They need to call some doctors at some respectable hospitals. Think twice 
before you let them make nasty holes in your back. I can understand their fear 
of some virulent strains of staph, but it is you to you to express your fears 
to your doctors. This is the person you don't keep secrets from. Not being able 
to view this really sets everyone back a lot when second guessing them. If it 
is staph then it must be destroyed as fast as possible. It's size could mean 
you are already septic. (I pray I'm wrong.)
Make a pertinent list of questions and go see them ASAP. Don't be afraid to 
tell them you are scared. I'd want an MRI, X-ray, Biopsy and a sonogram to go 
with any other tests they have performed, but you are dependent on a small 
clinic far from a big teaching hospital. So, ask hard questions so they must 
read and attend medical seminars and lectures to keep up with the weird stuff 
your body can do and leave them looking stupid among their peers. You don't 
have average patient problems so you are a test to many doctors. The smart ones 
learn what they need to know, the rest look at you as if your stupid when you 
bring up autonomic dysreflexia.
Remind your doctor of how slowly your back will heal. If you do not understand 
his explanation, just politely tell him that. I feel it is important to be nice 
to medical staffs. If they like you, maybe they will try harder to help you. I 
could be wrong.

All my Best,
john




________________________________
From: Joe Gullion <[email protected]>
To: [email protected]
Sent: Friday, February 20, 2009 11:40:44 PM
Subject: [QUAD-L] 

 hi i am joe i live in a small town i have been a para for 18 months and i have 
a sack of fluid the size of a puck on my spine these doctors don't realy know 
what it is i have had it for 5 days next week they want to cut it open to see 
what it is i don't trust them i am not sure what to do any help i would 
appreciate it
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