I know a paraplegic friend that I met through Show Me Aquatics( swimming org for the disabled at the YMCA ) He was paralyzed in 03 by a gunshot wound. I helped him find a wheelchair van and became good friends with the man. His family just tricked him into going into a nursing home. Hes in there now and never has anyone get him out of bed. Pressure sores have developed and he just lays there 24 hours a day doing nothing and getting no help . We have to appreciate the small things we have because others have it much worse. It is tough.........sometimes Im so lonely at times I just lay there and need something for comfort. No walking individual has any understanding of how it is being paralyzed over the years with all the challenges. Ive also learned if you cry, you are going to cry alone. somehow we must put on a brave face at times to keep from running people off. As far as god goes, have a bowell accident and see how long it takes for him to change the sheets for ya. For me, I would take a friend who will actually help me out over someone in the background praying.
Ron ________________________________ From: "[email protected]" <[email protected]> To: [email protected]; [email protected] Sent: Saturday, April 26, 2014 8:08 PM Subject: Re: [QUAD-L] feeling like a bourden Nadean, People just don't know what they should say or do around you ( or us ). After many years I found out you just have to always say THANKS for every little thing that anyone does for you. I know it is hard but don't complain....no one wants to be near a complainer but they do like to be thanked. I have been in a chair for more than 33 years, if someone asks if they can help, I will either say no thank you now but maybe later or give them some little task, please get me a drink of water and always say thank you.Yes, life is hard, but be glad of all the things you do have....including being able to be on this quad list to vent your problems. I hope this helps, Rose In a message dated 4/26/2014 6:10:27 P.M. Eastern Daylight Time, [email protected] writes: does anyone feel like everyone even your own family dosent want to be around or hurry up and leave because u need help. im so alone
