This is a very important issue.spouses, girlfriends or boyfriends would appreciate having someone to talk to. I know when I went to meeting at independent living center in Kansas City. I remember there were several persons working at the independent living center that had able-bodied partners. We have a spinal cord Association that I'm sure would have someone in your same position. I have not been able to go to any other meeting.
I watched the video about sexuality that was on Friday. You can go to the website and watch although I don't think it really dealt with spousal caregiver issues. It is through the national spinal cord injury Association. Something you would need to talk to another person in your same situation and level of injury. The University hospital might also have someone to talk to in their spinal cord unit. I would hope that they give more guidance than they did when I was injured in 1974 . I can imagine the strain that are injuries, put on our significant others and just are caregivers and families. The responsibility is enormous. I have two brothers and sisters but there's only one brother that will make himself available to help me when he can. The video talk about having more services regarding sexuality in California. The presenter was from New York.. Dana if you have a wife or husband in California are you able to get caregivers from the state. There's a caregiver forum at _www.sciwire.com_ (http://www.sciwire.com/) Reeve Foundation and United Spinal have services for caregivers/families On Feb 22, 2013, at 11:05 AM, Dave Krehbiel wrote: I was injured at the beach about five years ago, just before my 50th birthday. I am now a C4/C5 quad who is now living at home with the combination of insurance, Medicare, Medicaid, and care by my family. My accident was a life changing experience for me and for my family, especially for my wife. She has tried to find someone to talk to about her issues, but there are precious few people who understand what it is like to be a quadriplegic or to care for a quadriplegic. For example, since I have control of my shoulder muscles and biceps, people see my arms moving and don't understand the severity of my injury. Are there any family caregivers (preferably spouses) out there who would be available to have a chat by phone with my wife? Thanks, Dave Krehbiel (301) 924-4530 = In a message dated 2/23/2013 11:55:50 A.M. Central Standard Time, [email protected] writes: There's a caregiver forum at _www.sciwire.com_ (http://www.sciwire.com/) Reeve Foundation and United Spinal have services for caregivers/families On Feb 22, 2013, at 11:05 AM, Dave Krehbiel wrote: I was injured at the beach about five years ago, just before my 50th birthday. I am now a C4/C5 quad who is now living at home with the combination of insurance, Medicare, Medicaid, and care by my family. My accident was a life changing experience for me and for my family, especially for my wife. She has tried to find someone to talk to about her issues, but there are precious few people who understand what it is like to be a quadriplegic or to care for a quadriplegic. For example, since I have control of my shoulder muscles and biceps, people see my arms moving and don't understand the severity of my injury. Are there any family caregivers (preferably spouses) out there who would be available to have a chat by phone with my wife? Thanks, Dave Krehbiel (301) 924-4530 =
