I appreciate you boys giving me input. I will repay the favor. When one of you
gets a free moment could you give me a basic rundown of the upkeep of a
superpubic? Basic things and probs Im going to run into. When you hook up a bag
to your bladder and it doesn't expand anymore...............is that an issue?
The truth is a superpubic may actually improve my life. ive never been able to
go to any weddings or family events straight cathing because I couldn't wear a
suit cause I had to wear slip on pants to access myself to cathe . Family
events were always a no because I couldn't get in the bathroom . With a
superpubic I may be able to attend my first event without planning like its a
vacation. Ive wanted to go to a racetrack event but friends wont go with me due
to the straight cathing situation. with a bag I could go most of the day and
drain it in the grass, lol.
Ron
On Tuesday, May 1, 2018 1:33 PM, Greg <[email protected]> wrote:
Ask your doc, but I think if you dont like the Suprapubic, you can just take
it out.
Greg
On 5/1/2018 11:02 AM, RONALD L PRACHT wrote:
I cant understand how this can change in the matter of a few days but it did.
Im home alone most days and have little help. ive got to keep the foley in a
month, then the deciding starts. Im sure when they pull the foley that the
catherization tube will slip in at first. Will it stay that
way.............probally not. Im on Flomax now and oxybutin, im hoping that
helps.............not sure if it will. I don't fully understand why the
spincter is spasming or staying closed. I guess I will try anything to get it
working, but at some point Im going to have to look into a superpubic. I cant
see how a condom cathe could work very well long term, and wont work at all
without removing the spincter. I just don't want to make the wrong decision.
Ive already screwed up on my syrinx and letting the docs put a patch in my
stomach after my appendix burst in 2011. I just want to know when the smoke
clears if the superpubic sucks that I did all I could to keep what little life
I have rolling. I have very little support guys. Thanks for the help.
Ron
On Tuesday, May 1, 2018 12:13 PM, Quad Dude <[email protected]> wrote:
Hi Ron,
The only 2 alternative solutions I can think of will likely be unappealing to
you.
Since it appears your bladder sphincter is clamping down too hard, you could
get a sphincterotomy which debilitates the bladder sphincter and allows for
the free flow of urine, however, you would need to wear an external (condom)
catheter from that point forward.
Another possibly more appealing solution could be to get a suprapubic
catheter placement. This is done through a simple surgical procedure which
creates a pathway from your abdomen directly to your bladder and your bladder
would empty through this pathway via a Foley catheter. The side benefit of this
method of bladder management is it "frees Willie" and can make day to day
management a bit easier. The procedure is also reversible as the passageway
from the abdomen to your bladder will close on its own over a relatively short
period of time (multiple hours or days) if you remove the Foley catheter.
These may have already been discussed with your urologist. I definitely
encourage getting 2nd opinions before opting for any surgical procedures,
urology or otherwise.
I hope you find an acceptable solution that works for you.
Steve - C4, 30 years, auto accident
On Tue, May 1, 2018 at 4:37 AM, RONALD L PRACHT <[email protected]> wrote:
Im a c7 quad, 20 years post that has been straight cathing for 20 years
with little issue. Three years ago I started leaking a bit but just dealt with
it until the tubes wouldn't go in( pass sphincter) without an hour of pushing
and sometimes 5 tries. 3 months ago things got so bad that my bladder was full
and I couldn't insert the tube at all and my body went into severe autonomic
dysreflexia. I was taken by ambulance to the hospital and they inserted a foley
for 3 weeks. After the foley was taken out they gave me some antibiotics and
the tube was slipping in like butter for the next 8 days. Out of nowhere the
tube started getting harder and harder to get in until it was near impossible.
I was put on that drug that stops or decreases bladder spasms back at the
urologist visit after the emergency room deal. Went back to the urologist today
and they had to give me the nurse, she tried to run a cathe tube in me but it
wouldn't go so she tried a caude cathe tube with the bent tip. this got through
and urine came out but lots of blood came out as well which never has
happened. Finally the doc came in and tried to get a foley in and finally did
after awhile. The blood wasn't coming from the bladder, it must have knicked a
wall. My last urologist visit they ran a camera in and it looked great no
false passage or issues. The question is why is the tube not getting past the
internal spincter? I suggested trying Flomax and im already on oxybutynin. if
there is no blockage or false passage then the spincter has to be in spasm or
not opening right? What else should I do? I have this foley now for a month
that I didn't want but I got anyway. I guess if I take the Flomax and
oxybutynin and after the four weeks remove the foley and im sure the tube will
go in but within a week it might start giving me trouble again. I don't really
understand how the spincter could give me this much trouble and if it is what
else I can do. I fear that im going to get a permanent bag soon because they
are tired of me. maybe they can rescope me to be sure next time as
well........im at a loss.
Ron
