I've had similar spasm history as you Ron. I never took anything for the spasms, but they would literally stiffen my entire body. After 22 years they are quite mild and usually only when I am uncomfortable. My Dr. thinks that my bouncing around for years around our mini ranch and uneven ground helped a lot as I still have a lot of muscle tone in my legs with no atrophy. Who knows, but I am grateful for it. Joan C4
From: RONALD L PRACHT [mailto:[email protected]] Sent: Tuesday, April 09, 2013 7:24 PM To: [email protected] Subject: Re: [QUAD-L] Botox I had my rehab doc(psyiatrist) that I had since my accident in 98 start doing botox injections only. From what Ive personally seen and hear its just a money grab. One visit even if it helps will only lead to a visit every three months and another complication and possible addiction in your life. If you take some baclofen and range out or get in a pool once a week, even wheel a mile using a manual chair it could help eliminate a good percentage of spactiscity. every individual is different, some have extreme cases. as the years go by my spasms have lessened by themselves for some reason. when I was first injured 15 yrs ago I had to bungee cord my legs to the chair, it made transfers scary on many occassions. Now the spasms are very minimal overall unless something is wrong with me. Was it the pool, the 20 mg of baclofen, the wheeling ,handcycling that helped......noone knows for sure. just sharing my story. Everyone has to pick their poison.....as they say. Ron c7 _____ From: Lissette Whitehead <[email protected]> To: Derrick Winegardner <[email protected]>; "[email protected]" <[email protected]> Sent: Tue, April 9, 2013 9:04:01 PM Subject: RE: [QUAD-L] Botox I know about a guy from Australia who had a really bad reaction to botox and was very ill for a while. He is a para and had regained a lot of movement and function but he did the botox to correct something in his legs, not sure if for spasticity, maybe, but he was more paralyzed from the botox and was so sick he couldn't eat, he lost a lot of weight. He had to get detoxed to get all of the botox out of his body. It took him a while to recover. His family were really scared. I would never do botox, even if I didn't know about this story. Lissette Whitehead 1177 BroadwaySte. 18, apt. 127 Chula Vista,CA 91911 <http://www.lwgripgloves.com/> www.lwgripgloves.com _____ photo LW-LOGO3.png <http://i157.photobucket.com/albums/t79/LISSW/webpages/LW-LOGO3.png> photo Medirub-Sig_zpsace3de5c.png <http://i157.photobucket.com/albums/t79/LISSW/Medirub-Sig_zpsace3de5c.png> <https://www.facebook.com/pages/Lissettes-Goal-to-Walk/424394980957114?fref= ts> photo facebook_logo-LGTW_zps456f9046.png _____ Date: Tue, 9 Apr 2013 21:30:54 -0400 From: [email protected] To: [email protected] Subject: Re: [QUAD-L] Botox I remember hearing something about it being bad for quads. I think I read on reeve foundation discusion list. You can search their discussion list like quadlist. But there is always bad with the good.And everyone reacts differently to drugs. Derrick On 4/9/2013 9:00 PM, Julie Napper wrote: I've never heard of it either. However, in May, I'm going to get botox for muscle spasms for the first time. Julie _____ CC: [email protected] From: [email protected] Subject: Re: [QUAD-L] Botox Date: Tue, 9 Apr 2013 19:42:40 -0500 To: [email protected] Hi Julie, I have never heard of Botox for bladder? Has anyone use Botox for spasticity? I went To an orthopedic about my knee aand he suggested using Botox for spasticity Has anybody on the list ever use Botox for anything? Dana Sent from my iPhone On Apr 9, 2013, at 5:52 PM, Julie Napper <[email protected]> wrote: Hi, Has anyone here ever had botox to treat bladder spasms? The idea was thrown at me today, so I'm looking for your opinions on it. Thanks! Julie c4-5 Sent from my iPhone On Apr 9, 2013, at 7:11 PM, Dana Wray <[email protected]> wrote: I have never heard of Botox for bladder? Has anyone use Botox for spasticity? I went To an orthopedic about my knee aand he suggested using Botox. Sent from my iPhone On Apr 9, 2013, at 5:52 PM, Julie Napper <[email protected]> wrote: Hi, Has anyone here ever had botox to treat bladder spasms? The idea was thrown at me today, so I'm looking for your opinions on it. Thanks! Julie c4-5
