RE: Snarling at the state of medicine
From: Deborah Harrell [mailto:[EMAIL PROTECTED] who strongly advises anyone with medical problems to educate themselves, and not to hesitate to be a seriously squeaky wheel :( With all the various medical problems in my family, the internet is definitely our medical resource friend! We've learned a lot more about fibromyalgia, granulomas, cleft lip and palates, IBS, GERD, LPRD, Laproscopic Nissen Fundoplications, etc, etc, than any doctor ever explained to us! Although I still do feel a little weird saying to my doctor I read on the Internet that... But I still do it! - jmh ___ http://www.mccmedia.com/mailman/listinfo/brin-l
Snarling at the state of medicine
Vent time: I just spent nearly an hour doing research and on-the-phone with a friend who has an adrenal tumor of uncertain significance (most incidentalomas of the adrenal glands turn out to be benign); she's had a number of tests but her care has not been coordinated AT ALL and no one has explained ANYTHING of substance to her. In addition, one test was definitely abnormal, but instead of repeating it to check for accuracy they did a *different* test, telling her it was the 'gold standard.' Well it's NOT!!! It's considered useful in following one particular kind of adrenal secretory tumor, and it might someday become the gold standard, but *right now* the test that came back definitely abnormal (I saw the results) IS the standard-of-care. lip curled Disgraceful! That a patient can have talked with 2 docs, a nurse and a lab tech, and still not have been properly informed about her tests... Debbi who strongly advises anyone with medical problems to educate themselves, and not to hesitate to be a seriously squeaky wheel :( __ Do you Yahoo!? Yahoo! Hotjobs: Enter the Signing Bonus Sweepstakes http://hotjobs.sweepstakes.yahoo.com/signingbonus ___ http://www.mccmedia.com/mailman/listinfo/brin-l
