you have any skin itching? Thanks so much. I hope you're going to the game tomorrow! pj ----- Original Message ----- From: Lori Michaelson To: Paul Jacobson ; [email protected] Sent: Friday, February 01, 2008 5:04 PM Subject: Re: Weird condition That happened to me quite recently and it lasted for several months. I thought for sure that t had to be one of two things... my spine or my hemorrhoids. Come to find out... there was a tiny pressure sore just underneath my right foot on the right side (near my pinky toe) but not visible to either my home health aide (even when she was washing my feet) or my husband who can usually see and keeps an eye on me for skin problems all the time. It was just a quite hidden location so it was overlooked. I knew something was wrong but I had no idea what it could be. And it would do just what you said. Sometimes it would only last for five minutes and I would have the terrible clammy sweats on the left side of my body up by my shoulder blade and back-- and the goosebumps. Other times it would last for an hour. And some days it did not happen at all. Crazy! One would think that if it hurt... it would get worse during the day. But nope... it got better as the day wore on. Nuts! Sometimes it's the least thing you would expect so I have no idea what to tell you since it took us months and someone to sit in the very place where they could see my little pressure sore directly. So I had to go without my right shoe for a couple of months or more and all the symptoms went away. Lori Michaelson C4/5 complete quad, 28 years post Tucson, AZ On Feb 1, 2008 5:40 PM, Paul Jacobson <[EMAIL PROTECTED]> wrote: Can anyone help me with this........sometimes I just get the chills/sweats/very mild dysreflexia.....and then it goes away... might come back in 5 minutes......or 2 days. It can last from a minute to a few hours. Oh......my skin arms/chest/shoulders/face itches badly at times. I'm a train wreck. THANKS FOR YOUR INPUT! pj ____________________________________________________________________________________ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping
