I have been alone on this trip of being a quad of C-5 since 1990.  As many
disable are, my income is a minimum to work with.  When first injured I have
been to my own demise without much money.  A hospital psychiatrist refused
to allow me be discharged to a nursing home, and worked with me to problem
solve another challenge in life.

 

At a loss what to do I somehow had a trust in life and in people.  Not
having the faith of doing this alone I wrote a classified ad in a local news
paper for someone qualified in nursing care to take me in.  Life has been
rough, and life has had mercy but I have been able to maintain a standard of
living.  

 

I used this method again ten years ago when I was fortunate to move in with
a nurse who had a baby and did not want to return to work.  So our needs
have helped each other.  I pay her $2,000 a month for food, care and
lodging, living in a back room.

 

My goal and want has often been to be even more independent on my own.  For
years I have had medical problems interfering with that goal.  My livng
situation here is fortunate for being so ill.

 

  _____  

From: Daniel Espinoza [mailto:[email protected]] 
Sent: Wednesday, October 14, 2009 12:50 AM
To: [email protected]; [email protected]
Subject: RE: [QUAD-L] Living Arrangements

 

I live with my family for now, I want to move out eventually and get my own
place but it's so expensive here I don't see how I can.

 

From: [email protected] [mailto:[email protected]] 
Sent: Tuesday, October 13, 2009 4:00 PM
To: [email protected]
Subject: [QUAD-L] Living Arrangements

 

I'm just curious as to everyone's living arrangements. Do you stay at home
with a live in caretaker, do you live at home with family who cares for you,
do you live alone with an aide who comes in for a few hours, do you live in
an assisted living facility, or nursing facility . I'm just curious as to
how other people manage. I live in my own home, but I do not have access to
a shower and I need someone available 24 hours a day. I'm looking at
assistant living facilities, but they are so expensive. Any suggestions?

 

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis

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