Nicki, they told me to do a sensitivity test that the urine must come straight 
out of catheter tube--not thru leg or night bags......I guess getting it from 
the bag would be ok, if you had just changed the catheter and bag both. Dan**

 

________________________________
 From: nichole rohling <[email protected]>
To: 'Danny Hearn' <[email protected]>; [email protected] 
Sent: Monday, October 28, 2013 11:43 AM
Subject: RE: [QUAD-L] bladder spasms
  


Urologist wanted to do IV Meropenum like 9 – 12 weeks ago. I got info from home 
health but uro didn’t send orders or call me back………I wasn’t symptomatic other 
than my leg bag was blue so I decided to change doctors since this Uro wouldn’t 
get back w/ me. I figured if it was serious they would have called me back!  My 
new uro can’t see me until Dec 11 so I’m just using my primary dr right now.
 
Just got off phone w/ the lab and they didn’t do sensitivity because they said 
culture was contaminated w/ skin flora? My urine came straight out of the port 
on night bag  after cath change……it came straight out of sterile pkg! ugh
I’ve been taking cipro so we can’t do another ua while I’m on it…………sooooooooo 
aggravated! 
 
I need a freaking doctor that will call me back now! I want a RX for bladder 
spasms and I want it now! 
 
Anyone know where I can buy Ditropan or Oxybutin on the street? LOL!
 
 
 
From:Danny Hearn [mailto:[email protected]] 
Sent: Monday, October 28, 2013 9:41 AM
To: Dana Wray; Don Smith
Cc: nichole rohling; greg; [email protected]
Subject: Re: [QUAD-L] bladder spasms
 
True, my doctoer put me on a low dose of cipro for 1 year in my early years as 
a Quad, causing my pseudamonas infections to be resistant to cipro in me. So 
each time I became sick with bladder infections I had to have IV drugs. The 
last time my doctor tried an IV drug called FORTAZ - this seemed to work a 
miricle, because now I have been about 3 years with no problem !  knock on 
wood, lol    Dan H**
 
From:Dana Wray <[email protected]>
To: Don Smith <[email protected]> 
Cc: nichole rohling <[email protected]>; greg <[email protected]>; 
"[email protected]" <[email protected]> 
Sent: Monday, October 28, 2013 3:20 AM
Subject: Re: [QUAD-L] bladder spasms
 
need IV antibiotics When I had Pseudomonas I was on IV for a month at home 
maybe longer.
Pseudomonas of my lungs.
Dana

Sent from my iPhone

On Oct 28, 2013, at 3:17 AM, Don Smith <[email protected]> wrote:
The pseudomonas may have become rrsistant to cipro
> 
> 
>From:nichole rohling <[email protected]>
>To: 'greg' <[email protected]>; [email protected] 
>Sent: Sunday, October 27, 2013 3:58 PM
>Subject: RE: [QUAD-L] bladder spasms
> 
>I thought of everything to no avail………..I need some Ditropan ASAP …….lol
>sensitivity results should be in tomorrow a.m ……. i’ve had pseudomonas in my 
>urine for about 9 to 12 weeks but wasn’t symptomatic………I’m wondering if cipro 
>is feeding it but I looked up and it’s preferred oral antibiotic for it
>I hate urine!
> 
> 
> 
>From:greg [mailto:[email protected]] 
>Sent: Sunday, October 27, 2013 5:22 PM
>To: nichole rohling
>Subject: RE: [QUAD-L] bladder spasms
> 
>Wow even if it was a bladder infection Cipro should've helped by now.
>Could something else be causing you to spasm, maybe your abdomen is cramping 
>down causing the bladder to cramp down. I know even if my shoes are too tight, 
>don't recline often enough, etc. my whole body starts spasm. Obviously you 
>know your body better, but you might look beyond the bladder at this point. 
>Greg
>> I drink 2 cups of cranberry juice a day w/ my liquid potassium and
>> I’ve been taking Cipro since Wednesday……….changed cath this a,.m.
>> but it apparently was not the fix J
>> 
>> 
>> From: greg [mailto:[email protected]]
>> Sent: Sunday, October 27, 2013 5:05 PM
>> To: nichole rohling
>> Subject: Re: [QUAD-L] bladder spasms
>> 
>> 
>> There's always talk of cranberry juice, but it's never helped me.
>> And every study I have seen doesn't show it helps much. But you can
>> always try. Maybe if you have a old antibiotic prescription. Greg
>> 
>> 
>>> Anyone know a home remedy for bladder spasms? ………….. tired of
>>> 
>> 
>>> peeing my pants and AD that comes with it J Just awesome the dr
>>> 
>> 
>>> didn’tcall me back Thursday or Friday.
> 

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