I've been having a lot of problems with my bowel regimen myself. Mine has developed into a marathon as of late. I do mine on the bed, lying on my side. Usually it takes between three and five hours to completely get done. I should, however, say that again our have to do ours is trying to make sure all the mucus has expelled so that I don't have a problem when I get up in the chair. I usually do the night, but I still have the occasional problem with mucus when I get up in the chair. I discussed this with my doctor and she has suggesting I take the chemical equivalent of the magic bullet Orally to see if I can get my bowels moving a little quicker. I have still have had problems even when my bowels move quickly getting the mucus to stop in a reasonable amount of time. Q
Sent from my iPad > On Feb 3, 2014, at 12:35 PM, "nichole rohling" <[email protected]> > wrote: > > That’s what I’m thinking Ron………I’m sure leaning towards colostomy………I’m so > over sitting 2 hour bowel programs, enemas and hemorrhoids! But I REALLY > wants to hear other’s experiences with it. > > Nicki > > From: RONALD L PRACHT [mailto:[email protected]] > Sent: Sunday, February 02, 2014 7:33 PM > To: [email protected] > Subject: Re: [QUAD-L] Diverting Colonoscopy > > The best thing would probally be a temporary colonoscopy to allow your anus > to heal from all the digital stimulation. I almost had to get a colonoscopy > when my appendix burst back in 11. People with certain forms of cancer get > temporary colonoscopys also. Ive heard both sides of the spectrum on quads > and colonoscopys. Some tell of the crazy nights where the bag bursts and it > takes 4 hours to clean up. Then Ive heard the other side where it allows more > independence and avoids 2 hour bowell routines which would be good. Once I > get about 50 and my dad is dead Im going to consider it. If I could change > the bag alone it would be a great benefit. I would like to hear real life > experiences of living with a bag. > > Ron > > > > From: nichole rohling <[email protected]> > To: 'Patricia Brown-Tulee' <[email protected]>; [email protected] > Sent: Sunday, February 2, 2014 4:36 PM > Subject: RE: [QUAD-L] Diverting Colonoscopy > > My blood pressure went down fairly soon after we quit pushing on my “butt > nugget” LOL I did have a caregiver take a pic about a year ago and I about > croaked! OMG – I can’t imagine what it looks like now. My gynecologist > described mine as cauliflower but he saw it hours after it retreated J He did > not advise surgery at that time as he said it would just come back. What > comes out now is blood red and raw – I know,TMI! > > I don’t get dysreflexic often but this is 2nd time in 8 months that once I > do………my body is hypersensitive and just getting in bed last night made me > have a pounding headache. > > How long after surgery was it before you were able to do bowel program and > sit on a shower chair? > > From: Patricia Brown-Tulee [mailto:[email protected]] > Sent: Sunday, February 02, 2014 4:18 PM > To: nichole rohling > Subject: Re: [QUAD-L] Diverting Colonoscopy > > I had my "butt nugget" [we call it] removed over 5 yrs ago & it came back, > turning into a "cauliflower" which my husband thinks I need to have it > removed again & I don't want to. Hopefully, yours is different. I had no > problem w/ recovery. They did have to clean me out more before, which had me > postpone surgery & kept me in hospital for a few days. I never had blood > pressure problems that stayed high because of it, so we are different there & > might possibly be talking about something different. The "diagnosing doctor" > did think it was worse than the surgeon for I was told I needed some part of > my intestine removed, which the surgeon did not. Then again, maybe that's why > it came back. (I'ld compare pictures of our butts, but that'ld be weird). Oh, > & I never did a colostomy. > > Patricia > [email protected] > > while adding years to your life, add life to your years > > On Sunday, February 2, 2014 11:58 AM, nichole rohling > <[email protected]> wrote: > I remember someone posting not too long ago (few months) about getting a > colostomy and said they'd never go back. > I have been putting off going to a rectal surgeon for 2 years. My rear is > prolapsing and after sitting on my shower chair for at least an hour doing > bowel program and even just to take a shower my caregivers just push it back > where it belongs and this has worked for a long time UNTIL YESTERDAY. My > blood pressure shot up while pushing it back in. By the time we could get > batteries in my blood pressure cuff my headache was not nearly as bad and my > bp was 191/123. I did the same thing today. I am scared about recovery from > fixing my rear and would guess at least a temporary colostomy would be done. > Would love any advice and would love to hear personal experience regarding > it. > > Nicki > > -----Original Message----- > From: [email protected] [mailto:[email protected]] > Sent: Saturday, February 01, 2014 9:17 PM > To: Gmail > Cc: Aaron Mann; quad-list > Subject: Re: [QUAD-L] Diverting Colonoscopy > > My bf quad since 1992. Got a colostomy in 2009. Went to hospital via > ambulance for severe pain and AD while doing BM. Had no choice but to get > colostomy. They told him it could be reversed after he healed. > > But after he healed, it has been a blessing. He can empty it himself. And we > only have to change the bag every 3 days. > > Yes, we there has been accidents but no more or less than without the > colostomy. And NO bowel program to do! > > Sent from my iPhone > > > On Feb 1, 2014, at 9:09 PM, Gmail <[email protected]> wrote: > > > > Aaron, > > Sorry to hear you need another skin flap. I don't have a > colonoscopy but did go through urinary diversion surgery. Let me be > completely honest with you. The surgery for the urostomy was the hardest > surgery I ever experienced in my entire life. The recovery was insane! I > spent 10 long hard days in the hospital then eight weeks at home barely > moving. Now that I do have it I love it, I would recommend having a Urostomy > but not going through the surgery if you know what I mean. > > We Quads go through so very much that it is insane! You could never, ever > describe what we go through physically, mentally and emotionally. I > personally would say do not go through the colonoscopy. I just feel that > this test in particular is just being prescribed like aspirin. > > I am not a person that likes to go "disease hunting" or have procedures > done to look for trouble, as it were. > > It's your body, you decide. > > Bobbie > > > >> On Feb 1, 2014, at 9:40 PM, Aaron Mann <[email protected]> wrote: > >> > >> I'm about to have flap surgery for the third time on my butt in 25 years. > (Surgery is required due to an infection on the bone.) The plastic surgeon > I'm seeing says that he HIGHLY recommends getting a diverting colonoscopy at > the same time. I mean he's REALLY pushing to get this done. His reasons > seem valid: more control over BP, no chance of mess getting on any future > wounds. But, this is a big deal to me. I've always been told "Never go > under the knife unless necessary". I'm not having issues bowel-wise, so... > >> > >> Have any of you experienced this opinion or currently have a diverted > colon that can speak on the wisdom of voluntarily having this done. > >> > >> Aaron Mann > > > > > >
