Re: [CMLHope] Re: Sudden problem after twenty years.

2018-07-15 Thread 'Jeanie' via CMLHope
Hi
That’s cute
When I first started dating my hubby I was 16. When we went to leave I hugged 
and kissed my mom and dad goodbye. He told me later he had never seen that 
before.  His mom and dad never hugged or kissed him.  It was just the way we 
were. 
Kiss goodbye and kiss hello.  
Same way with my kids. I tell them a hug is better than a pill. 
How are you today?
I’m waiting on my daughter as she will take me to a late lunch. 
I find my appetite not as good as it used to be. How bout you?
I loved Millie’s cooking and recipes.  I sure do miss her. 
She fought hard. 
I remember when she started losing the use of her arms she said she didn’t know 
what she would do if she couldn’t do her sewing and etc. 
though I never met her I felt I knew her all my life. More later——

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 

0 CBL. ABL

> On Jul 13, 2018, at 9:52 AM, Marty Gartenberg  wrote:
> 
> Jeanie, And I love you to, but when you say " Love you so very much" Do you 
> mean like hugging me so much that your going to crush me until my ribs 
> crumble? 
> 
> Ah yet another opportunity to let me say again...
> 
> 18's,
> 
> Marty 
> 
>> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope 
>>  wrote:
>> So true Marty
>> You aren’t even on tki’s and look what you’ve been through. 
>> Thank you for this email. 
>> Love you so very much 
>> Jeanie
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> 
>> 0 CBL. ABL
>> 
>>> On Jul 10, 2018, at 8:53 AM, Marty Gartenberg  wrote:
>>> 
>>> Oh Jeanie,
>>> 
>>> first let me take you back to something I wrote to Richard
>>> 
>>> I have heard a lot of people mentioning that they blame some of the TKI 
>>> that they are taking. Perhaps that may be so, but what if it isn't that at 
>>> all? That is why they need to consult with their doctors because that is 
>>> his or her job. 👉And if they feel that there is someone that can help as 
>>> well then get a second opinion.👈 Don't forget they won't be hurt or 
>>> offended because they are all getting together to help you. 
>>> 
>>> 
>>> And we will now continue on. Please read this. I took the time to write it 
>>> for a reason and I see that you took my 👉advice👈. A lot more... But I want 
>>> to hug your grand-daughter. My father once taught me a lesson and I think 
>>> that you may want to pass this onto her, and yourself as well.
>>> 
>>> When a person/s learns something new everyday then they become smarter. 
>>> When a person/s refuses to learn something every day then they revert back 
>>> to yesterday.
>>> 
>>> Hum, let me think. Oh yea I think that your grand-daughter already 
>>> knows this?
>>> 
>>> 
>>> "Take it Day by day and as my granddaughter says". She said “every little 
>>> thing’s gonna be alright.”
>>> ❤️
>>> Blood transfusions: A sort of long story but learning something new every 
>>> day made me smarter and I am still alive... Jeanie I don't blame you for 
>>> not wanting other peoples blood in you but let me ask you a question? How 
>>> many units of blood did you require? Did it help you? Well i needn't know 
>>> the answer because I already know but nothing that you told me but I know 
>>> and here is why.
>>> 
>>> I had O+ blood and my sister had B+ blood. So my transplant doctor told me 
>>> that since my white blood count was past 186,000 that I need to have the 
>>> bone marrow transplant now. Or I may not survive because I was in Blast 
>>> crises that I was in.
>>> 
>>> But he knew about my blood type wasn't a match for my sister but everything 
>>> was perfect but the matching type. He told me that there may be a way to 
>>> change my blood type but it could also cause my death. I then told him that 
>>> i was dieing anyway so let's try it. 
>>> 
>>> He started it before my transplant. It would require that I would have to 
>>> get many, many blood transfusions as well a a lot of platelets  infusions, 
>>> and Gama globulin and other human blood products. 
>>> 
>>> Who already knew about this? R* Z. Who showed up with 41 
>>> "members" of his "family"
>>> (Yes you know what I mean about this) ready to donate blood. But there was 
>>> a problem. At that time there was a new disease called AIDS and all of the 
>>> blood banks started testing and this slowed down the collection of 
>>> gathering of blood.
>>> 
>>> Not to keep you on the edge of your seat. I once helped save a woman's life 
>>> because she was dying of stage four breast cancer and I did this because I 
>>> knew a doctor who may help her, and it took more then two years

Re: [CMLHope] Rose garden

2018-07-15 Thread 'Jeanie' via CMLHope
Awe!  I didn’t know that. So far so good but those big red ants have taken over 
my yard and I’m sure killed my Japanese plum trees. 
Also my fruit trees are in bad shape. Could be same thing. 
I’m like you just go with it. I try not to plant things that need a lot of 
watering. 
Blessings. 

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 

0 CBL. ABL

> On May 8, 2018, at 10:28 PM, bkbarney via CMLHope  
> wrote:
> 
> Dear Jeanie, 
> 
> Rabbits and squirrels ate my rose bushes down to the earth for the fifth and 
> final straight year..so I just dug up the roots, and am going to plant an 
> alternative flowering bush that they don't eat...I just came home from work 
> and saw two squirrels running up my front tree with the heads of two of my 
> beautiful tulips in their mouths.. around the tree are ten bulb 
> heads...beheadings thanks to the squirrels handy work... sooo frustrating..I 
> surrender to my animal friends...
> 
> Thankfully they do not eat daffodils or hyacinth or hydrangea..
> 
> I have pain every day Jeanie, do my best to ignore it, if I have to I take 
> some meds for it...am working on eating more plant based and anti 
> inflammation diet to see if I feel better...
> Doing O.K.   grateful for the spring time because it always lifts me to 
> distract myself with my gardening...
> 
> lots and lots to do!!!
> 
> much love to all...nice to hear from Susan Z and others who haven't written 
> in awhile...How are GReenie, and Richard and Skip, etc???
> 
> 18's Beth
> 
> 
> 
> 
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Tue, May 8, 2018 2:29 pm
> Subject: [CMLHope] Rose garden
> 
> Rose garden my son planted for Mother’s Day.  I don’t have much luck with 
> them but wish me luck with these. 
> Thanks
> 
> 
> 
> 
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center
> 
> 0 CBL. ABL
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
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Re: [CMLHope] Re: Sudden problem after twenty years.

2018-07-15 Thread Marty Gartenberg
Okay Jeanie,

Since there is a lot to talk about I will do it between your lines.

Hi
That’s cute
When I first started dating my hubby I was 16. When we went to leave I
hugged and kissed my mom and dad goodbye. He told me later he had never
seen that before.

OH I DID, BECAUSE MY PARENTS CAME FROM EUROPE AND IT WAS THEIR CUSTOM THE
WAY THAT THEY WOULD USUALLY DO IT WAS FIRST CAME MY MOM AND SHE WOULD HUG
AND THEN KISS ME. THEN CAME MY DAD. WHAT HE WOULD DO WAS FIRST HUG ME THEN
KISS ME AND THEN HE WOULD GIVE ME WHAT WAS CALLED A KNIPPLE. DO YOU KNOW
WHAT A KINPPLE IS? WELL IT HURT LIKE HE NEVER WANTED ME TO FORGET HIM.

HE WOULD GRASP MY CHECK BETWEEN HIS THUMB AND INDEX FINGERS AND SORT OF
TWIST AND THEN LET GO. I COULDN'T WAIT TILL IT WAS OVER BUT AS I LEARNED
LATER ON IN LIFE HE JUST WANTED ME TO KNOW THAT HE AND MOM WOULD NEVER
FORGET THEM

His mom and dad never hugged or kissed him.  It was just the way we were.
Kiss goodbye and kiss hello.

BY THE WAY THERE IS A HEBREW WORD THAT YOU HAVE PROBABLY HEARD BEFORE,
SHALOM. IT MEANS WHEN YOU ARE APPROACHING SOMEONE, HELLO, WHEN YOU ARE ON
THEIR SIDE IT MEANS PEACE AND WHEN YOU PASS THEM IT MEANS GOODBYE

I THINK THAT HE JUST NEEDED A KNIPPLE.

Same way with my kids. I tell them a hug is better than a pill.
How are you today?

HEY JEANIE, KINPPLES FOR EVERY ONE. 😀

I’m waiting on my daughter as she will take me to a late lunch.
I find my appetite not as good as it used to be. How bout you?

BOTH OF MY PARENTS WERE COOKS AND MY FATHER WAS ALSO A BAKER. WE DIDN'T
HAVE A LOT OF MONEY BUT WE SURE HAD A LOT OF BREAD. WE LEARNED TO MAKE DO.
A WHOLE STORY BEHIND THIS BUT FOR ANOTHER TIME...

I loved Millie’s cooking and recipes.  I sure do miss her.
She fought hard.
I remember when she started losing the use of her arms she said she didn’t
know what she would do if she couldn’t do her sewing and etc.
though I never met her I felt I knew her all my life. More later——

THAT'S WHY I CALLED HER MOMMY LOTTIE.

And she knew what 18's meant.

So 18's,

Marty, and a Knipple to you.




On Sun, Jul 15, 2018 at 12:05 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hi
> That’s cute
> When I first started dating my hubby I was 16. When we went to leave I
> hugged and kissed my mom and dad goodbye. He told me later he had never
> seen that before.  His mom and dad never hugged or kissed him.  It was just
> the way we were.
> Kiss goodbye and kiss hello.
> Same way with my kids. I tell them a hug is better than a pill.
> How are you today?
> I’m waiting on my daughter as she will take me to a late lunch.
> I find my appetite not as good as it used to be. How bout you?
> I loved Millie’s cooking and recipes.  I sure do miss her.
> She fought hard.
> I remember when she started losing the use of her arms she said she didn’t
> know what she would do if she couldn’t do her sewing and etc.
> though I never met her I felt I knew her all my life. More later——
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
>
> 0 CBL. ABL
>
> On Jul 13, 2018, at 9:52 AM, Marty Gartenberg  wrote:
>
> Jeanie, And I love you to, but when you say " Love you so very much" Do
> you mean like hugging me so much that your going to crush me until my ribs
> crumble?
>
> Ah yet another opportunity to let me say again...
>
> 18's,
>
> Marty
>
> On Fri, Jul 13, 2018 at 9:16 AM, 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>> So true Marty
>> You aren’t even on tki’s and look what you’ve been through.
>> Thank you for this email.
>> Love you so very much
>> Jeanie
>>
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired
>>
>> 0 CBL. ABL
>>
>> On Jul 10, 2018, at 8:53 AM, Marty Gartenberg  wrote:
>>
>> Oh Jeanie,
>>
>> first let me take you back to something I wrote to Richard
>>
>> I have heard a lot of people mentioning that they blame some of the TKI
>> that they are taking. Perhaps that may be so, but what if it isn't that at
>> all? That is why they need to consult with their doctors because that is
>> his or her job. 👉And if they feel that there is someone that can help as
>> well then get a second opinion.👈 Don't forget they won't be hurt or
>> offended because they are all getting together to help you.
>>
>>
>> And we will now continue on. Please read this. I took the time to write
>> it for a reason and I see that you took my 👉advice👈. A lot more... But I
>> want to hug your grand-daughter. My father once taught me a lesson and I
>> think that you may want to pass this onto her, and yourself as well.
>>
>> When a p

Re: [CMLHope] Rose garden

2018-07-15 Thread Marty Gartenberg
Red ant pellets Home Depot they sprinkle when you tinkle.

Here we go again...

18's

Marty, now we will live forever!

On Sun, Jul 15, 2018 at 12:34 PM, 'Jeanie' via CMLHope <
cmlhope@googlegroups.com> wrote:

> Awe!  I didn’t know that. So far so good but those big red ants have taken
> over my yard and I’m sure killed my Japanese plum trees.
> Also my fruit trees are in bad shape. Could be same thing.
> I’m like you just go with it. I try not to plant things that need a lot of
> watering.
> Blessings.
>
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
>
> 0 CBL. ABL
>
> On May 8, 2018, at 10:28 PM, bkbarney via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
> Dear Jeanie,
>
> Rabbits and squirrels ate my rose bushes down to the earth for the fifth
> and final straight year..so I just dug up the roots, and am going to plant
> an alternative flowering bush that they don't eat...I just came home from
> work and saw two squirrels running up my front tree with the heads of two
> of my beautiful tulips in their mouths.. around the tree are ten bulb
> heads...beheadings thanks to the squirrels handy work... sooo
> frustrating..I surrender to my animal friends...
>
> Thankfully they do not eat daffodils or hyacinth or hydrangea..
>
> I have pain every day Jeanie, do my best to ignore it, if I have to I take
> some meds for it...am working on eating more plant based and anti
> inflammation diet to see if I feel better...
> Doing O.K.   grateful for the spring time because it always lifts me to
> distract myself with my gardening...
>
> lots and lots to do!!!
>
> much love to all...nice to hear from Susan Z and others who haven't
> written in awhile...How are GReenie, and Richard and Skip, etc???
>
> 18's Beth
>
>
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Tue, May 8, 2018 2:29 pm
> Subject: [CMLHope] Rose garden
>
> Rose garden my son planted for Mother’s Day.  I don’t have much luck with
> them but wish me luck with these.
> Thanks
>
> 
>
>
> My Motto:
> Faith and Pills
> With Love
> 🐠18's
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center
>
> 0 CBL. ABL
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to CMLHope-unsubscribe@
> googlegroups.com
> For more options, visit this group at http://groups.google.com/
> group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
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> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
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