I soooo agree as well. I have mantle cell lymphoma, a cousin to leukemia. Diagnosed in 2013. By all studies, it could return in 3 yrs in which chemo will have no effect. There has been a pill that came out in 2014. If my body can't tolerate it, I'm done! So there comes a time in which we have to look at the quality of life!!! Dianna (still dealing with a stage 4 wound since last summer)
I sooooooo agree with you Larry Bobbie Smile Everyday On Jul 31, 2016, at 4:32 PM, Larry Willis <[email protected]> wrote: I know relieving all pressure is absolutely essential to healing a pressure sore. But I simply refuse to stay in bed for six months. I know it sounds awful negative, but I refuse to waste six months of life on a miserable bed stay. I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I choose to roll the dice. Whatever the outcome, I'll live with it.....or die with it. Regardless, I'll face this world with my ass in the saddle. Larry Willis -----Original Message----- From: Bobbie Humphreys <[email protected]> To: Larry Willis <[email protected]> Cc: quad-list <[email protected]> Sent: Sun, Jul 31, 2016 8:33 pm Subject: Re: [QUAD-L] Cushion question I sooooooo agree with you Larry Bobbie Smile Everyday On Jul 31, 2016, at 4:32 PM, Larry Willis <[email protected]> wrote: I know relieving all pressure is absolutely essential to healing a pressure sore. But I simply refuse to stay in bed for six months. I know it sounds awful negative, but I refuse to waste six months of life on a miserable bed stay. I'll soon be 65, and will be 45 years post next Sunday, Aug 7. Like Joan, I choose to roll the dice. Whatever the outcome, I'll live with it.....or die with it. Regardless, I'll face this world with my ass in the saddle. Larry Willis Larry Willis Retired and proud of it Begin forwarded message: From: Bobbie Humphreys <[email protected]> Date: July 31, 2016 at 3:56:55 PM EDT To: [email protected] Cc: [email protected], [email protected] Subject: Re: [QUAD-L] Cushion question I got a band new Hill Rom hospital bed AND a Hill Rom hi tec alternating pressure mattress, the VERY best they have just this year. I've been having sores on my butt for 25 years or more. I've been in bed since Christmas and my wound is healed ... almost. But, I got 2 different sores since I've been in bed turning and on the supper duper mattress. I'm sooooo ready to just get up and live. But I'm talking about getting up 3 days a week for just 7-8 hours per day. Bobbie Smile Everyday On Jul 30, 2016, at 10:03 PM, [email protected] wrote: With pressure sores...you have to keep off it. Yes, stay in bed 24/7. I have been there, done that. It took 6 months to clear. I use a Roho and am pressure sore free now. Have someone check your bottom often. I used to have to go to the wound center every week until it cleared.For 6 months the only time I was off my butt was the day I went to the wound center. Never want to do that again. Rose In a message dated 7/30/2016 9:17:58 P.M. Eastern Daylight Time, [email protected] writes: I have had a pressure sore on my bottom for over ten years now. It refuses to heal. I got it during a hospital stay for an infection. I got a roho shortly thereafter. It healed other sores but not this one. I thought I would give this one a try. ---------- Forwarded message ---------- From: <[email protected]> Date: Saturday, July 30, 2016 Subject: Re: [QUAD-L] Cushion question To: [email protected] Is your current Roho not working? I have used a Roho for more than 30 years and would be afraid to go to something else and possibly get a pressure sore. Rose In a message dated 7/29/2016 9:42:50 P.M. Eastern Daylight Time, [email protected] writes: Hey guys. I am trying to get a new chair and cushion. My advisor wants me to get a new style cushion by Ride Designs. Any of you familiar with it? Take a look at ridedesigns.com and tell me what you think. I value your opinion. I currently use a roho. Thanks, Larry WILLIS Larry Willis Retired and proud of it Begin forwarded message: Resent-From: [email protected] From: Bobbie Humphreys <[email protected]> Date: July 27, 2016 at 2:39:21 PM EDT To: [email protected] Subject: [QUAD-L] Pens? I wanted to ask what kind of pens dose everybody use to write with? I'm looking for a retractable pen that I don't need to apply much or any pressure. Bobbie Smile Everyday =
