Am so glad you found someone you knew through your work.
your last day  .  I am just like you, I try to always stay out of the 
hospital and ask for  IV's at home.  My lung doctor said that they don't 
usually 
treat pneumonia  at home on IV unfortunately.  I guess because of the chest 
x-rays 
that are  needed.
 
It would really be interesting if others feel like we do about the  hospital. 
 They don't seem to know what a digital is and they think they  only have to 
do one.
 
I really appreciate you writing about your experiences. Why are hospitals  so 
inept about our care?  When you feel so horrible and you have to battle  to 
get what you need.
Seven days seemed like a month.
 
 
 Dana
 
    
I won't go to the  hospital unless I'm near dead, I hate that place and good 
luck finding anyone  familiar with quadriplegia, they think you're helpless 
and in a way you are  because you're out of your element there.
I can't wait to leave the  hospitals and if it wasn't for my caregivers that 
truly care for me and come see  me everyday while I'm there I starve to death.
The last time I was there  they couldn't find me a bed side comode! Are you 
kidding me! My caregiver had to  bring mine.
A couple years ago I went  for a horrible uti and I was there for about half 
a day and could barely find a  cna to help me and then this nurse comes in and 
it turns out I knew her because  I just had her house built and we had a 
short conversation and she asked if I  was getting good care and I told her I 
couldn't get anybody to take some time  and set things up for me so I could 
reach 
them because they kept running off and  she walked to the door and hollered at 
a cna that came rushing to her call and  told her who I was and I remember 
her telling her that this man is not helpless  in fact he's very capable of 
anything and if you'd take 15 minutes with him to  put things in his reach and 
do 
some adjusting then he probably won't call you  for hours. After that it got 
better but there's no place like home  Dorothy!
 
Glad you're back  Dana
 
 
Mark  Jackson 
RollinOn 



 
____________________________________
 From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]  
Sent: Sunday, March 02, 2008 10:42 PM
To:  [EMAIL PROTECTED]; [email protected]
Subject: Re: [QUAD-L]  antibiotics



I just got out of the hospital Friday after being in for seven days with  
pneumonia.  I really like to know about the yogurt and how much should be  
taken 
after being on IV's for seven days.  They always have trouble getting  an IV 
in me.  My first one quit working and they tried to do a pic line 2  times 
without success so the anesthesiologist used my neck.  They were  going to take 
me 
to radiology to try again but they decided to go with the neck  IV and my 
pneumonia finally looked better.  My bowels quit working also and  luckily it 
was 
not a blockage, so I was put on Myralax and after about four days  it started 
working.  I was so miserable as it looked like I had a  basketball in my 
stomach.
 
It is unreal the kind of care you get in the hospital for at least this  one. 
 If my mother had not been around, I don't know if I would have gotten  my 
bowels to work again.
 
I would love to hear about others hospital experiences and if the nurses  
will do digitals properly.  I found that to be a real problem.  I was  glad to 
have a good mattress that did not give me any breakdown.
I was so anxious to get home, so I could get proper care.  It did not  help 
that my doctor did not come until the fifth day.
 
I was told that the hospital had closed it's ER shortly after I was  
admitted, but the county ask it to open again.
 
How do you find the hospital that can give you proper clear?  I go to  the 
hospital very seldomly, but it is usually for UTI, respiratory problems,  last 
time it was a coma, because of UTI that was septic.  I remember not  being that 
good the last time and I was in ICU at a different hospital, because  the 
hospital that my doctors are was full.  I remember going to the floor  my last 
day, and the CNA just disappearing during breakfast and they had to have  
persons from other departments get me ready to go home.  It's incredibly  sad 
that 
you don't feel safe in the hospital.

Dana ( C-4-5, 33 years post, 54, Prairie Village, Kansas, which is a  suburb 
of Kansas City Missouri)
 




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