John, I am really impressed.  People helping other people with  credible 
information!
Best Wishes
 
 
In a message dated 1/20/2009 9:04:14 P.M. Central Standard Time,  
[email protected] writes:

AD is autonomic dysreflexia. Most quads experience this type of a  nerve 
disorder from time to time. Your body generates enough pain that  it creates 
and 
electrical pulse that somehoe sends signals into the  autonomiuc nervous system 
where it wreaks havoc on pulse rate, blood  pressure, hormone production. 
Organ failure may occur. Stroike and heart  attack can also happen. It is a 
serious problem. So, what does everyone  else take when AD begins.

john

--- On Tue, 1/20/09, Steve White  <[email protected]> wrote:


From:  Steve White <[email protected]>
Subject: Re: [QUAD-L]  Baclofen q's....
To: [email protected]
Date: Tuesday,  January 20, 2009, 4:21 PM

  
What is AD?
Summer White

----- Original Message ----- 
From: _John  S._ (mailto:[email protected])  
To: [email protected]_ (mailto:[email protected])  
Sent: Tuesday, January 20, 2009  11:18 AM
Subject: Re: [QUAD-L] Baclofen  q's....


I had the same choice back in the 80's when baclophen was  being touted as 
the end all be all of controlling spasms. I  was taking about 30-40 mg of 
valium 
a day and pretty addicted.  (had been on Valium for 13years). Just to start 
the change  meant detoxing from one drug to another. I find that detoxing  
involves AD, or at least a very good chance of it. I mean the  kind where you 
can't talk anymore and a 20 hour nap. I gave up  after one episode. Going to 
the 
ER once is not my idea of a  sucessful attempt. 
I had a friend that went for baclophen. He was a C-4 and  felt valium was old 
fashioned. A year later hes having to take  a lot of baclophen to control 
spasms. Easy cure, go to Texas  and get a baclophen pump installed. 1st one 
malfunctioned and  couldn't refill after a month.
Rush back to Texas. Second  pump surgery screws up and he gets a staph 
infection. He died  on a plane between Huston and Cincinnati while the pilot 
was  
turning the plane around. In all sincerety, I don't  believe most doctors or 
nurses have a real  understanding of AD 
I know that I can pop six to eight Valiums to get AD into  control if need 
be. I had an anti-seizure drug but it didn't  work as well or as fast as simply 
taking a blood pressure pill  and 2 Valiums. If it doesn't work for you then, 
by all means,  search for a drug that will work.
What do folks on here take for their AD?
I find that it is easy to tell when I need a valium and  it has the side 
effect of making me far less suicidal or  depressed.
 
john
--- On Mon, 1/19/09, t crook  <[email protected]> wrote:


From:  t crook <[email protected]>
Subject: [QUAD-L]  Baclofen q's....
To: "q-list"  <[email protected]>
Date: Monday, January 19,  2009, 1:29 PM

    
I would like to know who uses baclofen and the  side effects you experience; 
like hypotension  (which I already suffer from), or any side effects. I  took 
this drug right after my accident in '88, but  that was 20 yrs. ago and my 
memory did not log any  recollection of the side effects.
Below is a news link; a doctor claims it worked  for his addiction to 
alcohol, it got me thinking of  changing my spasm medicine. I do not suffer  
from 
alcohol addiction; but I take diazapam for  spasms, and was going to talk to my 
doc about baclofen  for the spasms. I was just recently diagnosed with  
inherited Cardiomyopathy; so I was wondering about any  cardio side effects as 
well, 
which I will find  out when I have another echo cardiogram next  week.
 
_http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861&cl=11605466&ch=42267
23&src=news_ 
(http://cosmos.bcst.yahoo.com/up/player/popup/?rn=3906861&cl=11605466&ch=4226723&src=news)
 

Tim c5 c6
_WhoopieKat.com_ (http://www.whoopiekat.com/) 










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