Bingo!  The one site you emailed me was good for signing up to help ensure
power chairs come to those eligible.  For other members here ...  the site W
sent me was http://www.celaadvocacy.org/

Lori  ~

On Tue, Jan 25, 2011 at 6:21 AM, <[email protected]> wrote:

>  Well said Lori.  You never, have failed me either.  And yes, General, is
> just that.  A general. Hence I said, don't be surprised.  I believe that at
> the present and for the near future, this new requirement does not affect
> "Complex Rehab Electric Wheelchairs."  And many with major neuro injuries,
> are users of those complex wheelchairs.  But there are some, who use and
> will continue to use "group two" mobility equipment.
> Over the last 18 months, while in my travels, I've asked of others who knew
> nothing about this change, and some did not care.  While others showed
> interest in this as they were due for new chairs......
>
> I will search for a copy of the new policy and post the link for anyone to
> pursue and see for themselves to determine if the policy pertains to them,
> and comment.
>
> I'm sure that Lori will agree with me that each person should read up on
> this new policy to determine if it will affect them or not.  And if it
> should/does, to begin taking some action.
>
> Be patient grasshopper.
> Best Wishes
>
>  In a message dated 1/24/2011 11:10:40 P.M. Central Standard Time,
> [email protected] writes:
>
> Thank you W. But I believe you just made a premature *GENERAL* statement
> that Medicare (CMS) is NOT paying for power chairs like they did before but
> are renting them for 24 months. There is only a speck of truth to that.
>
> Knowing what I know right now, and after reading W's statement earlier
> today (Monday) I wanted this information *in writing* so I sought to
> pursue it myself in the meantime (while also asking W for *written sources
> of this information*).
> Five or six months ago I had heard something SIMILAR to what W was saying
> but it was about a person *without* a spinal cord injury who had
> eventually found out that there are certain "groups" that wheelchairs fall
> into as well as individual disability diagnosis.
>
> People with traumatic spinal cord injuries DO NOT fall into a group whereby
> Medicare and Medicaid pays differently now.
>
> I believe W's premature erroneous GENERAL statement was based on the
> information that "Group 2" power chairs are not paid for like they used to
> be but they are rented out for 13 months and then the individual has the
> "purchase option" for the chair. These chairs are for individuals with
> disabilities like cerebral palsy, multiple sclerosis, etc.
>
> "Group 2" power chairs *do not include* those chairs required for
> individuals *like ourselves*.
>
> WE require "complex rehab power chairs" which fall into the category of
> "Group 3 base" chairs . Therefore they are still considered a purchase item
> for Medicare and Medicaid. And to qualify for one of these group 3 bases...
> individuals need to qualify after being diagnosed with a traumatic injury
> like those with paraplegia or quadriplegia.
>
> This is explained in further detail in the link below my name and many
> other sources.
>
> Further, over the last year, this is not the FIRST TIME I have heard a
> generalized statement about Medicare and what it is or is not going to do.
> And not just about wheelchairs. This is scary because it gets passed around
> quite quickly and people get on the bandwagon and then MISINFORMATION is
> spread rapidly. And, as we all know, a lie can spread itself halfway around
> the world before the truth can get its shoes on. Sadly to say. :-(
>
> The moral to this : ALWAYS BEWARE of a SINGLE source.
>
> Lori
>
> *
> http://www.cdapress.com/news/healthy_community/article_6e3ca5f7-c719-597b-a599-8a73ea046b8e.html
> *<http://www.cdapress.com/news/healthy_community/article_6e3ca5f7-c719-597b-a599-8a73ea046b8e.html>
>
>
> On Mon, Jan 24, 2011 at 3:05 PM, <[email protected]> wrote:
>
>>  And Lori is the person who always knows the nicest thing to say at the
>> right time.......
>> Yes, Pride worked with Motion Concept, up until a few years ago when Pride
>> developed
>> their own comfort system.
>>
>> Let me toss another cream pie into the crowd, if I may.  How many of you
>> knew about CMS's new policy of NOT paying for electric wheelchairs as
>> before.  Now they only rent them for 24 months.
>>
>> Best Wishes
>>
>>  In a message dated 1/24/2011 3:57:46 P.M. Central Standard Time,
>> [email protected] writes:
>>
>> W always has the ability to eloquently say things and describe things in a
>> short detailed e-mail.
>>
>> So, everything W said was right.
>>
>> But I will also add the importance of knowing that MOTION CONCEPTS works
>> with both Quantum power chairs (made by Pride Mobility) and Invacare power
>> chairs.  And MOTION CONCEPTS, along with Pride Mobility and Invacare both
>> work together (along with your wheelchair vendor or provider) to seat you
>> correctly.  Your wheelchair vendor or provider SHOULD WORK WITH YOU to
>> achieve the entire sitting options (from wheelchair backs to the proper
>> seating, etc. etc. etc.) APPROPRIATE FOR YOU.
>> And don't let them give you excuses!
>>
>> Having them both work together gives you countless or thousands or
>> unlimited possibilities for correct seating! It is just so hard, with
>> everything available, to know exactly what will work for us NOT ONLY THE DAY
>> WE TRY IT but for X. number of years later.
>>
>> Lori
>>
>>
>> On Mon, Jan 24, 2011 at 12:19 PM, <[email protected]> wrote:
>>
>>>  It is most difficult to adjust piping in a poured concrete floor, once
>>> the concrete has dried.
>>>
>>> Same could be positioning evaluation, after you have received your
>>> present Quantum Chair.  It may not be impossible, just very difficult.
>>> Seating and Positioning Evaluations should only be done by licensed and
>>> certified Occupational Therapist with Seating & Positioning Certification.
>>> The order after the evaluation goes with the order for the seat base.
>>> Hoping to do this after the base has been built, along with the seat, makes
>>> it that more difficult.  I always contact Mark Smith at Pride Mobility with
>>> the serial number of your chair to determine if the seat assembly can be
>>> changed or modified on the base.... before I precede.
>>> Mark can be reached directly at     [email protected]
>>> Mark is a Product Manager in the Quantum Division at Pride.
>>>
>>> Remember, the impossible only takes longer....
>>> Best Wishes
>>>
>>>  In a message dated 1/24/2011 12:50:23 P.M. Central Standard Time,
>>> [email protected] writes:
>>>
>>> I have a Quantom 600 wheelchair with a roho cushion since April of this
>>> year.  I am having a lot of trouble with the way I'm sitting I always feel
>>> like I'm slipping for ward and my husband has to help push me up.  I have
>>> always sat in a smaller chair (Nutron) but getting older (66) so decided to
>>> get  ac hair that tilts and has automatic legs.  I called Armed for a
>>> seating evaluation but they are just sending the gentlemen that gave me this
>>> chair and he already said he doesn't know what to do...I sit on a small roho
>>> because the big one is no good with my balance...any suggestions on what I
>>> can do to be able to sit without the feeling of slipping? What can I say to
>>> the representative that will be coming to my house? Thanks in advance.
>>> Carolyn 46 years post c3/4
>>>
>>>
>>
>>
>> --
>> Lori
>> Age - 46
>> C4/5 complete quad, 31 years post
>> Tucson, AZ
>>
>>
>
>
> --
> Lori
> Age - 46
> C4/5 complete quad, 31 years post
> Tucson, AZ
>
>


-- 
Lori
Age - 46
C4/5 complete quad, 31 years post
Tucson, AZ

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