Larry...

I have been on Ditropan (Oxybutynin) for 37 years.

I first started out with 5 mg twice a day but then when I began to have
some bladder spasms in 2014 after I left my first visit to my local PCP
there (who had an office that had a pretty good size 3 inch dip entrance
because nothing in that town is accessible except for Wal-Mart or a grocery
store or one other physician I saw there) and going down off that drop from
his office with 6 tires they were quickly resolved with Extended Release
Oxybutynin - 10 mg twice a day.

But now that that nurse stretched my urethra beyond all recognition causing
me to leak terribly around my catheter I am now on Oxybutynin ER (15 mg)
which is the maximum dose but, unfortunately, that did not solve my problem
and now I am looking at surgery. I will never forget that woman!

Anyway, to answer your question... I have never experienced burning mouth
syndrome. Only dry mouth... which occurred when I had to up it to 15 mg
twice a day. Dry mouth IS a side effect but, again, I only began
experiencing it after increasing it to 15 mg extended release twice a day
until I can get this damn problem (not caused by me) taken care of.

I hope to get off of the medication simply because starting in the new year
my co-pay for it will be over $80 a month! That is the only extremely high
co-pay with the only Part D original Medicare can offer me with the
medications I am on. Our government is getting worse with Medicare and
Medicaid but I only been eligible for Original Medicare because, God
forbid, I did something like getting any Baccalaureate Degree, a job and
working and my husband did as well so I am not eligible for any Medicaid
programs until I tried to find out more about and perhaps go ahead and open
an ABLE account when it starts sometime in 2017 in Arizona. Other states
start earlier even though it is open nationwide now. I haven't had time to
look in depth about it because of my urology problem and making decisions
on what exactly to do to resolve it. Which I hope to find out on January 12.

How long have you been on it and when did you begin experiencing the
burning mouth syndrome?

On Mon, Dec 26, 2016 at 5:08 PM, Larry Willis <[email protected]>
wrote:

> Question- Can extended use of ditropan (oxybutynin) lead to burning mouth
> syndrome? Anyone else here experienced such a thing? It is a miserable
> curse. Any food with even the slightest spice feels like a marriage of
> cayenne and habanero. Sprite and Crest toothpaste both make my eyes water.
> It will go away for a week or two then come roaring back. Anybody got a
> clue?
>
> Sent from my iPad
>



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"Petting, scratching and cuddling a dog could be soothing to the mind and
heart and deep meditation and almost as good for the soul as prayer." ~Dean
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