Thanks everyone. Gail... I have heard that D-Mannose is most only effective when your urine pH is at a certain level and that it is really only helpful for the most common type of bacteria (E. coli) in the urine. When my husband was alive, and with him being a Chief Medical Technologist who ran his own laboratory hospital for numerous years, he was very familiar with blood and urine bacteria and whether it is gram-positive or gram-negative and what bacteria is worse and why. I was so fortunate to have him around.
He would check my urine a couple times a week out of curiosity with the over-the-counter urine strips but that only is doing a urinalysis (not a culture). I was not having these different stronger bacteria that I am now. I was having the bacteria Proteus Mirabilis which causes sediment and bladder stones but that was the extent of my UTIs between 2006 and 2012. I had this particular bacteria a couple times that required IV antibiotics and 2004/2005 but everything straightened out after I had bladder stones removed. Then it returned again but this time I did not have a fever so I just had the bladder stones removed. However, the bacteria Proteus Mirabilis came back with a vengeance in 2012 and it comes and goes now because it is sneaky. A urinalysis checks things like your urine pH, proteins, bilirubins, keytones, etc. that are in your urine which is also important and what your body is doing but he is now gone and I do have urine strips here but I did not start having these multi-drug-resistant bacteria until after being hospitalized in a certain hospital last year and having a cystoscopy done 3 times afterward in the same hospital/clinic. They run rampant and hospitals and nursing homes and I am pretty sure that is where I got them. Then, once you get them, it's harder than Hades to get rid of them because they encapsulate themselves inside your bladder wall and become multi-drug-resistant so what you drink or what you eat pretty much has no effect on these bastards. E. coli is the easiest one to treat and is most common in women because of the location of the meatus IF they have a urethral catheter. I was very fortunate the first 20 years after my injury because I only had 5 infections during those first 20 years. I recently read whereby stress can also bring on certain types of bacteria which, at one time, I would have never believed. But ever since having to move back to Arizona and having a nurse hurt me so bad that I had to have surgery and one thing happening right after another after another after another to this very minute has been beyond stressful. And it is things that I have no control over but that cost me $$$. Today it was a ceiling fan that I purchased less than three years ago, yesterday I had one of my seizures, the day before Thanksgiving my one and only keyboard got broken accidentally by someone and they no longer make that type of keyboard or even a computer similar to that one anymore (I have a computer guru helping me look on eBay, Amazon and everywhere), the bills are still coming in from my 3 -week hospital stay, and I could go on and on and on. It would be great if I was made of money or my husband was still alive and I did not have to pay someone around the clock for the first time in my life. I am always grateful for what I do have but what has transpired over the last three years has worn me down. When I do get relief from the severe bladder pain it is wonderful but when is there (like it has been until the urologist's office called in something that did not work on the same bacteria that worked last month and a week or dose) I feel like I am going to die in pain. I inhaled some food with choking on my food a little bit and having a small seizure that it required many quad coughs. Then I either slept hard and I inhaled some saliva but there is still quite a bit of fluid in my lungs gurgling there today. When my caregiver was here (she had to go out shopping today) and I got up the fluid that I could... we did the quad coughs again several times and I thought it got it all out but it is still there. Will try again before bedtime. ~Lori 39 years post On Mon, Nov 26, 2018 at 8:39 PM Gail Overton <[email protected]> wrote: > Find a good infectious disease doctor – most of them are not qualified and > say colonization is just a fact of life and not to worry. Personally, we > haven’t found one so we cut way down on sugar and use D-Mannose supplement > like a teaspoon per day. That seems to keep the bacteria from getting too > bad. > > > > *From:* Danny Espinoza <[email protected]> > *Sent:* Monday, November 26, 2018 7:27 PM > *To:* 'Lori Michaelson' <[email protected]>; 'quad-list' < > [email protected]> > *Subject:* RE: [QUAD-L] Multi-drug-resistant bacteria keep coming back & > I am "colonized" > > > > Yea with MRSA in my bladder and I’ve got a SP catheter ☹ > > -Danny > > > > > > > > *From:* Lori Michaelson <[email protected]> > *Sent:* Monday, November 26, 2018 4:12 PM > *To:* quad-list <[email protected]> > *Subject:* [QUAD-L] Multi-drug-resistant bacteria keep coming back & I am > "colonized" > > > > Has anyone else been diagnosed with colonized with ongoing unrelentless > multi-drug-resistant bacteria? > > > > I thought for sure that after I got my SP catheter (actually was forced to > but it is still a common type catheter for us quads) I would be doing great > and, instead, pretty much every month I have been having pathogenic, > multi-drug-resistant bacteria in my urine let itself known by giving me my > "always indicative" symptoms (severe bladder & flank pain). > > > > I have been I intramuscular injections and, of late, Macrobid. Last month > when I finished my 7 day prescription of Macrobid it helped but then, just > over a week later, my symptoms returned which was a week ago yesterday (on > a Monday). Now I have the same bacteria in there and they want to prescribe > the same antibiotic but only 5 day dosage! > > > > I am thankful it has not gone systemic (give me fever) but the bladder > pain is SO BAD. I now think they really know what to do. Especially this > time because not only do I have the same to multi-drug-resistant bacteria > in there that reappeared so quickly but a third different bacteria that I > have never seen in my lab report before ( *Streptococcus agalactiae).* > > > > *I thought I would be able to make it until February without getting other > infections but I have been getting them pretty routinely since I last saw > my urologist in August. * > > > > *Since they are multi-drug-resistant... I am surprised he has not sent me > to an infectious disease Dr.* > > > > *Total Lori* > > > > > > "Petting, scratching and cuddling a dog could be soothing to the mind and > heart and deep meditation and almost as good for the soul as prayer." ~Dean > Koontz > > > > > > > > PennWell Corporation is located at 1421 S. Sheridan Road, Tulsa OK, 74112 > USA. If you wish to unsubscribe, please forward this message to @ > [email protected] with REMOVE in the subject line. You may > unsubscribe at any time. > > H^[X2uq > -- "Petting, scratching and cuddling a dog could be soothing to the mind and heart and deep meditation and almost as good for the soul as prayer." ~Dean Koontz
