I have been home a bit over two years, and right now we have a fairly stable
group of caregivers who are pretty well-trained.
Even so, we have ongoing issues with certain things. Some of these things
are not medically necessary, they are personal preferences. For example, I
would like your mind to caregivers:
When you set down my glasses, set them down with the glass
side up
Never flush paper towels down the toilet
Please not parked in front of the mailbox, it make the
mailman mad
Do not put pasta or eggshells or rice down the garbage
disposal... only clear liquids
My wife is tolerant of the invasion of her space and our home... to a point.
I am searching for a method to explain the way we like things done in our
home, without irritating caregivers and driving them away. After all, we are
highly dependent on these people.
And I would like to have a way to schedule certain activities, such as
cleaning the bathroom, performing range of motion on various body parts,
doing the electronic stimulation.
How have you approached the issue of ongoing long-term caregiver training
and management?
Thanks,
Dave Krehbiel
C4/C5 three years
