I can't believe I made it to my 35 th year anniversary. My parents were
told after each hospitalization I might not make. It seems I was strong
enough to defeat their predictions even though I appeared to be weak at the
time. I was given a tracheostomy after each of my surgeries, but it was
removed before I came home. I had so many long hospitalizations trying to get
off the ventilator and over pneumonia. I was given another tracheostomy
during a pneumonia in 88, which they changed to a trach button before I left
the hospital. It has kept me out of the hospital except for a UTI that
got into my bloodstream causing a coma for 13 days. I had a pneumonia last
year. The trach buttonallows me to get over the bronchitis at home. I
didn't want it, but it turned out to be a good thing for me and not very
noticeable. It is mostly capped, unless I have a lot allergies or congestion
and might need suctioned as needed. It is easy for anyone to learn how to
do. I am quite healthy almost all of the time. I love to enjoy life going
to concerts, which is one of my favorite things to do. Sorry this has been
such a lengthy post.
I have forgotten, who has the longest survivor that we know of. They had
saved that information, but have lost when this computer was reformatted and
my brother thought he had saved.
I haven't got a lot of posts this summer, and I'm sure everybody is busy.
Just wanted to say I miss those that I have not heard from.
What does everybody think about the new health-care bill as nobody has
mentioned. I know that is a political issue, but very important for our
ability to survive and get what we need. There has been talk about taking
away
from Medicare. Medicaid is also having problems with reduced state revenue
for problems. Kansas has mentioned there will be some reductions with
populations such as ours, but I don't know where it will be targeted. PCA
hourly pay is very low and hard to find people that want to work with no
increases at all for a number of years.
Just wondering!
.
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