[CMLHope] Zavie Miller
All our thoughts and prayers are with Zavie Miller and his family. Please do keep us posted as we are deeply concerned for him. VReiter -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Prayers For Zavie Miller
My prayers and wishes for Zavie amp; family.Sanjay KapoorOn Mon, 30 May 2011 07:41:37 +0530 educatorsusan lt;educatorsu...@aol.comgt; wrotegt;Good evening, everyone:gt;gt;This is the letter that was sent out from Tracey to let everyone knowgt;about Zavie. I did not hear anything about a stroke. I do knowgt;that while Zavie was down here in Miami, he was complaining about hisgt;leg and the extreme about of discomfort he was in. He was in goodgt;humor from January through March 2011. I will try to check on thisgt;bit of information. The doctors were able to take out the clot ingt;his leg but he developed another clot in his brain. The letter belowgt;will explain what has been going on.gt;gt;Hugs,gt;Susan Rosenthalgt;Miami, Floridagt;gt;Hi Everyone,gt;gt;Zavie's wife Ida has given me permission to write to the groupgt;explaining thegt;situation he's in.gt;Currently he is in critical but stable condition at the hospitalgt;aftergt;suffering a series of complications which are unrelated to his CML.gt;gt;As some of you know, he's been battling peripheral artery disease ingt;his footgt;and has suffered terrible pain from this for months. His toe becamegt;infected agt;few weeks ago and eventually became bad enough that a hospitalgt;admittance wasgt;required for IV antibiotics.gt;gt;After having an angiogram last week to assess his arteries, hegt;developed agt;clot in his leg which the doctors thankfully managed to eliminate.gt;Sadlygt;though, the balancing act of trying to get his INR at the right levelgt;(not toogt;high, not too low), has been very challenging.gt;gt;Unfortunately, on Sunday night he developed another clot near hisgt;cerebellumgt;which required emergency brain surgery. While the surgery appears togt;have beengt;successful, he's been on a respirator and in an induced coma evergt;since. Allgt;of this has been further complicated by the fact that Zavie has hadgt;congestivegt;heart failure for years.gt;gt;As you can imagine this is an extraordinarily difficult time for Idagt;and theirgt;daughters as the uncertainty of Zavie's recovery is very real. Thegt;doctors havegt;given him a 50/50 chance at this point.gt;gt;If you would like to offer support or encouragement, I will begt;collecting allgt;emails and giving them to his family. You can either post to thegt;group or writegt;to me privately and I will be sure to forward them on.gt;gt;Traceygt;gt;gt;On May 29, 4:12 pm, myvet...@aol.com wrote:gt;gt; I sent a note to him at his web-site for a speedy recovery. We will begt;gt; thinking of.gt;gt;gt;gt; greeniegt;gt;-- gt;[CMLHope]gt;A support group of http://cmlhope.comgt;-gt;gt;You received this message because you are subscribed to the Google Groups CMLHope group.gt;To post to this group, send email to CMLHope@googlegroups.comgt;To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.comgt;For more options, visit this group at http://groups.google.com/group/CMLHopegt; -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Prayers For Zavie Miller
excuse me, this is my second posting of the below words, coz the first one was not appeared till now. and sorry for not coming here for a longtime. i come back when Ted told me this info. My prayers from the bottom of my heart! Looking forward to the speedy recovery! Zavie gave me lots of helps, when i was dxd in December, 2007. He gave me many emails and encourages, and sent me 2 months of Gleevec from Ottawa to Beijing. And now, I've got MMR, and have a baby in this April. I am so grateful to Zavie. with so many prayers, he must be OK! pls keep posted. thanks! Tang On May 30, 12:10 am, Rob r...@rwneill.com wrote: I wanted to pass along from Facebook that Zavie Miller who has been a longtime member of this group had a stroke and had emergency brain surgery and is in Intensive Care. Zavie and his family need your prayers and thoughts at this time. Sandy Miller http://www.facebook.com/profile.php?id=704440411 For those who do not yet know, Zavie had a stroke as a result of a blood clot to the base of his brain. He had surgery to remove the clot and now he is in the ICU in Ottawa recovering from the surgery and the stroke. We have no idea of what the future may hold but for now we are celebrating small victories and are thankful for the love and support shown by family and friends. One breath at a time. Rob http://cmlhope.comhttp://www.facebook.com/pages/CMLHopeCom/294037421385 -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Prayers For Zavie Miller
My prayers from the bottom of my heart! Looking forward to the speedy recovery! Zavie gave me lots of helps, when i was dxd in December, 2007. He gave me many emails and encourages, and sent me 2 months of Gleevec from Ottawa to Beijing. And now, I've got MMR, and have a baby in this April. I am so grateful to Zavie. with so many prayers, he must be OK! pls keep posted. thanks! Tang On May 30, 12:10 am, Rob r...@rwneill.com wrote: I wanted to pass along from Facebook that Zavie Miller who has been a longtime member of this group had a stroke and had emergency brain surgery and is in Intensive Care. Zavie and his family need your prayers and thoughts at this time. Sandy Miller http://www.facebook.com/profile.php?id=704440411 For those who do not yet know, Zavie had a stroke as a result of a blood clot to the base of his brain. He had surgery to remove the clot and now he is in the ICU in Ottawa recovering from the surgery and the stroke. We have no idea of what the future may hold but for now we are celebrating small victories and are thankful for the love and support shown by family and friends. One breath at a time. Rob http://cmlhope.comhttp://www.facebook.com/pages/CMLHopeCom/294037421385 -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Prayer from China to Zavie miller!
excuse me, this is my third posting of the below words, coz the previous one was not appeared till now. sorry for not coming here for a long time. just come back, when Ted told me this info. My prayers from the bottom of my heart! Looking forward to the speedy recovery! Zavie gave me lots of helps, when i was dxd in December, 2007. He gave me many emails and encourages, and sent me 2 months of Gleevec from Ottawa to Beijing. And now, I've got MMR, and have a baby in this April. I am so grateful to Zavie. with so many prayers, he must be OK! with love and hope Tang -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Zavie's list
Sending out Prayers to Mr. Miller. From: Peter Geary pjge...@ihug.co.nz To: cmlhope@googlegroups.com cmlhope@googlegroups.com Sent: Monday, May 30, 2011 3:51 AM Subject: [CMLHope] Zavie's list He's a cool guy zavie taught me lots in 2001 about his cml journey get well soon old friend the list needs tendering Pete G O21 2146 026 On 30/05/2011, at 22:10, cmlhope+nore...@googlegroups.com wrote: Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics * Prayers For Zavie Miller [9 Updates] * Question re; BCR-ABL results [3 Updates] * Digest for cmlhope@googlegroups.com - 3 Messages in 2 Topics [1 Update] * COOK BOOK [1 Update] Topic: Prayers For Zavie Miller Topic: Question re; BCR-ABL results Topic: Digest for cmlhope@googlegroups.com - 3 Messages in 2 Topics Topic: COOK BOOK-- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope-- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Prayers For Zavie Miller
Ooops... there is a moderation. sorry for not knowing that and sending so many times. Dear Susan, I sent you an email privately to your AOL.com mailbox. thanks! Tang On May 30, 11:28 pm, thany007-Bejing thany...@gmail.com wrote: excuse me, this is my second posting of the below words, coz the first one was not appeared till now. and sorry for not coming here for a longtime. i come back when Ted told me this info. My prayers from the bottom of my heart! Looking forward to the speedy recovery! Zavie gave me lots of helps, when i was dxd in December, 2007. He gave me many emails and encourages, and sent me 2 months of Gleevec from Ottawa to Beijing. And now, I've got MMR, and have a baby in this April. I am so grateful to Zavie. with so many prayers, he must be OK! pls keep posted. thanks! Tang On May 30, 12:10 am, Rob r...@rwneill.com wrote: I wanted to pass along from Facebook that Zavie Miller who has been a longtime member of this group had a stroke and had emergency brain surgery and is in Intensive Care. Zavie and his family need your prayers and thoughts at this time. Sandy Miller http://www.facebook.com/profile.php?id=704440411 For those who do not yet know, Zavie had a stroke as a result of a blood clot to the base of his brain. He had surgery to remove the clot and now he is in the ICU in Ottawa recovering from the surgery and the stroke. We have no idea of what the future may hold but for now we are celebrating small victories and are thankful for the love and support shown by family and friends. One breath at a time. Rob http://cmlhope.comhttp://www.facebook.com/pages/CMLHopeCom/294037421385- Hide quoted text - - Show quoted text - -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Zavie's list
Our Prayers are with you , Zavie! Tom Dunham In a message dated 5/30/2011 12:19:14 P.M. Eastern Daylight Time, maggy...@bellsouth.net writes: Sending out Prayers to Mr. Miller. From: Peter Geary pjge...@ihug.co.nz To: cmlhope@googlegroups.com cmlhope@googlegroups.com Sent: Monday, May 30, 2011 3:51 AM Subject: [CMLHope] Zavie's list He's a cool guy zavie taught me lots in 2001 about his cml journey get well soon old friend the list needs tendering Pete G O21 2146 026 On 30/05/2011, at 22:10, _cmlhope+noreply@googlegroups.com_ (mailto:cmlhope+nore...@googlegroups.com) wrote: Today's Topic Summary Group: _http://groups.google.com/group/cmlhope/topics_ (http://groups.google.com/group/cmlhope/topics) * _Prayers For Zavie Miller_ (http://us.mg204.mail.yahoo.com/neo/#group_thread_0) [9 Updates] * _Question re; BCR-ABL results_ (http://us.mg204.mail.yahoo.com/neo/#group_thread_1) [3 Updates] * _Digest for cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 3 Messages in 2 Topics [1 Update] * _COOK BOOK_ (http://us.mg204.mail.yahoo.com/neo/#group_thread_3) [1 Update] Topic: _Prayers For Zavie Miller_ (http://groups.google.com/group/cmlhope/t/bc4f99edb57e0a10) Topic: _Question re; BCR-ABL results_ (http://groups.google.com/group/cmlhope/t/53658c682d0283a8) Topic: _Digest for cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) - 3 Messages in 2 Topics Topic: _COOK BOOK_ (http://groups.google.com/group/cmlhope/t/42c7aeb915eb0246) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to _CMLHope@googlegroups.com_ (mailto:CMLHope@googlegroups.com) To unsubscribe from this group, send email to _CMLHope-unsubscribe@googlegroups.com_ (mailto:cmlhope-unsubscr...@googlegroups.com) For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at _http://groups.google.com/group/CMLHope_ (http://groups.google.com/group/CMLHope) -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Zavie's list
I didn't know Zavie as I was only diagnosed in February, but I shall add him to my prayer chain. Was this stroke CML related or just a fluke? My best to all, Michele On Mon, May 30, 2011 at 11:07 AM, ted...@aol.com wrote: Our Prayers are with you , Zavie! Tom Dunham In a message dated 5/30/2011 12:19:14 P.M. Eastern Daylight Time, maggy...@bellsouth.net writes: Sending out Prayers to Mr. Miller. *From:* Peter Geary pjge...@ihug.co.nz *To:* cmlhope@googlegroups.com cmlhope@googlegroups.com *Sent:* Monday, May 30, 2011 3:51 AM *Subject:* [CMLHope] Zavie's list He's a cool guy zavie taught me lots in 2001 about his cml journey get well soon old friend the list needs tendering Pete G O21 2146 026 On 30/05/2011, at 22:10, cmlhope+nore...@googlegroups.com wrote: Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics http://groups.google.com/group/cmlhope/topics - Prayers For Zavie Millerhttp://us.mg204.mail.yahoo.com/neo/#group_thread_0[9 Updates] - Question re; BCR-ABL resultshttp://us.mg204.mail.yahoo.com/neo/#group_thread_1[3 Updates] - Digest for http://us.mg204.mail.yahoo.com/neo/#group_thread_2 cmlhope@googlegroups.com - 3 Messages in 2 Topics [1 Update] - COOK BOOK http://us.mg204.mail.yahoo.com/neo/#group_thread_3 [1 Update] Topic: Prayers For Zavie Millerhttp://groups.google.com/group/cmlhope/t/bc4f99edb57e0a10 Topic: Question re; BCR-ABL resultshttp://groups.google.com/group/cmlhope/t/53658c682d0283a8 Topic: Digest for http://groups.google.com/group/cmlhope/t/9e96fe5134386080 cmlhope@googlegroups.com - 3 Messages in 2 Topics Topic: COOK BOOKhttp://groups.google.com/group/cmlhope/t/42c7aeb915eb0246 -- [CMLHope] A support group of http://cmlhope.com/http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.comcmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- mich...@learntoballroomdanceonline.com www.LearntoBallroomDanceOnline.com -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Prayers For Zavie Miller
Thank you, Rob.Zavie is a great guy has been great for CML Hope. My prayers are going out right now! Looking Up, Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
[CMLHope] Re: Question re; BCR-ABL results
I am not going to say it is or it isn't because he's becoming resistant to Gleevec. I will tell you that I have been on Gleevec since February 2004 in the first year, my results always fell.until they got to around .001%..after that, they seemed to roller coaster, up a bit down a bit..only a couple of times here and there did they come back negative. One time they jumped to .013% and scared me half to death, but nobody else seem to care.just said that wasn't much and just wait and see. Well, they went back down and stayed that way until the last year, both times they've been negative and I go back the end of June and hoping that this test comes back negative as well. I will probably do my little Praise the Lord dance when I see that. LOL!!! So, do not worry too much over little raises in the test, unless it consistently goes up. Some doctors I've noticed in CML Hope are quick to change over to another drug, but I wouldn't do that unless I knew for absolute positive it was a breakdown in the Gleevec. Keep in touch, Suzieq -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Prayers For Zavie Miller
A few years ago when we visited Ottawa to see the Renoir exhibit at the National Gallery, we arranged to meet Zavie, who also worked as a volunteer at the gallery. What a gem of a man! He took us through the gallery and just shone with love for the art he showed us. We had lunch together, and took photos of one another, and my husband and I agreed that the visit would have been only half as enjoyable without Zavie's bright and cheerful company. Prayers go out to Zavie. He is a remarkable man, and we are deeply saddened to hear of his stroke. Best wishes for his recovery! Angie and Charles Esders What lies behind us and what lies before us are tiny matters compared to what lies within us Angie --- On Sun, 5/29/11, Rob r...@rwneill.com wrote: From: Rob r...@rwneill.com Subject: [CMLHope] Prayers For Zavie Miller To: cmlhope@googlegroups.com Date: Sunday, May 29, 2011, 4:10 PM I wanted to pass along from Facebook that Zavie Miller who has been a longtime member of this group had a stroke and had emergency brain surgery and is in Intensive Care. Zavie and his family need your prayers and thoughts at this time. Sandy Miller For those who do not yet know, Zavie had a stroke as a result of a blood clot to the base of his brain. He had surgery to remove the clot and now he is in the ICU in Ottawa recovering from the surgery and the stroke. We have no idea of what the future may hold but for now we are celebrating small victories and are thankful for the love and support shown by family and friends. One breath at a time. Rob http://cmlhope.com http://www.facebook.com/pages/CMLHopeCom/294037421385 -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 Messages in 2 Topics
My prayers and thoughts are with Zavie and his family for his full recovery. He has been a pillar of strength. May God bless him. Lee Erstein Sent from my iPad On May 29, 2011, at 6:23 AM, cmlhope+nore...@googlegroups.com wrote: Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics Question re; BCR-ABL results [2 Updates] Question re; BCR-ABL results [1 Update] Topic: Question re; BCR-ABL results cjb cjbenne...@hotmail.com May 26 05:20PM -0700 ^ My husband was diagnosed with CML in 2009. His BCR-ABL results were undetectable at the 12 month markc with 400 mg of Gleevec. But, at the 18 month mark his BCR-ABL result was again detectable (.005). He will get retested again in July. Is this a typical experience for CML patients (undetectable then detectable again)? Does it mean that he is becoming resistant to the Gleevec? We would welcome insights from those with more experience with CML. Thank you very much. Ricardo Gadelha ricardodgade...@gmail.com May 28 04:23PM -0300 ^ This is not a big deal. My son was diagnosed in may 2007 and his PCR have never was undetectable , it goes up and down all the time. If it goes up by 100 times the last value, you should talk to your Doc - in your case by PCR 0.5 On Thu, May 26, 2011 at 9:20 PM, cjb cjbenne...@hotmail.com wrote: -- Ricardo Topic: Question re; BCR-ABL results lblaine...@comcast.net May 28 06:31PM ^ I was on Gleevec for 1 1/2 years then my numbers started going up. I was then put on Sprycel 140mg which I was unable to tolerate, so they lowered the dosage to 100mg and it put me back undetectable very quickly. With Gleevec you have to be careful with Tylenol products, and acid reflex medications. I don't remember if my Onc let me go another one or two months after my numbers started going up. I'm pretty sure he switched me almost immediately to Sprycel. Lenda Coleman - Original Message - From: cjb cjbenne...@hotmail.com To: CMLHope cmlhope@googlegroups.com Sent: Thursday, May 26, 2011 7:20:12 PM Subject: [CMLHope] Question re; BCR-ABL results My husband was diagnosed with CML in 2009. His BCR-ABL results were undetectable at the 12 month markc with 400 mg of Gleevec. But, at the 18 month mark his BCR-ABL result was again detectable (.005). He will get retested again in July. Is this a typical experience for CML patients (undetectable then detectable again)? Does it mean that he is becoming resistant to the Gleevec? We would welcome insights from those with more experience with CML. Thank you very much. -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Zavie's list
From what his family has said Zavie has peripheral artery disease and congestive heart problems unrelated to the CML and those apparently were the cause of the stroke. Rob On Mon, May 30, 2011 at 1:12 PM, LearnToBallroomDanceOnline.com ballroom...@gmail.com wrote: I didn't know Zavie as I was only diagnosed in February, but I shall add him to my prayer chain. Was this stroke CML related or just a fluke? My best to all, Michele On Mon, May 30, 2011 at 11:07 AM, ted...@aol.com wrote: Our Prayers are with you , Zavie! Tom Dunham In a message dated 5/30/2011 12:19:14 P.M. Eastern Daylight Time, maggy...@bellsouth.net writes: Sending out Prayers to Mr. Miller. *From:* Peter Geary pjge...@ihug.co.nz *To:* cmlhope@googlegroups.com cmlhope@googlegroups.com *Sent:* Monday, May 30, 2011 3:51 AM *Subject:* [CMLHope] Zavie's list He's a cool guy zavie taught me lots in 2001 about his cml journey get well soon old friend the list needs tendering Pete G O21 2146 026 On 30/05/2011, at 22:10, cmlhope+nore...@googlegroups.com wrote: Today's Topic Summary Group: http://groups.google.com/group/cmlhope/topics http://groups.google.com/group/cmlhope/topics - Prayers For Zavie Millerhttp://us.mg204.mail.yahoo.com/neo/#group_thread_0[9 Updates] - Question re; BCR-ABL resultshttp://us.mg204.mail.yahoo.com/neo/#group_thread_1[3 Updates] - Digest for http://us.mg204.mail.yahoo.com/neo/#group_thread_2 cmlhope@googlegroups.com - 3 Messages in 2 Topics [1 Update] - COOK BOOK http://us.mg204.mail.yahoo.com/neo/#group_thread_3 [1 Update] Topic: Prayers For Zavie Millerhttp://groups.google.com/group/cmlhope/t/bc4f99edb57e0a10 Topic: Question re; BCR-ABL resultshttp://groups.google.com/group/cmlhope/t/53658c682d0283a8 Topic: Digest for http://groups.google.com/group/cmlhope/t/9e96fe5134386080 cmlhope@googlegroups.com - 3 Messages in 2 Topics Topic: COOK BOOKhttp://groups.google.com/group/cmlhope/t/42c7aeb915eb0246 -- [CMLHope] A support group of http://cmlhope.com/http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- mich...@learntoballroomdanceonline.com www.LearntoBallroomDanceOnline.com -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Re: Prayers For Zavie Miller
My thoughts and prayers are with Zavie and his family. Thanks, especially to Zavie's niece, for the updates. I have not had the chance to tell Zavie that I am now qualified to be the newest member of Zavie's Zero Club. Marcie Goodman Baltimore Sent from my iPhone On May 29, 2011, at 10:10 PM, educatorsusan educatorsu...@aol.com wrote: Good evening, everyone: This is the letter that was sent out from Tracey to let everyone know about Zavie. I did not hear anything about a stroke. I do know that while Zavie was down here in Miami, he was complaining about his leg and the extreme about of discomfort he was in. He was in good humor from January through March 2011. I will try to check on this bit of information. The doctors were able to take out the clot in his leg but he developed another clot in his brain. The letter below will explain what has been going on. Hugs, Susan Rosenthal Miami, Florida Hi Everyone, Zavie's wife Ida has given me permission to write to the group explaining the situation he's in. Currently he is in critical but stable condition at the hospital after suffering a series of complications which are unrelated to his CML. As some of you know, he's been battling peripheral artery disease in his foot and has suffered terrible pain from this for months. His toe became infected a few weeks ago and eventually became bad enough that a hospital admittance was required for IV antibiotics. After having an angiogram last week to assess his arteries, he developed a clot in his leg which the doctors thankfully managed to eliminate. Sadly though, the balancing act of trying to get his INR at the right level (not too high, not too low), has been very challenging. Unfortunately, on Sunday night he developed another clot near his cerebellum which required emergency brain surgery. While the surgery appears to have been successful, he's been on a respirator and in an induced coma ever since. All of this has been further complicated by the fact that Zavie has had congestive heart failure for years. As you can imagine this is an extraordinarily difficult time for Ida and their daughters as the uncertainty of Zavie's recovery is very real. The doctors have given him a 50/50 chance at this point. If you would like to offer support or encouragement, I will be collecting all emails and giving them to his family. You can either post to the group or write to me privately and I will be sure to forward them on. Tracey On May 29, 4:12 pm, myvet...@aol.com wrote: I sent a note to him at his web-site for a speedy recovery. We will be thinking of. greenie -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
Re: [CMLHope] Digest for cmlhope@googlegroups.com - 3 Messages in 2 Topics
Many prayers and hugs to Zavie and his family..he is and has been such a gift to so many people newly diagnosed and living with CML...may he and Ida and his family feel all the love from all of us...surrounding them now. Beth -- [CMLHope] A support group of http://cmlhope.com - You received this message because you are subscribed to the Google Groups CMLHope group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
