Re: Nerd From Hell is back from the dead!

2004-11-13 Thread Jean-Marc Chaton
Glad to have you back !

-- 
Jean-Marc
___
http://www.mccmedia.com/mailman/listinfo/brin-l


RE: Nerd From Hell is back from the dead!

2004-11-13 Thread Horn, John
 Behalf Of [EMAIL PROTECTED]
 
 So now I am back, feeling better, and a bit more fiendish. 

I'm really, really glad to hear you are doing much better! 

Welcome back!

  - jmh
___
http://www.mccmedia.com/mailman/listinfo/brin-l


Nerd From Hell is back from the dead!

2004-11-10 Thread ChadCooper
Hi ya'll.
You probably did not notice that I dropped out of the list for some time -
about 7 months. If you remember, I last left the list after announcing that
I was diagnosed with Cancer, and was starting treatment. 
Well I am glad to say that THAT'S over with. It was tough, and if anyone has
gone though it, you know what I mean.

So now I am back, feeling better, and a bit more fiendish. 
So for those that are a bit curious about my treatment I will give the gory
details:

1 surgery to remove a lymph node
8 treatments, 3 weeks apart
3 full-body CT scans (equivalent to about 300 x-rays each)
2 bone-marrow biopsies (if you have ever been punched in the kidneys, you
now know what it feels like.)
1 hospital stay 4 days
2 trips to the emergency room to treat complications from the surgery. 

Cytoxin(200mg) A form of Nitrogen Mustard, an alkylating agent designed to
damage DNA, thereby causing cell death to dividing cells. Nitrogen Mustard
was developed in the early 30's as a potential chemical warfare agent - now
used as a chemotherapy agent.

Vincristine (1-2 mg)
Made from Periwinkle, a poisonous plan with the primary component of Vinca
alkaloids. A microtubule inhibitor to sabotage mitosis in process, causing
cell death. Side effects include neuropathy (numbness in the hands and
feet). This also put me in the hospital for 4 days because my small
intestines stopped working for a while.

Prednesdone (100mg). A cortical steroid commonly used as an
anti-inflammatory and at high doses, it destroys B-cells causing
immunosuppression. Can cause withdrawal, as the adrenal glands shut down
with the high doses. 
The first 2 drugs are delivered through an IV and the steroid is in pill
form. It took about 3 hours to get the drugs in. The drugs are prepared in a
vented and shielded chemical lab chamber.

Additionally, I was given a new drug called Aloxi, for nausea ($800 bucks a
dose!) 

Chemotherapy has changed a lot in the last few years. I experienced no
vomiting, and lost little hair. The biggest side effects were low-grade
nausea, fatigue, peripheral neuropathy, and depression. Most all of the side
effects are gone now.

There was also an unexpected side effect - anticipatory nausea. When ever I
think about the chemo, I get nauseas. The other day, a nurse wheeled in a IV
pole into the exam room during my bone marrow biopsy, and the sight of it
made me sick. 
I also get sick when ever I see my nurse that delivered the chemo. I feel
bad about that, but it is uncontrollable. The last few treatments, I started
getting sick before I actually got treatment.


I am now in what is called a complete response state, meaning that I have
responded completely to the treatment and have little if any evidence of
disease. 
However, Indolent Follicular Non-Hodgkin's Lymphoma is currently not
curable, but it can be controlled for years or even decades. The disease
will come back, with a mean time of 14 months to recurrence. 

In April, if all goes well, I will be starting a clinical trial. A double
blind study to measure survivability with a treatment of a customized
vaccine. I say customized, because it is a vaccine for one - me. They took a
lymph node from my groin, froze it, and sent it to a company called Genitope
(www.genitope.com) in California. If I do actually get a vaccine instead of
a placebo, this vaccine will be customized as an agent that will contain the
same protein receptors my cancer cells uniquely express. It will be bound to
a some foreign animal protein. The thought is that my immune system will
generate a immune response to the vaccine, and in the process, will trick my
immune system into thinking the cancer cells are not-self. 

For those in the past who have had this Idiotype Vaccine that got this
response, most are still in remission, possibly for life. Time will tell.
Anyway, I don't expect to die soon, with the average median survival rate
for someone my age is 70% at 10 years. Since the Vaccine is very new, it is
not known how or if it affects survivability. 

Anyway, for the meantime, I will send scouted articles of some of the
bleeding edge cancer research to the group, since I am very much interested
in the subject (for natural reasons).

Anyway... I'm back. God save you all!
Nerd From Hell


___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Nick Arnett
[EMAIL PROTECTED] wrote:
Hi ya'll.
You probably did not notice that I dropped out of the list for some time -
about 7 months. If you remember, I last left the list after announcing that
I was diagnosed with Cancer, and was starting treatment. 
Well I am glad to say that THAT'S over with. It was tough, and if anyone has
gone though it, you know what I mean.
Let me be first to say, WELCOME BACK!
Not just that we missed you around here, but that you're alive and 
healthy enough to participate.

I am now in what is called a complete response state, meaning that I have
responded completely to the treatment and have little if any evidence of
disease. 
Way cool!
However, Indolent Follicular Non-Hodgkin's Lymphoma is currently not
curable, but it can be controlled for years or even decades. The disease
will come back, with a mean time of 14 months to recurrence. 
I hope and pray you go way beyond the mean!
The stats don't sound too bad, which is good to hear.
Nick
___
http://www.mccmedia.com/mailman/listinfo/brin-l


RE: Nerd From Hell is back from the dead!

2004-11-10 Thread Travis Edmunds

From: [EMAIL PROTECTED]
Reply-To: Killer Bs Discussion [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Subject: Nerd From Hell is back from the dead!
Date: Wed, 10 Nov 2004 09:55:06 -0800
Hi ya'll.
You probably did not notice that I dropped out of the list for some time -
about 7 months. If you remember, I last left the list after announcing that
I was diagnosed with Cancer, and was starting treatment.
Well I am glad to say that THAT'S over with. It was tough, and if anyone 
has
gone though it, you know what I mean.

So now I am back, feeling better, and a bit more fiendish.
Welcome back. I'm glad to hear you're doing well.
-Travis
_
Scan and help eliminate destructive viruses from your inbound and outbound 
e-mail and attachments. 
http://join.msn.com/?pgmarket=en-capage=byoa/premxAPID=1994DI=1034SU=http://hotmail.com/encaHL=Market_MSNIS_Taglines 
 Start enjoying all the benefits of MSNĀ® Premium right now and get the 
first two months FREE*.

___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Russell Chapman
[EMAIL PROTECTED] wrote:
So now I am back, feeling better, and a bit more fiendish. 
 

Excellent news! Glad to have you back.
There was also an unexpected side effect - anticipatory nausea. When ever I
think about the chemo, I get nauseas. The other day, a nurse wheeled in a IV
pole into the exam room during my bone marrow biopsy, and the sight of it
made me sick. 
I also get sick when ever I see my nurse that delivered the chemo. I feel
bad about that, but it is uncontrollable. The last few treatments, I started
getting sick before I actually got treatment.

 

My wife suffers from this, but the nurse thing is even wierder - seeing 
the nurse who gave her the first 2 treatments induces vomiting (even 
passing her in the reception rooms) but other nurses don't. (Conversely, 
her chemo really does make her violently ill, and there has been 
complete hair loss).

Good luck with the vaccine!
Cheers
Russell C.
___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Medievalbk
 
In a message dated 11/10/2004 4:03:08 PM US Mountain Standard Time, 
[EMAIL PROTECTED] writes:

Excellent news! Glad to have you back.




I'll comment on being glad for the front and sides.
 
Anyone want to top this?
 
Vilyehm Teighlore
___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread William T Goodall
On 10 Nov 2004, at 11:20 pm, [EMAIL PROTECTED] wrote:
In a message dated 11/10/2004 4:03:08 PM US Mountain Standard Time,
[EMAIL PROTECTED] writes:
Excellent news! Glad to have you back.

I'll comment on being glad for the front and sides.
Anyone want to top this?
I'm not going to say 'bottom'.
--
William T Goodall
Mail : [EMAIL PROTECTED]
Web  : http://www.wtgab.demon.co.uk
Blog : http://radio.weblogs.com/0111221/
It is our belief, however, that serious professional users will run 
out of things they can do with UNIX. - Ken Olsen, President of DEC, 
1984.

___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Erik Reuter
On Thu, Nov 11, 2004 at 12:24:16AM +, William T Goodall wrote:

 On 10 Nov 2004, at 11:20 pm, [EMAIL PROTECTED] wrote:


 I'll comment on being glad for the front and sides.
 
 Anyone want to top this?

 I'm not going to say 'bottom'.

Is it beneath you?


-- 
Erik Reuter   http://www.erikreuter.net/
___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread William T Goodall
On 11 Nov 2004, at 12:29 am, Erik Reuter wrote:
On Thu, Nov 11, 2004 at 12:24:16AM +, William T Goodall wrote:
On 10 Nov 2004, at 11:20 pm, [EMAIL PROTECTED] wrote:

I'll comment on being glad for the front and sides.
Anyone want to top this?
I'm not going to say 'bottom'.
Is it beneath you?
And it may devour...
--
William T Goodall
Mail : [EMAIL PROTECTED]
Web  : http://www.wtgab.demon.co.uk
Blog : http://radio.weblogs.com/0111221/
There is no reason anyone would want a computer in their home.   -- 
Ken Olson, President, Chairman and Founder of Digital Equipment Corp., 
1977

___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Julia Thompson


On Thu, 11 Nov 2004, William T Goodall wrote:

 
 On 10 Nov 2004, at 11:20 pm, [EMAIL PROTECTED] wrote:
 
 
  In a message dated 11/10/2004 4:03:08 PM US Mountain Standard Time,
  [EMAIL PROTECTED] writes:
 
  Excellent news! Glad to have you back.
 
 
 
 
  I'll comment on being glad for the front and sides.
 
  Anyone want to top this?
 
 I'm not going to say 'bottom'.

How strange.

Julia

___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Bryon Daly
On Wed, 10 Nov 2004 09:55:06 -0800, [EMAIL PROTECTED]
[EMAIL PROTECTED] wrote:
 Hi ya'll.
 You probably did not notice that I dropped out of the list for some time -
 about 7 months. If you remember, I last left the list after announcing that
 I was diagnosed with Cancer, and was starting treatment.
 Well I am glad to say that THAT'S over with. It was tough, and if anyone has
 gone though it, you know what I mean.
 
 So now I am back, feeling better, and a bit more fiendish.
 So for those that are a bit curious about my treatment I will give the gory
 details:

Great news!  Welcome back, Chad!

-Bryon
___
http://www.mccmedia.com/mailman/listinfo/brin-l


Re: Nerd From Hell is back from the dead!

2004-11-10 Thread Julia Thompson


On Wed, 10 Nov 2004 [EMAIL PROTECTED] wrote:

 So now I am back, feeling better, and a bit more fiendish. 

I'm glad you're back!  Glad you're in good health, and glad you're on the 
list again.  I missed you.

Julia

___
http://www.mccmedia.com/mailman/listinfo/brin-l