Hi, Lori, sorry to hear....I know you have been thru so much. I was diagnosed
in 98 or 99 with Syringomyelia. I have done pretty well over the years with
pain meds. but have more and more problems as time goes on. I have a lot of
trouble sleeping and at times I feel like my Entire body goes to sleep where it
is even hard to move, my left side seems to be getting weaker and basic simple
chores seem so much harder for me, Anyway I just hope I can keep getting up and
around until my Time comes. Hope you can get some kind of uplifting news, you
have had enough of the negative, You and all my Quad friends are in my Prayers.
Dan H.***
On Monday, August 27, 2018 6:33 PM, Lori Michaelson
<[email protected]> wrote:
For those of you who have been diagnosed with Posttraumatic Syringomyelia...
have your symptoms gotten worse dramatically over a short period of time?
I was diagnosed in the early 1990s and had a shunt put in a 1995 and except for
pain that I have learned to get used to (with help from a pain medication) I
have been okay since 1997 but on Sunday, April 18 I woke up with extreme pain
in that area which has spread and made that muscle (where the shunt is placed)
very very sore and that is the muscle I used to move that arm.
I just got out of the hospital on July 18 after being in there since June 28
because of depleting my body of sodium and then aspirating and having
aspiration ammonia and now this.
I can't believe this is happening (especially my diagnosis in February with
superficial bladder cancer and back to back bladder infections) in such a short
period of time making 2018 horrible! Not to mention losing my Furbaby who was
with me and stayed by my side for six years after losing my husband in 2012
(and we considered her nothing less than our Golden Retriever daughter as she
was really something special to say the very very least) and then not having
family continued to share the care.
Thanks in advance!~Lori
--
"Petting, scratching and cuddling a dog could be soothing to the mind and heart
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
