*Johnny, firstly congratulations to make it to age 60 after being injured at the age of 18. I was injured shortly after turning 15 and I am now 54. I was doing okay (with BLADDER infections) until a home health agency nurse hurt me badly. Then after going to a particular hospital/clinic I began getting two of the biggest, bad superbugs that are extremely multi-drug-resistant and dangerous and hard to get rid of because of that. *
*For the first 20 years after my accident I only had 5 infections than they were easily treated with a Sulpha type antibiotic and that is very common. I never had any side effects until 1997 when I got hives. After you have had a bad allergy reaction to a drug (like I did taking Bactrim which is a Sulpha drug) from then on it is a big no-no to take that type of drug again so I can no longer take any Sulpha drugs. I remember taking one every day as a prophylactic after my accident but I can't remember when I stopped that. * *Anyway, I didn't need it to a certain point and never got a bigger infection until around 2005 when Proteus Mirabilis found its way into my bladder via many bowel accidents and being female (with my meatus being right here by my anus). I remember having it twice and having to resort to IV antibiotics. It is a bacteria that does a great job to cause sediment and bladder stones which is what happened to me. I wish that was the only thing I was dealing with now. It is very sneaky and come then goes now but thankfully does not cause me pain. Unfortunately, any bladder stones could easily be removed through my urethral catheter until a home health agency nurse blew up a balloon in my urethra for the first time in 38 years so badly that it would not bounce back and so I required surgery to have a bladder neck closure and switch to a suprapubic catheter. With a suprapubic catheter.... bladder stones have to be caught sooner to be able to be removed through a cystoscopy instead of an outpatient procedure to remove them. Further, after I had the surgery in February of 2017... just 5 months afterward I was found to have a growth on the lining of my bladder and it turned out to be superficial cancerous so it was removed. That was probably another way for the superbugs that I have been getting ever since came from.* *Anyway, since meeting my husband and with him being a Chief Medical Technician when he was going to medical school and then me beginning to have problems with Proteus... I began to pay more attention to what BACTERIA was in my urine. The bottom line is... if your body reacts badly to whatever your physician put you on STOP TAKING IT AND CONTACT HIM OR HER so they can put you on something different. Simple as that. The type of drug used and the duration of treatment depend on the type of bacteria. There are plenty of bad physicians or urologists out there who think they are gods so if you do not like your physician for your urologists and they don't seem to be receptive to you... look for another one and from here on out, the best advice I can give you is to educate yourself by asking what type of bacteria you have. That way you will know and if you have to go to another physician they can look at their lab report and see if you could be treated with something else. Good doctors will do that.* *Best of luck since I am having a terrible problem with pathogenic superbugs now thanks to the ones that run wild in these hospitals these days and are on medical equipment.* *~Lori* *39 years post* On Wed, Nov 14, 2018 at 11:59 AM Jim Lubin <[email protected]> wrote: > > > ---------- Forwarded message --------- > From: DAVID LEWIS <[email protected]> > Date: Wed, Nov 14, 2018 at 10:17 AM > Subject: Very bad side effects taking when taking antibiotics for UTI > To: Quad-list <[email protected]> > > > Hi > Ive been a quad since i was 18 from auto accident. Im 60 now. > I have had a Texas cath all my quad life. > Its a condom and glue that holds it externally. > Ive had some uti infections now and again . > 1 have one now and my urology dr. put me on sulfameth/tmp 2 times a day > for 7 days > i have taken antibiotics before but i never ever had such a bad reaction > effects from.this one. I was light headed felt sick to my stomach, could > not eat anything because of no appetite felt, felt anxiety, got blurry > vision and could not sleep from stomach upset. > i finished the week but i will NEVER EVER take that med again. > Can you guys please tell me how you put up with uti antibiotics that you > had a hard time takings. > Also is there any ideas to prevent these bad side effects when taking uti > meds. > What if i had taken this in IV and it would bypass stomach? > What do you guys think? > I hope some of your comments back can help me > Thank you sooo much. > Johhny > > > > -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
