Let me first say I love my wife of 30 years plus and her being my primary 
caregiver she has gone through many midnight surprises.  Lately though it has 
been morning shows on the dirty lose pie or even worse a shot in the face of 
what looks like lemonade but isn't.  She will scream and I'll say 
what??????????????????  But honestly I'm not feeling when I'm leaking.  All I 
can say is "I'm sorry."

I think I need to make an appointment with my urologist.  I have a syrinix 
locate ate c2 - c 3 level and for  fear of ending up on a vent for the rest of 
my life. 

Ive been experiecing extra pin a needles feeling plus a stabbing pain to the 
lower left side of my stomach right above my groin.  Because my wife and I are 
dwarfs 4'6 160 lbs and 4ft 110 lbs with the weight differences she can't do any 
ROM with me.  Since I'm in my wheelchair for 18 hrs + my  hip flexors and 
muscles are all getting very tight.      Luckily we use a ceiling lift to 
transfer me from bed to w/c and shower.  I'd love to hire a aide, but since my 
share of cost for getting benefits from IHSS is about 80% of my SSDI, what do 
my wife live on after that?


I guess this is the life I've been dealt so  I'll suck it up for the sake of my 
wife and two adult children.



________________________________
From: "[email protected]" <[email protected]>
To: [email protected]
Sent: Thu, February 18, 2010 5:59:01 PM
Subject: [QUAD-L] The Midnight Shuffle......

It happens to everyone at one time or another.  For some, it may 
happen more then we care to brag or talk about.  There is nothing you can 
do about it.  Its Nature, doing its thang. Some blame the nasty food they 
had and others will say its the meds, but when the bowels let loose on you 
without, so much as a warning.....Bang.   I mean BAM.  You are a 
proud owner of a nasty waste packet that someone else is going to clean 
up.  If its solid, better.  But if its a loose and running bowel 
movement, you may require the 5th Fleet of blind medics to begin the process of 
cleaning you up.  The shoes and socks first and then careful the pants or 
trousers.  If the aide or aides are nothing careful, you have racing 
stripes of feces running down to your heels and toes.  One blue chuck is 
never enough and you need 8 of them before you begin the task.
Not to mention the indignation and embarrassment to one's hollowed 
ego.
 
There is no words in the English language that can describe the experience 
and fewer words to utter an apology.
 
This is truly a memorable experience and one that no one every forgets..... 
until you get cleaned up and redressed, only to perform the "Midnight Shuffle" 
once again with no warning.
 
Anyone with a #2 Story they wish to share?  If you haven't had the 
experience ..... yet, that's ok, because we all know that at some time or 
another...... everyone gets caught doing the "Midnight Shuffle" or the Mustang 
Sally.
 
Best Wishes


      

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