Hi Jim, You are truly amazing and what a role model for all persons with high level quadriplegia to know about and understand how you accomplish all the use achievements. Thank you so much for developing quad-list. It is a wonderful group, where we can share ideas, asking the question that we might have regarding our disability and encourage each other with our own experience as and just by developing new friendships. Dana C4-5, 35 years post, 56, female in Prairie Village Kansas, which is a suburb of Kansas City. I have a C1 quadriplegic friend in Germany that I know would learn to know about you. He is newly injured and not able to speak. He's not able to use e-mail only Yahoo messenger. I know you don't have time to speak with him. He lives in a nursing home because of his high level needs. He has locked in syndrome.
Maybe I can send him your website, just to know about you. In a message dated 5/17/2010 9:32:53 P.M. Central Daylight Time, [email protected] writes: Many cudos to you Jim. I'm coming up on 43 years but my c3 incomplete is child's play compared to your vent dependant life. I can't even imagine what your life is like. I don't post very often because my problems seem so 'superficial' to those of you who are REAL quads. Although i'm in a chair 100% and have quad-gut issues, UTIs, messed up hands,...... I'm just in awe of you guys who do so much with so little. You guys are truly amazing. AZDAVE In a message dated 5/17/2010 2:16:05 P.M. US Mountain Standard Time, [email protected] writes: Today, May 17th, makes 21 years since I became a ventilator dependent quadriplegic due to acute transverse myelitis. I was 21 when it happened so it has now been half my life. I woke up that morning with a sore shoulder. Thinking I just slept in a wrong position I went to work. After about 30 minutes the pain in my shoulder increased and I started feeling dizzy. I tried to stand up but could not. Someone helped me lay down. In a short amount of time I remember a paramedic asking me my age, I tried to answer but could not talk. I found out I had stopped breathing. The next memory I have is waking up in the hospital unable to move or speak. Transverse Myelitis is an inflammatory attack in the spinal cord. It is an auto immune disorder where a persons own immune system mistakenly attacks and destroys myelin, the insulating material that surrounds nerves. There is no known cause or cure. It can happen to anyone at any age. In 2008, the Transverse Myelitis Association has established the James Timothy Lubin Fellowship in Rare Neuroimmunologic Disorders. The purpose of the Fellowship is to encourage the development of medical specializations in TM, ADEM and NMO through a year of study under a leading TM, ADEM or NMO specialist. If you think this is a worthy cause and would like to make a tax deductible donation to support it, you can do so using this link _http://www.myelitis.org/fellowship-donation_ (http://www.myelitis.org/fellowship-donation) ---- Jim Lubin [email protected] _http://makoa.org/jim_ (http://makoa.org/jim) disAbility Resources: _http://www.makoa.org _ (http://www.makoa.org/)
