That sounds like a great idea for a book, I would definitely buy it and read it. Unfortunately I have no children yet, but I do plan to one day.
-----Original Message----- From: Aaron Mann [mailto:[email protected]] Sent: Tuesday, April 27, 2010 10:23 AM To: 'karan alexander'; [email protected] Subject: RE: [QUAD-L] new to group with lots of questions Welcome, Karan! While each of our disabilities affect each of us differently, none of us are alone in this new adventure. My Uncle is a Dr. who studied the effects of indwelling medicinal pumps. His advice: "Only as a very last resort." I took 20mg Baclofen 4x a day for 20 years, then switched to 600mg Neurotin 3x a day. If you talk with a Dr. who really understands muscle spasms as the neurological level AND understands what each of the receptor inhibitor drugs do, then you will find the right option for your specific needs. I, too, have a son. He is a great motivator for me. I've been considering writing a book on my experiences being a Dad in a chair. There are many tricks I had to learn on my own in raising him. God bless and welcome. Aaron Mann C4-5, 9/8/88 -----Original Message----- From: karan alexander [mailto:[email protected]] Sent: Monday, April 26, 2010 6:59 PM To: [email protected] Subject: [QUAD-L] new to group with lots of questions Hi, I was walking with my children 2 yrs ago & was struck by a teen who went off the road & struck me as I was bent over. I am c4, 5 & 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair & to amazement, I have bladder sensation & bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg & am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me & liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down & some days it is so overwhelming. My kids keep me going & God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated & passed boards. Now what???? I LOVE nursing & it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins & a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand & arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening.
