This month's copy of New Mobility (April) has a complete article on this procedure and covers both Pro's and Con's. Also a nice article by one of members here on Peristeen by Coloplast. Best Wishes In a message dated 4/10/2014 10:55:08 A.M. Central Daylight Time, [email protected] writes:
My husband has been paralyzed since 1992. In 2008, he opted for a colostomy. Actually he had no choice as it was under emergency circumstances, but they did explain it would be reversible. However it is so much more convenient---he has never considered going back. No more being a slave to the BP. If anyone has questions specific to this procedure or life with a colostomy bag, feel free to email me. Sent from my iPhone Please excuse any typos or brevity of tone as this was typed using an iPhone (and possibly Siri, in an effort to be as safe as possible while en route.) My best, On Apr 10, 2014, at 10:42 AM, Bill Lang <[email protected]_ (mailto:[email protected]) > wrote: hi, I hear you. I'd be using OxyContin and Fentyl for the last four years. 30 mg. Very 3 hrs, and patches at 250 mg changing every 48 hours. I too have a problem with my bowel program, seems it's either very soft and sticky or very hard and needing an enima to evacuate. When I do that it really screws everything up. Best advice I can give you is to keep it soft at least it's coming down. When I need to go (badly my BP is every other day), I will use warm prune juice and double doses of MiraLAX. My body goes when it has to, and it seems that it takes 48 to 54 hours for those solutions to finally work. I have been prescribed Amitiza and it does work to keep me regulated most times. There is a $200 co-pay for a 90 day supply. Sadly, our schedules are slaves to our bowel programs. I will look for advice from our other friends on the list to see if there is anything that I have not tried. Just thought that our situations are so mirrored that I would dictate this off to you. Good luck Billy Lang Sent from my iPad On Apr 9, 2014, at 20:14, [email protected]_ (mailto:[email protected]) wrote: Stool softeners don't help most people. we have all talked and fiber, water, fruits, sugar free see's chocolate, prunes, senekot.....and did I say water seem to be somewhat helpful. ____________________________________ From: [email protected]_ (mailto:[email protected]) To: [email protected]_ (mailto:[email protected]) , [email protected]_ (mailto:[email protected]) Sent: Wednesday, April 9, 2014 3:57:26 PM Subject: Re: [QUAD-L] Big Prob... What did the doctor advise? Oatmeal is a good way to begin the day. It contains fiber. Drinking lots of fluids is equally important. Best Wishes In a message dated 4/9/2014 5:20:09 P.M. Central Daylight Time, [email protected]_ (mailto:[email protected]) writes: Ok, son is on Oxycodone X 5 and 50 mg.Fentanyl and only eats solid foods when we go out to doc 1-2 a time a week other then that its all soft. He has had 2 x rays said he is full and they have me doing daily stool softeners, suppositories, miralax this has been from Feb.24 th when he went in for colonoscope I've got 12-15large marbles what do you all tack. Hate to take him off anything we just got to where we manage the pain after 4 yr. =
