Before my colostomy, lifesaver btw, I ate three fiber gummies a day. Stool was never too hard, bowel program took on average 30-45 min. (Adjust the number based on consistency)
https://www.amazon.com/gp/product/B00RGDNV8C/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1 Aaron Mann On Sun, Nov 8, 2020 at 1:11 PM Carla Aarssen <[email protected]> wrote: > I am a C5 quad 18yrs now and for the last 10 or so have on and off issues > with profuse sweating that lasts from minutes to weeks. Sometimes it is > entire upper body sometimes it is only one side (not always same side) > Sometimes I am cold well sweating sometimes I am hot. No doctor seems to > think it is "worth" looking into but I know it is uncomfortable, > embarrassing and greatly affects my daily living. My bowels move daily but > not always much? My roho cushion is checked regularly. I have no skin > issues. I drink plenty of juice and water...Any thoughts, ideas and/or > suggestions? Thanks in advance. Enjoy your day đ > > Get Outlook for Android <https://aka.ms/ghei36> > > ------------------------------ > *From:* Tod Santee <[email protected]> > *Sent:* Saturday, November 7, 2020 3:23:41 PM > *To:* Robert Vogel <[email protected]>; quad-list <[email protected]> > *Subject:* [QUAD-L] Re: Intro/Hi Again and P.I.E. Bowel Care > > Hi Robert, > Thanks for the very detailed info about this Peristeen / Coloplast > system! I had never heard of it until you and another person here > mentioned it. > I'm glad to hear how well it works for you and especially happy to > hear it from a fellow diver! Given its easy-sounding portability I'll be > looking at this one a bit closer now, too. (Hopefully having more than one > option doesn't complicate things! LOL!!) > > Best wishes, > --Tod > > > On Friday, November 6, 2020, Robert Vogel <[email protected]> wrote: > > Hi Todd, > > From my âsurvey of oneâ first look into âtrans anal irrigationâ as in the > Peristeen system by Coloplast. It is > similar (and different) than the PIE system. It is small (fits into a > shaving kit size bag), light and portable. > It consists of a clear plastic (soft) container that can hold up to 1500cc > of tap water, tubing, a small hand-squeeze > pump, a controller, and the keyâa disposal rectal foley catheter. You fill > up the Peristeen bag with luke warm tap > waterâhowever much works for youâeverybody is different, the average > amount is around 500-600cc of water. > Next insert the rectal foley into your rectumânext there is a simple > plastic âdialâ controller, you turn the dial to > inflate, squeeze the rubber-ball like pump once or twiceâthis inflates the > foley balloon which holds the catheter > into your rectum and prevents any water from coming out. Next you turn the > dial to âwaterâ and start squeezing > the ball to fill up your large intestine with water, which generally goes > about 1/2 way into your large intestine, thatâs > about 2 1/2 feet. Then turn the dial to âdeflateâ remove the rectal foley > and wait. The tap water does two things, it > softens and lubricates stool in your colon, and it acts as a mild > stimulate which causes the colon to contract. > > In my experience the entire process takes about 40 minutes and empties me > out like nothing Iâve tried in 35-years. > CT scans with contrast show that Peristeen empties out 2 1/2 feet of > colonâthe average bowel program and/or > the average non-disabled person having a bowel movement only empties about > 6-8 inches of colon. It empties > me out so much that I only have to go every other day and I havenât had an > accident in the 8-years since Iâve > been using it. > > I find it is great for use at home, even better when travel, especially on > dive trips when I want to be extra cleaned > out. > > Caveat, you need a prescription from your doctor and need to be trained by > a Peristeen trainer, which can be > arranged through Coloplast but takes time. And insurance coverage is > spotty at best. > > Here is the link: > https://products.coloplast.us/coloplast/continence-care/peristeen/peristeen-tai/peristeen-balloon-catheter/peristeen-anal-irrigation-system/ > > I hope this helps. > Bob Vogel > > On Nov 6, 2020, at 3:31 PM, Tod Santee <[email protected]> wrote: > > Hi Everybody! > Some of you might remember me. I'm a moldy, oldie at the Q-List > since the mid-90s maybe, but since I haven't checked in for a long time I > guess I'm a bit of a newbie to many here, too. I'm a male C5-6 Quad, 37 > yrs post injury from a fall from a tree. > So first off... "Hi!" to all my old friends & acquaintances here. > And, looking forward to meeting those who are "new" since I stopped posting > and following closely. > My MAIN reason for writing, tho, is this: For many years... almost > since the beginning of this "new normal" life... my bowel routine would > take 3-4 hrs from suppository (or whatever other kind of bowel stimulant) > to finish with a whole lot of digital stimulation along the way. It's > always been (pardon the pun) a pain in the ass! I'm sure I'm alone on that > last bit!! LOL! > Problem is, lately I've been waiting just as long but now sweating > like crazy throughout the majority of that time. A colonoscopy shows no > irregularities other than some minor exterior hemorrhoids that I've had for > at least 30yrs... i.e. no change there. > So I'm looking for a change in process and I've been encouraged to > look into the P.I.E. system (P.I.E. = something like "Pulsed Irrigated > Evacuation.") that uses a catheter to fill the bowel with water and let it > empty into a container (lather, rinse, repeat until done). I looked it up > online & it has a pretty decent animated video of how it works. BUT, it's > big & I'd guess expensive if insurance doesn't cover it. > I figured I'd turn to the experts here to see if anybody has tried > this, how well it worked --our not-- and how you'd deal with things if/when > traveling. My wife and I enjoy world travel to not-so-accessible locations > for scuba diving trips... at least up until a year ago. > Any ideas or opinions on this P.I.E. system from anybody familiar > with it would be SUPER appreciated!!! > > Thanks All, > --Tod > > >
