Hi all, Bill H. here. Maybe this post will help someone on the list or someone a list member might know. I had written asking if anyone here was quadriparesis. It is a new term for me but is finally my official diagnosis. Some years ago I was originally diagnosis with slowly progressive ALS. Over a period of several years I got progressively worse until finally I couldn't walk, pick up anything, feed myself or even roll over in bed. That's when I was diagnosised as a quadriplegic.
They found that a tumor had crushed my spinal cord. They removed the tumor and a year later I was still alive and was then able to move my arms and legs and actually walk a little bit. I never did regain the use of my hands and I still suffer from damage done to my stomach, kidneys, bladder, intestines, etc. But because I could move around on my own a little, I lost the diagnosis of quadripledegic and now have a final diagnosis of quadriparesis. This terms means that I have weakness in all four limbs, and the progressive portion of the diagnosis means that the condition keeps advancing or deteoritating. So, there you have it. If this information helps anyone, then it has not been wasted. Next time I write I will talk about my experience in TRYING to get a new wheel chair. Now that's an experience worth writing about. Bill H.
