Can you please follow up with the group with any outcome,  This past spring I 
had a bad reaction to medi honey also called munuka (spelling) honey, it comes 
from New Zealand.  I spent 6 hours in the ER. and carry an eppy pen when I'm 
out but I am a c5/6 incomp. quad and would also have problems if the need came 
up.  I'm not sure if it's all honey and bee products, but better safe then 
sorry.

Don




________________________________
 From: Don Price <[email protected]>
To: "[email protected]" <[email protected]> 
Sent: Tuesday, February 11, 2014 11:56 AM
Subject: [QUAD-L] Epi Pen
 


I've recently had a strange allergic reaction that causes my lips and face to 
swell. It happens about once per month, in the middle of the night and so far 
we haven't been able to determine the cause.

Yesterday I saw a specialist (Allergist) and we're doing some tests to find the 
cause. She wants me to have an epi-pen with me in case my air ways ever start 
to swell shut. An epi-pen is for emergency injections of epinephron, and you 
basically stab it into your thigh and it auto-injects medication. We worked 
with two different 'dummy pens' that have no needle or medication just to teach 
me how to use the pen if I ever needed it in an emergency. However, I was 
unable to grasp either of the pens well enough to push down hard enough to 
trigger the auto-inject mechanism. My doctor insists that I be able to do it 
myself in case of emergency.

My question is: do any of know of an epi-pen that is more 'quad friendly?'

My doctor admitted she had never considered this situation, although it could 
easily be an issue for anyone with limited hand function such as arthritis or 
gout. So, my doctor is having reps from the companies that sell these pens come 
in and meet with me/her so we can brainstorm on a solution.

I welcome any input from my quadlist friends.

Don Price
Tempe, AZ

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