Re: [CMLHope] anemia

['Jeanie' via CMLHope]

Thanks Susan. I have never had diarrhea but have constipation. Tried everything 
and finally saw Mira lax.   Tried it and it worked perfect. Can you believe 
after trying all those things.  You can buy generic and insurance pays. 
Keep looking up. 


My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

> On Jan 25, 2018, at 1:21 PM, 'Susan Zimmerman' via CMLHope 
>  wrote:
> 
> I am on bosutinib for over 2 years now. There are absolutely no side effects 
> except diarrhea. This can be controlled with medicine. I am happy to be on 
> this drug.
> 
> Susan F. Zimmerman
> "All who humble themselves before the Lord shall be given every blessing, and 
> shall have wonderful peace." Ps.37:11
> 
> 
> 
> On Thursday, January 25, 2018 Jamie Tufariello  wrote:
> 
> 
> 
>> On Friday, December 22, 2017, Ana Burgos  wrote:
>> Hello, 
>> my mum is suffering from very low hemoglobine and very low iron.
>> any of you happen the same?
>> another question is what do you think about bosutinib, after 14 years in 
>> gleevec the doc. is thinking of changing to bosutinib
>> what about side effects comparing it to gleevec?
>> 
>> thanks in advance
>> 
>> 
>> 
>>  .
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[CMLHope] Yahoo!! Yippie!!! I'm 0

['Jeanie' via CMLHope]

I saw my new doctor at Moffitt. Her name is Martine Extermine.  She works also 
with the seniors and I liked her a lot but she had a lot put on her shoulders.  
Had to take over all Dr Balducci's patients.  
II got good news. I asked her what my last BCR ABL tests results were and she 
said 0's. Am I cured?   I don't think they know but they are doing a study for 
those of us doing well on our test. It's cutting patients to half doses you 
have to be checked once a month. What does the group think about it?
Hope everyone is good today. 
Blessings.  V


My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt Cancer Center 

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[CMLHope] Just a quick update.

[Richard H]

The VA decided to  preform their own BCR-ABL test on Jan 17th.  I was ZERO 
Again.  I have not had but 1 shot to control my the Anemia in almost 2 
months.  YEAH for controlling  CML.   While all this was going on my heart 
and pneumonia was happening, and I spent 6 days in the hospital.  So life 
continues on.  I am slower and lost a bunch of energy but I will be 
watching for sunrise to see what we have in store for tomorrow.

18's

Richard H.

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