I didn't drop offline, just been lurking...... 
my doc switched my BP med and 90% of fainting has stopped!
tx DARS has new program where you have to be working or actively looking for 
work or they won't help convert van! after i've been waiting 4 yrs!!!!!!!!!!! 
if i work i lose my disability & benfits and don't make enough to cover medical 
needs......catch 22, god bless america! so i get to continue having someone 
drive me around till i finish my BA......
 
well i hope everyone else has great week!
 

--- On Mon, 8/4/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:

From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: [QUAD-L] serious health questions
To: [email protected]
Cc: [EMAIL PROTECTED]
Date: Monday, August 4, 2008, 7:30 AM



Hiya Amye!
 
Missed your postings while you were absent.  Glad to read you back and hope the 
family is doing well.
10 years old now??  How time flys or flies........
 
Regarding your blood pressure... I wish that I had the answer, but I don't.  
Besides the binder and morning exercise before getting out of bed in the 
morning, I am stump'd.  Perhaps the guys at the Miami Project and Dr Green or 
Young may be in a better position to advise you on the research, regarding the 
blood pressure syndrome of those with spinal cord injuries.
 
I'm hoping for you.
Best Wishes
 

In a message dated 8/1/2008 9:08:45 P.M. Central Daylight Time, [EMAIL 
PROTECTED] writes:
i have really low bp, like 50/30s and started med for it but not helping, plus 
i'm fainting at least 2 times a days.(i have fainted all my life, when scared 
real bad or hurt but never daily unttil last few months) then i'm so exhausted 
from that i don't want to do much. my son (10 yrs old) has been gone while this 
problem has become so invading and i'm worried what he'll think we he realizes 
it, he worries about me a lot anyway, never admit it though. 
my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, 
all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, 
but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he 
doubled the midodrine* plus referred me to a Electrophysiologist (the names are 
getting weirder). it is really scary cuz i was the youngest patient in 4 story 
building by 20 years!!!! i'm only 28!  
      i keep getting uti's, will cure one 2 weeks later its on the way back. my 
urologist and rehab doc don't like each other or agree on what to do and i 
don't know which to go with. the rehab doc wants to fight the uti's by 
inserting some bacteria, he says iss new procedure, my uro says the rehab doc 
is young dodo for nice terms. ugh so i'm going to go see uro again to see what 
to do.....
     anyone else have similar probs?
thanks....littlequad





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