Yes. Waiting for my doctor to return my call so we can start testing and ruling 
things out.

 

Nicki

 

From: [email protected] [mailto:[email protected]] 
Sent: Thursday, May 12, 2016 12:56 PM
To: [email protected]; [email protected]
Subject: Re: [QUAD-L] Bowel Problems / Syrinx

 

Have you considered having a sample of your stool tested for high bacteria?

Best Wishes

 

In a message dated 5/12/2016 12:14:58 P.M. Central Daylight Time, 
[email protected] writes:

I was having issues last fall with having to call my caregiver to come and get 
me on my shower chair about 2 hrs after I would get in bed. I would have 
diarrhea or very loose stools.

Dr. started me on a probiotic and it did help. Only had to call caregiver once 
from November to last Thursday. I had to call Thursday night, Sat, Sun and last 
night (I took lomotil Monday and didn’t have to call Mon or Tues)

I called Craig’s nurse hotline and she gave me several possibilities as to what 
we need to check.

Syrinx was 1 of them ad I have been having a very odd excruciating pain in my 
shoulder joints.

Anyone with a syrinx experience bowel issues? Or anyone experience bowel issues 
like I am.

We’ll be checking a number of other things too but just asking for others’ 
thoughts, experiences.

 

Nicki

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