Bryce, I take a drink after meals. Most of my protein is from food, but 140 must have been a mistype. I meant 100 grams per day. My bad. The problems with wounds is that they drain protein from your system so fast that it is important to replenish your that protein loss but as Lori said, don't overwhelm your system. Exess protein exits your system via your kidneys and can be harmful if not taken with lots of fluids and spread out over the course of a day. Some of the protein drinks can't be digested and will simply be excreted through the urinary tract. For many quads, it's important to discuss it with doctors and dieticians. After all, we want to be healthy, not cause more problems. Best Wishes, John s.
-------- Original message -------- From: Bryce Willis <[email protected]> Date: 08/07/2016 9:45 PM (GMT-05:00) To: [email protected] Subject: Fwd: [QUAD-L] Wound FYI John, how in the world can you take in 140 grams a day? Larry Willis Sent from my iPad Begin forwarded message: Resent-From: <[email protected]> From: alcibiates2 <[email protected]> Date: August 7, 2016 at 1:47:52 PM EDT To: Lori Michaelson <[email protected]>, William Lang <[email protected]>, quad-list <[email protected]> Subject: Re: [QUAD-L] Wound FYI I do know the hospital blue boots, but quite frankly, I believe that they have saved my boney feet and ankles from many sores over the years. In healing sores, I've found that a high protein diet is essential. A sore will drain protein from your system like nothing else. Don't turn your nose up to those nasty drinks. Just give in and choke it down. At least 140 grams per day. Best Wishes, John s. -------- Original message -------- From: Lori Michaelson <[email protected]> Date: 08/05/2016 5:02 PM (GMT-05:00) To: William Lang <[email protected]>, quad-list <[email protected]> Subject: Re: [QUAD-L] Wound FYI Hey William, I am sorry to hear about your ongoing problems, but this type of thing seems to be running rampant this past year, with many of us on this list no matter how hard we try for the breakdowns not to happen! I have never had a Roho cushion as I have always used a rotating air mattress. but I posted a couple of weeks ago or a little bit longer what is going on with me as a result of a careless nurse ruining my urethra. By stretching it. This leads to urine draining around the catheter, which I have never had in my life, which gives a Domino effect of skin breakdown -- most of which was causing my old battle wounds that I had between 2009 and 2012, whereby that very fragile skin will never get back to as strong as it was. To add insult to injury, and for the first time in my life a wound opened deep in the crease of my groin and for my safety [so any wrong movement or urinary bacteria by getting up in my chair] I have been staying in bed. It has been a little over 3 weeks now. They are both now closed but fragile, so I will wait a few more days to give it a chance to seal a little longer for lack of better words. I DID get up on Tuesday of this week to go see my urologist about the strategy of what to do about this urinary leaking and I was going over very smooth roads and did not go over any extraordinary bumps or anything. And it is only 10 minutes away. But in that time I got an abrasion over my right is she'll tuberousity, which is caused by shearing. My Roho Cushion has served me well for shearing and that is why I started using one beginning in 2010/2011 timeframe. So I could get up after my old battle wounds were mostly closed and then closed. What I have noticed a great correlation to happen is between all the stress I have been through over the last six months (because of what happened to me around February 1, of having my urethra stretched terribly, but of which I did not report at the time, because I did not think it would hurt long-term. And there was really no way I could "prove" that one particular nurse did it under the circumstances). Being without any family is what hurts the most and none of this would have happened had my sister and brother-in-law been able to keep me living with them and they very well could have because they took me in for 3 1/2 years after my husband's passing for what I thought would be much longer than that . And they had nowhere for me to go because there was no accessible houses or apartments in their town or around it. They did not even think twice about the consideration of putting me in a nursing home I have always been an active person and I was getting great care by hiring morning and evening caregivers 7 days a week and I had a great home health agency providing me with all nursing needs and 3 morning home health aide visits, which Medicare Certified Home Health Agencies started to cut way back on, starting in 1999 thanks to the Clinton administration. Their reasons for not being able to keep me on more selfish ones in my humble opinion. Besides, the three or four other family members lived in the same area and they could have kept "sharing the care" outside of my morning and evening caregivers. For example, I can feed myself and I was eating with them or if they went on vacation and my other sister would come down to help me during the day and overnight if I needed anything. My sister had to take me to doctors appointments, but they were only a few times a year. Everything was going great when living with my sister and brother-in-law and having other family around, but after they were forcing me to "move on" I had to decide what I had to do and do it quickly. Since my husband and I had been living in Arizona for 11 years, and whereby it is 100% accessible, with great weather I moved back to Arizona to find out that no home health agency wanted to take me on for whatever excuse they wanted to use and since Medicare has no teeth and can't force any agency to take down any patient... it has been a struggle to say the very least. From Medicare Certified Home Health Agencies (the only thing I qualified for) is where I get my catheter changed, my supplies ordered and delivered and any helpful wound care help from their skilled nursing. And Medicare pays for this home help and supplies 100%. They just cut back on home health aide care that was great prior to 1999 and switching to the PPS system that was providing me with free home health aides every morning and every evening 7 days a week. That was also paid for by Medicare 100%. So, what I am trying to say is that you are not alone and that always seems to be something. For me it has been people outside my control that have brought on all of my problems and my story is unbelievable. Take care my friend and since we know our bodies best... to have things get out of control is very scary to say the very very very least. ~Lori On Fri, Aug 5, 2016 at 4:04 PM, William Lang <[email protected]> wrote: Hi all, I have been fighting a number of pressure sores since Nov. One on my hip caused by laying on my right side for 25 years. it is finally closed up. I am a Vietnam Air Force vet so I get stuff from the VA for free. They gave me a hospital bed,and a ROHO mattress. I developed a new sore on my sacrum. It began as a Sheer wound. It was tunneling to the point where it is 2 inches deep and 1 inch wide. It was caused by the bed! If I did not lift my feet before lifting my head it created a sheer. I am currently treating it with Aqua cell which closes the wound and Mepilex covering. I also battling wounds on both my ankles and the bottom of my left foot. They are not so bad. We just keep them covered and wear the dreaded hospital blue boots. I am not, thank God, bed ridden. I suppose if the wounds get infected down I will go. Don’t let what you cannot do interfere with what you can do! -John Wooden Billy Lang [email protected] -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
