The medeical definition of a quad is to have all four limbs impaired. This 
doesn't require total paralasis in all limbs. You are a C-4/5 incomplete. This 
means your worst symptom is a C-4 but you do not have all the symptoms of a 
complete injury. Spinal tissues do not repair.
Diagnosis is important because because there is very little understanding of 
medical problems among people in health insurance. It is a business based on 
mean spirited regulations, much of it's payment basis was established before WW2
I have met quads that are much the same. Try calling it that and see if any 
doctors disagree. 
I've only experienced your problem among doctors that were out of their field.

I'm a C-5 incomplete because I can rotate my left fore arm and wrist extensor. 
To get my point across to doctors, I have a neurogenic bowel and bladder. 

Hope that helps,
john

----- Original Message ----
From: Dr. William E. Heft <[EMAIL PROTECTED]>
To: QUAD LIST <[email protected]>
Sent: Sunday, March 9, 2008 6:49:52 PM
Subject: [QUAD-L] How important is a diagnosis?

  I have a question for the list members.  How 
important do you suppose it is for any one of us to have an accurate 
diagnosis?
 
In my case I do not have a diagnosis, other than I 
have had injury to my t-1 and t-2 spinal cord.  The problem I seem to be 
running into here in Illinois is having to prove that I am disabled to keep my 
medical insurance in place.
 
I originally started out with a diagnosis of  
slowly progressive ALS, and a few years later it was found that I had a crushed 
spinal cord caused by a tumor that left me a quad.
 
They removed the tumor and a year later I could 
walk again, but just a little bit.  Now they tell me I am no longer a 
quad.  When asked what I am I'm told they don't know, even though I fight 
to get through the day.  I never did gain the use of my hands 
again.
 
I told my wife that if I have a definitive 
diagnosis, I would stand a better chance of keeping my medical 
insurance.
 
By some strange chance, has anyone else on the list 
here ever experienced this type of situation.
 
Bill at Big River






      
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