I was just about to say the same thing as Larry. So I will just say ditto to Jim and Ismael even though some many of us are going through our own personal hell. I have been through the absolute worst circumstances I have ever been since my injury but the story is too long to tell and it continues every week but somehow find the strength to go on.
I have been in bed for the last 3 weeks with a wound in an area that I have never had a wound before (I guess you would call it my groin area in between my upper left thigh and my upper left labia -- DEEP in the crease). I wouldn't doubt it that it has all been from stress since physicians, nurses and home health care agencies have done nothing but hurt me and caused me irrecoverable problems that continue to this day. It all began at the beginning of this year after being forced by my family to go out on my own with nowhere to go after losing my husband in June 2012, which almost killed me with that happening. My family didn't even think twice about considering putting me in a nursing home and that was not going to happen to me after living such an active life, having a wonderful United States Certified Support/Companion Dog who has been with me since my husband and I adopted her in November 2009 and has been with me through her daddy's death, my family abandoning me, and right to this day. She is the most intelligent, perceptive and intuitive dog I have ever had and never leaves my side. Between 2009 and early 2012 I was, statistically speaking, in bed 99% of the time with a wound over my left ischial tuberousity (left butt bone) . That was also originally cost from two medical "professionals." With the latter word, used very very loosely. I don't know how I keep being the victim of people doing things to me but that can't be "proven" for one reason or another but I have been time and time and time again, which cost me my first 13 year relationship. I had everything one day (with me and my husband and the wonderful life we were living and the wonderful person he was to be there for me whenever I needed him in any capacity), and it was all gone the next. That was when I first learned what stress can do. It was just 2 months or less after losing my husband and I had my first seizure, and I had never had a seizure before in my entire life. I thought it was a one time thing until they continued after a full day of stress or pain or exhaustion or all three of them together. It took me a good year and a half to find out that they are not your typical seizure but something called "Psychogenic Non-Epileptic Seizures." Just do a Google search on those words to see a quick explanation of what they are. I sometimes get weary of the platitudes that ~life is so fragile~, but it is. Best to you all! ~Lori PS -- I would still like to start a thread for those people I can't remember where they are living, how old they are, how many years post they are, and they're living circumstances or primary caregivers. However, I know this is a public forum, whereby anybody out there can view the archives . So I understand why people are hesitant to do that also. On Sun, Jul 31, 2016 at 4:39 PM, Larry Willis <[email protected]> wrote: > Ismael, you make me ashamed of my puny complaining. You and Jim Lubin are > two of the most remarkable men I have ever met. I wish I had half your > strength and courage. You deserve a special place in heaven, my friend. God > bless the both of you. Larry Willis > > Larry Willis > Retired and proud of it > > > Begin forwarded message: > > *Resent-From:* [email protected] > *From:* "Ismael Cavazos" <[email protected]> > *Date:* July 31, 2016 at 2:59:36 PM EDT > *To:* "Blue" <[email protected]> > *Subject:* *[QUAD-L] everything is possible* > > Hello my friends today is 15 years that I've been out of the nursing home > I don't know if you guys ever been in a nursing home but a nursing home is > not a good place for nobody most of my life I was in the nursing home I was > 18 years old when I went to a nursing home 36 years that I've been a > quadriplegic and all my life I've been legally blind it was scary when I > got out because I was in a nursing home for so many years I was scared to > get out I thought I was not going to be able to make it outside the nursing > home because I am connected to a respirator when my accident happened by > Dr. only gave me 72 hours to live that bad thing about it I'm not getting > any younger I guess everything is possible with GodHelp thank you and God > bless you > > -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
