Hi Don,
I'm sorry to hear about your wound problems also. It's so hard for us
because we cannot feel and we don't know if the nurses doing the right thing.
They gave me some kind of special IV medication in the hospital. I don't
remember the name, but it is something they only use at acute centers such as
KU. My antibiotic for doxycycline will be ending in two days and the plastic
surgeon doesn't want to put me on it again, but if you could see the
world. You would think it would be a good idea. I tried to call infectious
disease, but they did not call me back. The plastic surgeon said he didn't
think
they were going to have to cut any more of my heel away. I will have at
least two more weeks of the wound vacuum before they drive plastic surgery,
which may not work the first time. It's so horrible to see your foot with
part of your heel bone gone. They said the skin graft skin will never be like
my regular skin and it always will be fragile and I would have to watch
very closely. I had enough problems with my real skin. A lot of people have
talked about wound vacuum, but I had no understanding of them. How do you
get over osteomyelitis? I am not familiar with that Don?
So you have had plastic surgery on your wound? If so, how did it go? It's
hard to imagine.
Thank you so much for your prayers as I really appreciate and need them.
Dana
. In a message dated 6/25/2012 12:10:27 P.M. Central Daylight Time,
scamper2...@att.net writes:
Glad to hear your doing better, I did see some of your pics on your
facebook page. I also spent a week in the hospital back in January, after
2 months on a wound vac at home my cronic isceal sore was not responding.
After a bone scan and mri it was positive for ostyomyolits. I had 8 weeks
of vincomycin at home and the nurse did my dressing every other day with
hydra farra blue. All was fine till the wound clinic nurse changed the type
of packing to damp gaze with dacons solution, then after a month to damp
gaze with saline. After a month and a half the drainage was a lot, changing
packing 2x daily. All this was for a 8cm tunnel. At a consult with the
plastic surgeon a month and a half after the nurse changed to damp dressing
that she had left 5 pieces of hydra farra blue in the bottom of the
tunnel. Things are healing much better now. I do have lack of trust in the
wound nurse at the wound clinic though. I am praying for your speedy
recovery.
Don
--- On Mon, 6/25/12, daa...@aol.com <daa...@aol.com> wrote:
From: daa...@aol.com <daa...@aol.com>
Subject: Re: [QUAD-L] Amitiza and problems after foot surge
To: kw...@comcast.net, quad-list@eskimo.com
Date: Monday, June 25, 2012, 9:19 AM
Hi Kathy,
I understand that you take this medication in the morning and also use a
magic bullet suppository. Do you use any kind of store softeners or other
laxative? Have you ever had a bowel blockage. The literature I read said do
not take if you have a bowel blockage. I will have to read more when I'm on
my regular computer.
Is it covered as a prescription drug?
I have often had problems bowel blockages so I was just wondering, if you
ever have that problem while taking this medication.
Quad friends,
I was recently in the hospital after having foot drop surgery on May 4. I
got out of the hospital, 7 June . The doctor did not look at the site or
open up the dressing for seven days. He used an external dictator that was
left on too long. A UTI infection went septic and I almost died. I had a
wound vacuum on, since the day the dressing was removed. That was seven days
after the surgery. I am now going to a plastic surgery clinic and waiting
until the Dr. decides it's time to do the skin grafts. it The plastic surgeon
from KU said it could be two or three more weeks of wound vacuum. He also
said the first skin graft may not take. This has been an ordeal. This was
done to not have any more sores on my feet. My sores were really small
compared to this horrific sore. The original dimensions were 10.5 cm x 11 cm
on
the back of my heel.
My orthopedic doctor's only comment was, it was on a little too tight! I
posted the initial pictures on Facebook. I have a lot more I have not posted.
I would appreciate any prayers for the healing of my foot (heel). divine
intervention is needed with this doctor's failure to provide proper
aftercare after my surgery.
If anyone has any information about skin grafts or wounds such as this, I
would appreciate your input.
Dana C 4-5, 37 years post, 58, Prairie Village, Kansas, a suburb of Kansas
City
Jun 24, 2012, at 3:20 PM, "_kwig5@comcast.net_
(mip://075cf8e8/mc/compose?to=kw...@comcast.net) " <_kwig5@comcast.net_
(mip://075cf8e8/mc/compose?to=kw...@comcast.net) > wrote:
<1.jpg> <2.jpg>
Hi,
I'm a C4-5 Quad, 20 years. My doctor prescribed Amitiza about 5 years ago.
I take 24mg every morning. I do my bowel care at night. I can't go well
without it. It works great for me. I also use the Magic Bullet Suppositories.
Any other questions, feel free to ask.
Kathy
-------Original Message-------
From: Bill Lang
Date: 6/24/2012 11:22:11 AM
To: _quad-list@eskimo.com_
(mip://075cf8e8/mc/compose?to=quad-list@eskimo.com)
Subject: [QUAD-L] Amitiza
Hi Guys,
Anyone using Amitiza for their Bowel Program?
Since I started ingesting large dosages of pain meds and using Fentyl
patches my program has been an all or nothing event. When, about every 5 days,
it's all, the Results are disastrous. Seems never ending with wet gas
passes and the inevitable skin break down. Beyond day 3, it's dysreflexia
anytime up until I finally go. Enema as last resort.
Doc gave me Amitiza starting with one 8mg gel tab before bedtime.
Does anyone use it, and at what dosage? I have a box of 8mg and a box of
24mg. Do you take it every day?
Thanks
Sent from Billy Lang C5/6 23 yrs post
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