Hi All,
Has anyone heard of Evenity for severe osteoporosis? Any input is appreciated! Julie From: SHIRLEY BELL <[email protected]> Sent: Wednesday, December 27, 2023 3:37 PM To: Eric Olson <[email protected]>; Dana <[email protected]> Cc: Noel <[email protected]>; quad-list <[email protected]> Subject: Re: [QUAD-L] BONE DENISITY I gree, I tied some shots, they did help but would have to keep doing and they have side effects. My primary said the same. plus no weight bearing. On 12/27/2023 3:00 PM EST Eric Olson <[email protected] <mailto:[email protected]> > wrote: This is just my opinion, but I think you hit the nail on the head. Without weight bearing, do these drugs do anything? They were not developed to be used for people that are not weight bearing, Just my 2 cents. On Wed, Dec 27, 2023 at 2:35 AM Dana <[email protected] <mailto:[email protected]> > wrote: I wonder why they took me off Fosamax, maybe my bone density had not improved. I don’t know if our bone density can ever improve since we aren’t able to bear weight. What do you think? Dana On Thu, Dec 14, 2023 at 8:35 AM Noel <[email protected] <mailto:[email protected]> > wrote: I was diagnosed with osteoporosis about 10 years ago, high risk of fracture. I've been taking Fosamax ever since. I had another bone density test a couple of months ago, to see if the Fosamax was working. She didn't give me the results of the latest bone density test, just tell me to keep taking the Fosamax. When I was first diagnosed, I started using an RT300 FES bike after reading that it had strengthened bones on many people that have used one (notably Christopher Reeve). Used it for a couple of years, puts a lot of pressure on the bones. But, after a couple of years, I developed severe pain in my knees and had to stop. I've tried everything for the pain in my knees, prescription and nonprescription, nothing seems to help. On Wed, Dec 13, 2023 at 1:54 AM Dana <[email protected] <mailto:[email protected]> > wrote: Yes I have taken for several years. I need to get a DEXA scan before I can get another injection. This is my third type of treatment for osteoporosis. I was injured at 20 and the state would not pay for a standing frame like they suggested at rehab, this caused me to get osteoporosis. I go to a specialist at KU, I have pain in my shoulders and neck and she suggested I use Biofreeze. It was a prescription and now the more effective Brand over the counter. I order from Amazon. Because of the Osteoporosis I have not been able to get surgery on my broken hip broken foot or arm. I did have Foote drop surgery and that’s the one that gave me gangrene, a wound vac 2 months and then A skin graft. I have no meat on the back of my heel and part of the bone is gone, because the doctor left the external fixator on seven days without checking. leaving it on too long broke my foot. After I get my next DEXA, I will tell you my status. I don’t know how well it improves but if you read about it online it says that you need to take it. It gives pretty grim prognosis to Osteoporosis. I want to hear from everybody on the list who has been diagnosed with osteoporosis and what treatment you have been getting and the results of the treatment Gratefully yours, Dana C 4-5, complete,ileo-conduit,trach, 49 years post. I so enjoy the Quad-List. Thank you Jim for Starting this productive group of survivors.I am grateful for this Quad-List. We are a few That contribute but United. On Sun, Dec 10, 2023 at 3:00 PM Paul Jacobson <[email protected] <mailto:[email protected]> > wrote: Has anyone taken PROLIA for better bone density? Can you share your results and thoughts? Thank you! Paul c5/6 San Diego, CA
