I was the one that referred to the statement if your current system works fairly well don't change it. My ol man told me years ago....never get off a moving train........Once the train stops then you must do something different and you will have no regrets because there was no other option. What that means is once your current system of urinating has deteriorated to a point where you cant go on that way, then the next step you take ......even if it has issues, can be taken with no regrets. In any case keep rolling til the wheels come off. ron
________________________________ From: Quadius <[email protected]> To: Gmail <[email protected]> Cc: nichole rohling <[email protected]>; Naomi Hudson <[email protected]>; "<[email protected]>" <[email protected]> Sent: Wednesday, November 6, 2013 7:20 PM Subject: Re: [QUAD-L] Suprapubic Catheter I had a suprapubic for a little more than 16 years, but my bladder had atrophied to the point where I was having extreme difficulty getting the catheter to drain properly, even when it wasn't plugged up. I was suffering from A.D. anywhere from 4 to 5 times per week and I finally decided I needed to go ahead and have the surgery to put in a urostomy. I don't have near the amount of A.D. episodes, but it wasn't the panacea the doctor said let me to believe it would be. I, like Bobbie, had a hell of a time recovering from the aftereffects of the surgery. It's been 18 months since my surgery and I still have pain in the bladder if I sit the back of my chair up to far. Therefore I have pain in my shoulders because I'm reclined back little more than I should be, but that pain is much more preferable to the horrific bladder pain which I incur about 20 minutes after sitting out too far. The suprapubic was a good thing for about 13 years. The biggest problem for me was the leaking through the urethra at the beginning, but if they want to use Botox to stop that, it would be worth it. As someone said on here, if it's not broken or causing extreme difficulties, I wouldn't fix it. Sometimes the alternative isn't exactly everything they say it's going to be. Quadius On Sun, Nov 3, 2013 at 2:45 PM, Gmail <[email protected]> wrote: I had an indwelling catheter for 26 years and then I had to have a urostomy done because my urethra was all stretched out beyond repair. I was at the point where I was changing my cath 3 to 4+ a WEEK! Which, of course, caused quite a few UTI's. >The Urostomy surgery was HELL I won't sugarcoat it, it was THE HARDEST surgery >I ever went through. The recovery was twice as hard as the surgery. >In the end, I wish I had done it sooner but I was he'll bent against it unless >I absolutely HAD to. >Bobbie > >Smile Everyday > >On Nov 2, 2013, at 1:00 PM, "nichole rohling" <[email protected]> wrote: > > >I’ve had an indwelling cath (16 french) for over 15 years……..just moved up to >a 18 from a 16 because of it stopping up and some leakage (minimal). I say >wait and get a 2nd opinion. >> >>Nicki >>c5/6 >> >>From:Naomi Hudson [mailto:[email protected]] >>Sent: Friday, November 01, 2013 9:47 PM >>To: [email protected] >>Subject: [QUAD-L] Suprapubic Catheter >> >>Help I need your advice, >> >> >>I have had an indwelling Foley catheter for the past eight years. My >>urologist keeps telling me eventually, my urethra will become eroded and it >>will start to leak. This will cause me to need urinary diversion surgery, >>which I've told him I'm not going to have unless it's absolutely, positively >>necessary, because it's so invasive. So now he's telling me my next best >>option is a suprapubic catheter. Then he tells me that he may have to give me >>Botox in my bladder to keep my urethra from leaking. So I'm like, why not >>wait until my urethra starts to leak and then give me the Botox and a >>suprapubic catheter. I have a return visit in three weeks to let him know >>what I'm going to do. Any suggestions? >>Have a Blessed Day, Naomi
