I had the best care at KU hospital but I usually go to a smaller hospital that is close to me that my doctors go to. New to give me after every day for my long but in the small hospital they did not give me up one day luckily I was always there for a week. For what I thought I gave it to them and so did my caregiver. They ask me not to turn in my questionnaire . I had so many problems going on that I don't think I even saw the questionnaire. Going to the hospital is hell Other care at KU because they messed up my surgery and maybe they gave me Extra care
Because they were wrong. Dana Sent from my iPhone On Jan 22, 2014, at 7:35 PM, [email protected] wrote: > Dana, you are right about hospitals. The nurses in my small-town hospital are > kind and well-meaning, but they know nothing about quad care. Very > frustrating. Larry Willis > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: [email protected] >> From: [email protected] >> Date: January 22, 2014 at 2:42:42 PM EST >> To: [email protected], [email protected] >> Subject: Re: [QUAD-L] Days in bed 2013 >> >> Jim, >> you should be able to go out patient and get the wound vacuum and have a >> visiting nurse take care of it. I got mine while hospitalized because of my >> foot surgery that went wrong. I think they would do them outpatient. I would >> ask my doctor and maybe search for a Dr. that would do outpatient. I had >> mine for two months and the agency took care of it. I have gotten a pic line >> to my heart for IVs with Pseudomonas in my lungs. I would think they would >> be equal procedures. I had to have skin from my stomach use for my heel, >> that was also outpatient. No I take that back I had to stay overnight. I >> hate going in the hospital as they never know how to do my care. It is a >> nightmare. >> >> Does anyone have the same experiences. >> >> Just my experiences. >> Dana >> >> In a message dated 1/22/2014 1:31:26 P.M. Central Standard >> Time,[email protected] writes: >> I didn't get why I couldn't get a wound vac at home without going to the >> hospital first. Oh well, I have night nurses (due to being on the vent) >> and they clean and change the packing every morning. >> >> >> On Wed, Jan 22, 2014 at 5:28 AM, <[email protected]> wrote: >>> Jim, your situation must be most unique. I know of dozens of Quads, using >>> wound vacs at home. Some are changed twice a day, once a day and >>> sometimes, once every 3 days, by a nurse. Wound cleaning is usually done >>> at a hospital or clinic so the medical doctor/wound specialist can observe >>> progress. Some nurses take phone/pictures of the wound with each change in >>> dressing and convey it to the doctors. >>> >>> Best Wishes >>> >>> In a message dated 1/21/2014 8:40:52 P.M. Central Standard Time, >>> [email protected] writes: >>> they briefly discussed a wound vac, but it would have involved a stay in >>> the hospital. I'm too paranoid of getting any infections going to a >>> hospital. This year makes 25 years and the only respiratory infection I >>> have ever had was year 1 while in rehab. >>> >>> Over the year it went from 2.7cm deep to 1cm deep now. Might heal faster if >>> I completely get off it but I have not been, just on the alternating air >>> mattress. >>> >>> >>> On Tue, Jan 21, 2014 at 4:35 PM, <[email protected]> wrote: >>>> Sorry to hear that Jim. Are you also using a wound vac? >>>> Best Wishes >>>> >>>> In a message dated 1/21/2014 6:33:42 P.M. Central Standard Time, >>>> [email protected] writes: >>>> I've been in bed since December 2012. I've only been getting out of bed >>>> into my chair once a month to go to the wound clinic. I use to >>>> hate being in bed but have realized what the problem was that with my >>>> adaptive input not setup to use from bed I couldn't do anything. Now that >>>> I can use the computer from bed and control the tv/dvr using a slingbox, I >>>> can do everything I would normally be doing from bed. No need to get >>>> dressed, do transfers in and out of bed saving about an hour a day to do >>>> something else. >>>> >>>> My would was small but deep. I was given the option of flap surgery but >>>> that would require going to the hospital then a nursing home. No thanks. >>>> So it's healing slowly, no infections. My nurses change the packing in the >>>> wound daily. >>>> >>>> Jim >>> Sent from my iPhone On Jan 22, 2014, at 7:35 PM, [email protected] wrote: > Dana, you are right about hospitals. The nurses in my small-town hospital are > kind and well-meaning, but they know nothing about quad care. Very > frustrating. Larry Willis > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: [email protected] >> From: [email protected] >> Date: January 22, 2014 at 2:42:42 PM EST >> To: [email protected], [email protected] >> Subject: Re: [QUAD-L] Days in bed 2013 >> >> Jim, >> you should be able to go out patient and get the wound vacuum and have a >> visiting nurse take care of it. I got mine while hospitalized because of my >> foot surgery that went wrong. I think they would do them outpatient. I would >> ask my doctor and maybe search for a Dr. that would do outpatient. I had >> mine for two months and the agency took care of it. I have gotten a pic line >> to my heart for IVs with Pseudomonas in my lungs. I would think they would >> be equal procedures. I had to have skin from my stomach use for my heel, >> that was also outpatient. No I take that back I had to stay overnight. I >> hate going in the hospital as they never know how to do my care. It is a >> nightmare. >> >> Does anyone have the same experiences. >> >> Just my experiences. >> Dana >> >> In a message dated 1/22/2014 1:31:26 P.M. Central Standard Time, >> [email protected] writes: >> I didn't get why I couldn't get a wound vac at home without going to the >> hospital first. Oh well, I have night nurses (due to being on the vent) and >> they clean and change the packing every morning. >> >> >> On Wed, Jan 22, 2014 at 5:28 AM, <[email protected]> wrote: >>> Jim, your situation must be most unique. I know of dozens of Quads, using >>> wound vacs at home. Some are changed twice a day, once a day and >>> sometimes, once every 3 days, by a nurse. Wound cleaning is usually done >>> at a hospital or clinic so the medical doctor/wound specialist can observe >>> progress. Some nurses take phone/pictures of the wound with each change in >>> dressing and convey it to the doctors. >>> >>> Best Wishes >>> >>> In a message dated 1/21/2014 8:40:52 P.M. Central Standard Time, >>> [email protected] writes: >>> they briefly discussed a wound vac, but it would have involved a stay in >>> the hospital. I'm too paranoid of getting any infections going to a >>> hospital. This year makes 25 years and the only respiratory infection I >>> have ever had was year 1 while in rehab. >>> >>> Over the year it went from 2.7cm deep to 1cm deep now. Might heal faster if >>> I completely get off it but I have not been, just on the alternating air >>> mattress. >>> >>> >>> On Tue, Jan 21, 2014 at 4:35 PM, <[email protected]> wrote: >>>> Sorry to hear that Jim. Are you also using a wound vac? >>>> Best Wishes >>>> >>>> In a message dated 1/21/2014 6:33:42 P.M. Central Standard Time, >>>> [email protected] writes: >>>> I've been in bed since December 2012. I've only been getting out of bed >>>> into my chair once a month to go to the wound clinic. I use to hate being >>>> in bed but have realized what the problem was that with my adaptive input >>>> not setup to use from bed I couldn't do anything. Now that I can use the >>>> computer from bed and control the tv/dvr using a slingbox, I can do >>>> everything I would normally be doing from bed. No need to get dressed, do >>>> transfers in and out of bed saving about an hour a day to do something >>>> else. >>>> >>>> My would was small but deep. I was given the option of flap surgery but >>>> that would require going to the hospital then a nursing home. No thanks. >>>> So it's healing slowly, no infections. My nurses change the packing in the >>>> wound daily. >>>> >>>> Jim >>
