I know we've discussed about syrinx before but I have some questions for you.
I'll tell you whats going on. My oldest grandchild, Samantha was diagnosed 3
yrs. ago with a syrinx in her spinal canal at the C6 level, she was 12yrs old.
That first yr she had no problems then last yr she started having double vision
& blurry vision. The Dr's said she had a pseuodo tumor pressing on her optic
nerves behind her eyes. They said there was no tumor but her body thought it
was a tumor caused by the syrinx. Last yr. the Dr's took her to surgery to put
in a Shunt at the base of her brain which drains down into her abdomen just
above her bladder. They put a magnetic dial under the skin just below her right
rib cage. With this dial they can regulate the amount of spinal fluid from the
shunt. She has a lot of nausea & headaches. Now her double vision cleared up
but she still has blurry vision. Sam is now 14 & has a positive attitude. Then
Friday morning she woke up feeling tingling & numbness in her legs. Her
parents, my Son & Daughter In-law took her back to Chicago to her Dr's. They
admitted her & giving her physical therapy & teaching her how to walk with a
walker. My questions for those of you that have a syrinx did you get the syrinx
after your spinal injury? Did anyone become paralyzed because of the syrinx?
Has anyone had their syrinx drained? Sam's Drs said her syrinx had increased in
size & she has lost too much weight which caused her dial to dislodge. All that
she has to go through makes me sick.
Lindaf
