I've taken 120mg daily (30mg 4x daily) orally for 21 years per SCI MDs direction, though FDA advises 80mg daily as the maximum dosage. I've tried cutting back slowly several times, but anything below even 100mg daily has my legs spasming out of my shoes. 120mg works for me. 300mg daily sounds close to lethal. I don't know how one functions at all at that dosage let alone being sleepy.
I hope you can work things out, Veranda. Steve - C4, 21 years From: Quadius [mailto:[email protected]] Sent: Wednesday, July 29, 2009 7:57 PM To: Veranda Escobar Cc: [email protected] Subject: Re: [QUAD-L] 2 much bachoflen I'm a little shocked at the 300. I take 80 mg of baclofen a day, but that is orally. The individuals I know who have a baclofen pump tell me it requires quite a bit less than when they were taking the medicine orally. Everyone reacts differently, but I never experienced fatigue from baclofen, then again I wasn't taking it in the quantities you are. The highest I ever went to was 160 mg a day. I still take quite a bit of medicine for spasms. Baclofen doesn't seem to be that effective for me, so I end up taking 75 mg of dantrolene a day and 5 mg diazepam (Valium) a day. I managed to reduce my intake of diazepam considerably over a 2 1/2 year period, but I have reached a plateau where reducing my medication would cause too many spasms. Definitely getting to see your doctor ASAP. Good luck, Q On Tue, Jul 28, 2009 at 3:26 PM, Veranda Escobar <[email protected]> wrote: Hello everyone, I wrote a few weeks back was telling everyone how i was having bad back pain,bad spasms, and drinching in sweat. The spams were so bad they were jerking me from sleep. Well i upgraded my pump on the 15th. For two days after that I was asleep. I could not pull myself from my sleep. I was really scared. Finally on 3rd day there was no more spams, no more sweating, and I was a wake. Since then my stomach was hurting. Well the pain went away last night after a week. But I am soooooo sleepy. What do you guys think? I was getting 280 dosage thru pump now i have 320. I'm so faustrated because if i go bk & lower pump i'm scared toget spams & sweats back. But i can't continue to be so sleepy. I wk a 40 job and i just want to be put my head down. Should i downgrade too 300.? I'm asking u guys cause we know more than the dr's lol
