Seeking Vindication! Given what I am experiencing it is my opinion that the medical community is operating based on some misconceptions that has them failing to recognize a condition that is treatable. A condition that is likely to render their present ideas for a cure unsuccessful. A condition that must be overcame first. A condition that if treated may result in a cure or enhanced recovery for many of the incomplete spinal cord injured. It has became apparent to me that the spinal cord injury site is not necessarily the primary site of lost or restricted nerve signals. The muscles themselves can be, due to a shock reaction that occurs within the integrated muscular and nervous system. This to the best of my knowledge has not been recognized by the medical community. The shock reaction I refer to is like a tornado had ran through my entire muscular system winding it up tight with the core to all that winding being in my right shoulder. The result from all this winding is that the muscles from finger to toe are wound so tight they can not move and the ones that can move have so much distortion and tightness in them that they can not move as they should. Look at yourself, your joints are all out of alignment, a lot of your muscles are hard as a rock not limp. That is because of what I speak of. I have reason to believe that much of what the medical community passed off as phantom sensation was actually related to this condition working it's way deep into my muscular system. I was completely unaware of this condition for at least the first 27 years since my injury. I am aware of this condition now because botox treatments unknowingly triggered a recovery process in me that has taken a long time to figure out. I have worked through enough nerve and muscle tissue reactivation now to get a clear understanding. The knowledge I have was progressively acquired over the course of this process which is still ongoing. So What Is The Cure? Doctors administering botox are focused on comprehensive spasticity control. I would prefer they be focused on the condition I have described but until it becomes recognized by the medical community we have to work around it. First thing is to identify the core of the problem. My best guess would be your least functional upper quadrant. The one where you had bazaar dubbed phantom sensations shortly after injury. The one were there seems to be a annoying mass that is always there. I only speak from my own experience. Get botox treatment to release rotation through your arms and shoulders so you can better rotate arms and flap your elbows like a chicken. The more aggressive treatment going to the quadrant with the annoying mass. The idea is to reduce and work torque out of the core mass so strangled nerves start reactivating. It should not be too difficult to convince the doctor as there is likely a lot of spasticity associated with the muscles involved. Given what I have experienced I believe it would be helpful and possibly exspeediating to have rotation treated through the hips as well. Once you have received treatment rotational exercises from wrist to ankle to help initiate the onset and progression of the process are a must. Twisting and bending spring bars of appropriate tensions is quiet effective. Working rotation back and forth as far as you can against the resistance in the muscles is also good, even better if someone helps to extend the range. With the entire muscular system and the nervous system within it wound tight like it is you have to treat it like one complete unit that has to be brought along as such as everything seems to be so interactive. I found small doses of marijuana to be quiet helpful and it may be a necessary component. By small dose I mean that I vaporize some early every evening and only go through about one gram per week to get the effects I want from it. Then I do rotational exercises as I watch shows. The marijuana seems to work as an amplifier between the brain and the reactivating nerves allowing one to more effectively sense and work the process.It also seems to ward off fatigue and depression. This recovery process could initiate anywhere in your body. Consciously look for a elastic electrified fibre that was not there before that causes a small muscle pulse when you consciously expand and contract it with your rotational exercises. Work it and hopefully it grows into a webbing of the same with more muscle responses. Things progress increment by increment from there. This is how this recovery process initiated in me, in my case it started in my left inner thigh. This is how you stimulate the progression of the process and it is most effectively done under the influence of marijuana. Major nerve release events are unmistakable as they can be experienced as quiet bazaar internal events that only last about 15 or 20 seconds. If the process I have been undergoing initiates you will become more and more aware of changes and what is wrong inside you as it progresses. You will become aware that the overall system is wound tight, you will encounter completely frozen muscles that need to be worked up, you will encounter various types of restraints that you have to overcome, you will find that about anything that can pivot within the body is internally locked at one extremity or the other often opposed from side to side. The good news is that when you can sense these things there is enough nerve activity to start working the distortion out of the system. Until then it is like trying to stretch a steel bar, pointless. One has to sense there way through this process as the body gives things to you. Your own body becomes your best guide. It is like having a build in game were every day you beat a level only to be followed by a more intense and complex level the next day. It is up to you to beat each puzzle you encounter. Much requires some priming or forcefulness. Though expected at times along the way I never experienced any significant pain. It can be a long road for those injured years ago like me, those injured recently may have it easier as distortion may not be so frozen in? My injury occurred 35 years ago and is a incomplete C4 C5 spinal cord injury with minor damage at C2 C3. Botox initiated this process in me about 8 years ago when I went for intervention when my function started to decline. A lot has to be worked through internally before improvement becomes clearly evident externally. Then there is the fact that I have to deal with constant change in a body that still has a lot of distortion in it which makes coping difficult. Function isn't likely to get real good till the process ends and things stabilize. I would like to hear from others who try and encounter this process as I could use some vindication. If that comes maybe the medical community will wise up. Only then will doctors search specifically for the optimum combination of muscles to treat (Could x-rays help?) to promote the rehabilitation of patients from this condition. Only then will physiotherapists become tuned to appropriate physiotherapy to complete this recovery. I believe that many of the spinal cord injured can be rehabilitated far beyond what is presently being achieved. You have just been presented with a walk through to a walk. [email protected] CANADA
