Video presentation and information about Autonomic Dysreflexia (AD), what it is, why it happens, how to treat it, etc.
http://sci.washington.edu/info/forums/reports/autonomic_dysreflexia.asp Lots of other videos on a variety of SCI topics at: http://sci.washington.edu/info/forums/forum_videos.asp On Thu, 28 Jun 2012, John S. wrote: > Date: Thu, 28 Jun 2012 09:47:50 -0700 (PDT) > From: John S. < [email protected] > > To: [email protected] > Cc: " [email protected] " < [email protected] > > Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey > Resent-Date: Thu, 28 Jun 2012 09:52:41 -0700 > Resent-From: [email protected] > > From what I've been reading, you are right about AD being a problem for many > paras, too. > > Bobbie, the easiest explanation of AD (autonomic dysreflexia) was this. Your > bowel and bladder and sex organs function > attached to your sympathetic nervous system as well as the central nervous > system. When something is wrong your sympathetic > nervous system begins to malfunction causing your heart to race, your blood > pressure to go up and breathing difficulties as > well as spasms. > AD also occurs when pain is severe enough to overwhelm your entire nervous > system. Untreated it can lead to stroke (hence > the severe headache) and heart attack. Some people have told me tthey > couldn't catch their breath. This is due to the heart > beating to fast and irregular for blood to get oxygen as it passes thru the > lungs. > As my doctor, (Randall Bradom) told me years ago, a stuffy nose can be a > preliminary symptom. Last I heard, he was head of > rehab at Columbia University Hospital. > I read where there was a study about pneumonia triggering AD. Most quads > loose half to two thirds lung capacity just from > the injury. I get my flu shots and pneumo-vax regularly. I've never had a > cold, but pneumonia once. Avoid snotty children > and adults that just can't get rid of a cough. > Practice using an inspirometer,(the tube with a hose that you inhale slowly > from) and cough when you can. Maybe an aid will > help you by doing the Hiemlich manuvre. > Since the blood clot hit my lung I only draw .8 litres of air. I use to draw > 2.4 litres. I have 2 different inhalers and a > nebulizer 4 times a day, oh yeah, in bed I use an oxygen machine. There is > absolutely no space left in my bedroom. > Go to > http://www.christopherreeve.org/site/c.mtKZKgMWKwG/b.4453413/k.5E2A/Autonomic_Dysreflexia.htm > > And read up. I don't think I gave you bad advice, but they can describe it so > your understanding is much more detailed. > Quality of life is what we all look for, so do what you must so you can do > what you want. > Best Wishes, Bobbie, > john > > From: Bobbie Humphreys < [email protected] > > To: Bob Vogel < [email protected] > > Cc: John S. < [email protected] >; " [email protected] " < > [email protected] > > Sent: Tuesday, June 26, 2012 10:39 PM > Subject: Re: [QUAD-L] do or don't you use narcotic/pain meds-survey > > What is AD? Bobbie > > > > Sent from my iPad > > On Jun 26, 2012, at 2:34 PM, Bob Vogel < [email protected] > wrote: > > Hi John, > From SCI nurses and physicians I've spoken with-- AD can hit anybody with > SCI of T6 and above, and is possible in > people with SCI as low as T10. > > Bob V > > On Jun 26, 2012, at 11:10 AM, John S. wrote: > > I've taken valium for 36 years, hydrocodone for 20, oxycontin for 8 and >lyrica for 5. Because my bones > deteriorate and fracture from simple lifts I either take my npain meds >or suffer from AD. I broke a > multitude of bones in my original accident and many never healed right. >I have deformed so badly that > Dr.s have said it hurts to look at my X-rays. Now, my bones and >floating organs make lifting and moving > in my chair almost unbearable. > Tell your Dr. to read up on AD if your a quad. If you're a paraplegic you > shouldn't have AD. This doesn't mean > you have no pain issues. You might try a physiatrist. > bw, > john > > From: Derrick < [email protected] > > To: [email protected] > Sent: Sunday, June 24, 2012 3:59 PM > Subject: [QUAD-L] do or don't you use narcotic/pain meds-survey > > I've been on 5mg (2x/day) narcotic for over 10 years. > I've been having more pain and asked my latest doc(very rural town) if she > would up my meds. > She told me that "narcotics are not prescribed to parapelgics" and the only > reason she writes me a script > because I've been on them so long. > > I disagree with her. I would like to hear how many on this list do or do not > take narcotics. If do, how many > pills&mg? > > I built a quick survey with 3 questions. You can see results at end of > survey. > http://www.zoomerang.com/Survey/WEB22G3WRVEZKQ > Thanks in advance, > Derrick W > > By the way, I'm a C5/6 quad, not a para. Not only her but the next towns pain > clinic prescribed "voltran cream" > a few years back. Like I can rub on my neck myself. I do plan to switch drs > but I want to educate her & others > in the future with survey results.
