Re: Google docs

[Brad Snyder]

Check out the below link for a good article from AppleVis on using Google Docs 
with VoiceOver on a Mac.

https://www.applevis.com/blog/taming-beast-google-docs-macos#main-content

- Brad -




On Apr 5, 2022, at 16:59, Lorie McCloud  wrote:

thanks for this. yes it has several tables. I was using just down-arrow to read 
through them.

> On Apr 5, 2022, at 4:03 PM, 'Tim Kilburn' via MacVisionaries 
> mailto:macvisionaries@googlegroups.com>> 
> wrote:
> 
> Hi,
> 
> Is it a table within the Google Doc?   If yes, then do not use VO navigation 
> while in the document.  First you’ll need to make sure that Screen Reader 
> Access is enabled for your Google Docs etc.  Google provides a good set of 
> instructions at the following link:
> 
> https://support.google.com/docs/answer/6282736?co=GENIE.Platform%3DDesktop=en
>  
> 
> 
> HTH.
> 
> Later…
> 
> 
> Tim Kilburn
> Jamf Certified Tech
> Apple Professional Learning Specialist
> Apple Teacher
> (with Swift Playgrounds Recognition)
> Fort McMurray, AB Canada
> 
>> On Apr 5, 2022, at 14:58, Lorie McCloud > > wrote:
>> 
>> I've got this google doc I'm supposed to interact with. it has a callendar 
>> with various dates for events. I can read it but how do I interact with it 
>> in order to sign up for something?
>> 
>> thanks.
>> Lorie
>> 
>> -- 
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>> Visionaries list.
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>> can reach Cara at caraqu...@caraquinn.com 
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>>  
>> .
> 
> 
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Re: Google docs

[Lorie McCloud]

thanks for this. yes it has several tables. I was using just down-arrow to read 
through them.

> On Apr 5, 2022, at 4:03 PM, 'Tim Kilburn' via MacVisionaries 
>  wrote:
> 
> Hi,
> 
> Is it a table within the Google Doc?   If yes, then do not use VO navigation 
> while in the document.  First you’ll need to make sure that Screen Reader 
> Access is enabled for your Google Docs etc.  Google provides a good set of 
> instructions at the following link:
> 
> https://support.google.com/docs/answer/6282736?co=GENIE.Platform%3DDesktop=en
>  
> 
> 
> HTH.
> 
> Later…
> 
> 
> Tim Kilburn
> Jamf Certified Tech
> Apple Professional Learning Specialist
> Apple Teacher
> (with Swift Playgrounds Recognition)
> Fort McMurray, AB Canada
> 
>> On Apr 5, 2022, at 14:58, Lorie McCloud > > wrote:
>> 
>> I've got this google doc I'm supposed to interact with. it has a callendar 
>> with various dates for events. I can read it but how do I interact with it 
>> in order to sign up for something?
>> 
>> thanks.
>> Lorie
>> 
>> -- 
>> The following information is important for all members of the Mac 
>> Visionaries list.
>> 
>> If you have any questions or concerns about the running of this list, or if 
>> you feel that a member's post is inappropriate, please contact the owners or 
>> moderators directly rather than posting on the list itself.
>> 
>> Your Mac Visionaries list moderator is Mark Taylor.  You can reach mark at:  
>> mk...@ucla.edu  and your owner is Cara Quinn - you 
>> can reach Cara at caraqu...@caraquinn.com 
>> 
>> The archives for this list can be searched at:
>> http://www.mail-archive.com/macvisionaries@googlegroups.com/ 
>> 
>> --- 
>> You received this message because you are subscribed to the Google Groups 
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>> https://groups.google.com/d/msgid/macvisionaries/5EF0B626-105A-4245-8E88-FEFD6298B482%40gmail.com.
> 
> 
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> list.
>  
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>  
> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
> mk...@ucla.edu and your owner is Cara Quinn - you can reach Cara at 
> caraqu...@caraquinn.com
>  
> The archives for this list can be searched at:
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> 
> --- 
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>  
> .

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Re: Google docs

['Tim Kilburn' via MacVisionaries]

Hi,

Is it a table within the Google Doc?   If yes, then do not use VO navigation 
while in the document.  First you’ll need to make sure that Screen Reader 
Access is enabled for your Google Docs etc.  Google provides a good set of 
instructions at the following link:

https://support.google.com/docs/answer/6282736?co=GENIE.Platform%3DDesktop=en
 


HTH.

Later…


Tim Kilburn
Jamf Certified Tech
Apple Professional Learning Specialist
Apple Teacher
(with Swift Playgrounds Recognition)
Fort McMurray, AB Canada

> On Apr 5, 2022, at 14:58, Lorie McCloud  wrote:
> 
> I've got this google doc I'm supposed to interact with. it has a callendar 
> with various dates for events. I can read it but how do I interact with it in 
> order to sign up for something?
> 
> thanks.
> Lorie
> 
> -- 
> The following information is important for all members of the Mac Visionaries 
> list.
> 
> If you have any questions or concerns about the running of this list, or if 
> you feel that a member's post is inappropriate, please contact the owners or 
> moderators directly rather than posting on the list itself.
> 
> Your Mac Visionaries list moderator is Mark Taylor.  You can reach mark at:  
> mk...@ucla.edu and your owner is Cara Quinn - you can reach Cara at 
> caraqu...@caraquinn.com
> 
> The archives for this list can be searched at:
> http://www.mail-archive.com/macvisionaries@googlegroups.com/
> --- 
> You received this message because you are subscribed to the Google Groups 
> "MacVisionaries" group.
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caraqu...@caraquinn.com

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Google docs

[Lorie McCloud]

I've got this google doc I'm supposed to interact with. it has a callendar with 
various dates for events. I can read it but how do I interact with it in order 
to sign up for something?

thanks.
Lorie

-- 
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list.

If you have any questions or concerns about the running of this list, or if you 
feel that a member's post is inappropriate, please contact the owners or 
moderators directly rather than posting on the list itself.

Your Mac Visionaries list moderator is Mark Taylor.  You can reach mark at:  
mk...@ucla.edu and your owner is Cara Quinn - you can reach Cara at 
caraqu...@caraquinn.com

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Re: OT: A bit of personal news

['Kristeen Hughes' via MacVisionaries]

Address is: kkh...@icloud.com

Thanks, and I’m glad the risks are minor.

Kristeen


> On Apr 5, 2022, at 12:22 PM, 'Donna Goodin' via MacVisionaries 
>  wrote:
> 
> Hi Christine,
> 
> Thanks so much!  So far only one of the participants had a negative 
> consequence from the procedure, and apparently, it was just temporary.  So, 
> though there is risk, I feel pretty confident that it’s fairly low.
> 
> Send me your private email, and I’ll be happy to keep you updated.  My email 
> is doniado...@me.com .
> Cheers,
> Donna
> 
> 
>> On Apr 5, 2022, at 10:47 AM, 'Kristeen Hughes' via MacVisionaries 
>> mailto:macvisionaries@googlegroups.com>> 
>> wrote:
>> 
>> Wow! I wish you the very, very best and helping science move forward is 
>> awesome, if it doesn’t drastically change your life in a negative way. I 
>> would very much like to know how this is going for you. I don’t have your 
>> direct address, but would like to be informed.
>> 
>> Kristeen
>> 
>> 
>>> On Apr 4, 2022, at 5:41 PM, 'Donna Goodin' via MacVisionaries 
>>> mailto:macvisionaries@googlegroups.com>> 
>>> wrote:
>>> 
>>> Hi all,
>>> 
>>> Warning, this is a little long.  I’ve debated whether or not to share this 
>>> with the list, but I’ve known many of you in this community for a long time 
>>> now, so I thought I would, since it could potentially be of interest to 
>>> others here who have my same visual condition.  If you don’t want to read, 
>>> feel free to hit the delete key. :)
>>> 
>>> Last fall, , National Public Radio did a story about a clinical trial that 
>>> was being conducted using a new gene editing technique called CRISPR to 
>>> treat Liber’s Congenital Amaurosis, which is the condition that caused my 
>>> blindness.  Being an inquisitive sort, I decided to try and find out more.  
>>> My cousin who works in genetics was able to track down the study, and I 
>>> subsequently volunteered to be a participant.
>>> 
>>> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
>>> November, where they had to do a genetic panel to make sure I was a match 
>>> for the specific genetic mutation that they’re studying.  Shortly before 
>>> Christmas, I received the news that I am in fact a match, and that I had 
>>> been accepted for participation in the trial.  There followed a fair amount 
>>> of pre-surgery stuff, such as having a congenital cataract removed in order 
>>> to give the surgeon better access to my retina.  But all that is now done, 
>>> and I leave on Wednesday for Portland.  The procedure will be performed on 
>>> April 12.
>>> 
>>> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety 
>>> of applications that could make many people’s lives better.  My layperson’s 
>>> explanation of it is that they will turn a tiny bot armed with scissors 
>>> loose in my retina.  The bots’ job will be to cut out the malfunctioning 
>>> area of the gene and mend it, so that the gene starts to produce the 
>>> necessary proteins to send visual information to the brain.  Over time, 
>>> this is expected to produce a gradual improvement in my vision.  For a more 
>>> medically based explanation, you can check out this link: 
>>> https://www.nature.com/articles/s41587-020-0493-4 
>>> .
>>> 
>>> I know that we all have different feelings about the “cure.”  As for me 
>>> personally, I have never sought it out.  In fact, many who know me were 
>>> surprised that I volunteered for the trial—to some extent, including 
>>> myself. I do have some vision, and I do use the vision that I have, so I 
>>> wouldn’t say no to any improvement, should that be the outcome.  But my 
>>> primary motivation for volunteering was to help further the science, and 
>>> whatever my personal outcome, I’m excited to be a part of that.  So far, 
>>> none of the participants has had reason to go out and buy a new car, so, my 
>>> expectation is that, while I may see better, the overall picture of my life 
>>> won’t change that much.
>>> 
>>> 
>>> Though I do experience moments when I wonder if I’m certifiably insane for 
>>> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
>>> and excited at the prospect of leaving this legacy for others who have LCA.
>>> 
>>> If you’ve read all this, thanks for reading.  It is not currently my plan 
>>> to send updates to the list, because it is off-topic and will not be of 
>>> interest to everyone.  But if you want to be updated, let me know, and I 
>>> can email you privately.
>>> Cheers,
>>> Donna
>>> 
>>> -- 
>>> The following information is important for all members of the Mac 
>>> Visionaries list.
>>>  
>>> If you have any questions or concerns about the running of this list, or if 
>>> you feel that a member's post is inappropriate, please contact the owners 
>>> or moderators directly rather than posting on the list itself.
>>>  
>>> Your Mac Visionaries list moderator is Mark 

Re: OT: A bit of personal news

['Donna Goodin' via MacVisionaries]

Hi Christine,

Thanks so much!  So far only one of the participants had a negative consequence 
from the procedure, and apparently, it was just temporary.  So, though there is 
risk, I feel pretty confident that it’s fairly low.

Send me your private email, and I’ll be happy to keep you updated.  My email is 
doniado...@me.com .
Cheers,
Donna


> On Apr 5, 2022, at 10:47 AM, 'Kristeen Hughes' via MacVisionaries 
>  wrote:
> 
> Wow! I wish you the very, very best and helping science move forward is 
> awesome, if it doesn’t drastically change your life in a negative way. I 
> would very much like to know how this is going for you. I don’t have your 
> direct address, but would like to be informed.
> 
> Kristeen
> 
> 
>> On Apr 4, 2022, at 5:41 PM, 'Donna Goodin' via MacVisionaries 
>> mailto:macvisionaries@googlegroups.com>> 
>> wrote:
>> 
>> Hi all,
>> 
>> Warning, this is a little long.  I’ve debated whether or not to share this 
>> with the list, but I’ve known many of you in this community for a long time 
>> now, so I thought I would, since it could potentially be of interest to 
>> others here who have my same visual condition.  If you don’t want to read, 
>> feel free to hit the delete key. :)
>> 
>> Last fall, , National Public Radio did a story about a clinical trial that 
>> was being conducted using a new gene editing technique called CRISPR to 
>> treat Liber’s Congenital Amaurosis, which is the condition that caused my 
>> blindness.  Being an inquisitive sort, I decided to try and find out more.  
>> My cousin who works in genetics was able to track down the study, and I 
>> subsequently volunteered to be a participant.
>> 
>> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
>> November, where they had to do a genetic panel to make sure I was a match 
>> for the specific genetic mutation that they’re studying.  Shortly before 
>> Christmas, I received the news that I am in fact a match, and that I had 
>> been accepted for participation in the trial.  There followed a fair amount 
>> of pre-surgery stuff, such as having a congenital cataract removed in order 
>> to give the surgeon better access to my retina.  But all that is now done, 
>> and I leave on Wednesday for Portland.  The procedure will be performed on 
>> April 12.
>> 
>> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety 
>> of applications that could make many people’s lives better.  My layperson’s 
>> explanation of it is that they will turn a tiny bot armed with scissors 
>> loose in my retina.  The bots’ job will be to cut out the malfunctioning 
>> area of the gene and mend it, so that the gene starts to produce the 
>> necessary proteins to send visual information to the brain.  Over time, this 
>> is expected to produce a gradual improvement in my vision.  For a more 
>> medically based explanation, you can check out this link: 
>> https://www.nature.com/articles/s41587-020-0493-4 
>> .
>> 
>> I know that we all have different feelings about the “cure.”  As for me 
>> personally, I have never sought it out.  In fact, many who know me were 
>> surprised that I volunteered for the trial—to some extent, including myself. 
>> I do have some vision, and I do use the vision that I have, so I wouldn’t 
>> say no to any improvement, should that be the outcome.  But my primary 
>> motivation for volunteering was to help further the science, and whatever my 
>> personal outcome, I’m excited to be a part of that.  So far, none of the 
>> participants has had reason to go out and buy a new car, so, my expectation 
>> is that, while I may see better, the overall picture of my life won’t change 
>> that much.
>> 
>> 
>> Though I do experience moments when I wonder if I’m certifiably insane for 
>> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
>> and excited at the prospect of leaving this legacy for others who have LCA.
>> 
>> If you’ve read all this, thanks for reading.  It is not currently my plan to 
>> send updates to the list, because it is off-topic and will not be of 
>> interest to everyone.  But if you want to be updated, let me know, and I can 
>> email you privately.
>> Cheers,
>> Donna
>> 
>> -- 
>> The following information is important for all members of the Mac 
>> Visionaries list.
>>  
>> If you have any questions or concerns about the running of this list, or if 
>> you feel that a member's post is inappropriate, please contact the owners or 
>> moderators directly rather than posting on the list itself.
>>  
>> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
>> mk...@ucla.edu  and your owner is Cara Quinn - you 
>> can reach Cara at caraqu...@caraquinn.com 
>>  
>> The archives for this list can be searched at:
>> http://www.mail-archive.com/macvisionaries@googlegroups.com/ 
>> 

Re: OT: A bit of personal news

['Kristeen Hughes' via MacVisionaries]

Wow! I wish you the very, very best and helping science move forward is 
awesome, if it doesn’t drastically change your life in a negative way. I would 
very much like to know how this is going for you. I don’t have your direct 
address, but would like to be informed.

Kristeen


> On Apr 4, 2022, at 5:41 PM, 'Donna Goodin' via MacVisionaries 
>  wrote:
> 
> Hi all,
> 
> Warning, this is a little long.  I’ve debated whether or not to share this 
> with the list, but I’ve known many of you in this community for a long time 
> now, so I thought I would, since it could potentially be of interest to 
> others here who have my same visual condition.  If you don’t want to read, 
> feel free to hit the delete key. :)
> 
> Last fall, , National Public Radio did a story about a clinical trial that 
> was being conducted using a new gene editing technique called CRISPR to treat 
> Liber’s Congenital Amaurosis, which is the condition that caused my 
> blindness.  Being an inquisitive sort, I decided to try and find out more.  
> My cousin who works in genetics was able to track down the study, and I 
> subsequently volunteered to be a participant.
> 
> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
> November, where they had to do a genetic panel to make sure I was a match for 
> the specific genetic mutation that they’re studying.  Shortly before 
> Christmas, I received the news that I am in fact a match, and that I had been 
> accepted for participation in the trial.  There followed a fair amount of 
> pre-surgery stuff, such as having a congenital cataract removed in order to 
> give the surgeon better access to my retina.  But all that is now done, and I 
> leave on Wednesday for Portland.  The procedure will be performed on April 12.
> 
> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety of 
> applications that could make many people’s lives better.  My layperson’s 
> explanation of it is that they will turn a tiny bot armed with scissors loose 
> in my retina.  The bots’ job will be to cut out the malfunctioning area of 
> the gene and mend it, so that the gene starts to produce the necessary 
> proteins to send visual information to the brain.  Over time, this is 
> expected to produce a gradual improvement in my vision.  For a more medically 
> based explanation, you can check out this link: 
> https://www.nature.com/articles/s41587-020-0493-4 
> .
> 
> I know that we all have different feelings about the “cure.”  As for me 
> personally, I have never sought it out.  In fact, many who know me were 
> surprised that I volunteered for the trial—to some extent, including myself. 
> I do have some vision, and I do use the vision that I have, so I wouldn’t say 
> no to any improvement, should that be the outcome.  But my primary motivation 
> for volunteering was to help further the science, and whatever my personal 
> outcome, I’m excited to be a part of that.  So far, none of the participants 
> has had reason to go out and buy a new car, so, my expectation is that, while 
> I may see better, the overall picture of my life won’t change that much.
> 
> 
> Though I do experience moments when I wonder if I’m certifiably insane for 
> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
> and excited at the prospect of leaving this legacy for others who have LCA.
> 
> If you’ve read all this, thanks for reading.  It is not currently my plan to 
> send updates to the list, because it is off-topic and will not be of interest 
> to everyone.  But if you want to be updated, let me know, and I can email you 
> privately.
> Cheers,
> Donna
> 
> -- 
> The following information is important for all members of the Mac Visionaries 
> list.
>  
> If you have any questions or concerns about the running of this list, or if 
> you feel that a member's post is inappropriate, please contact the owners or 
> moderators directly rather than posting on the list itself.
>  
> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
> mk...@ucla.edu and your owner is Cara Quinn - you can reach Cara at 
> caraqu...@caraquinn.com
>  
> The archives for this list can be searched at:
> http://www.mail-archive.com/macvisionaries@googlegroups.com/ 
> 
> --- 
> You received this message because you are subscribed to the Google Groups 
> "MacVisionaries" group.
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> email to macvisionaries+unsubscr...@googlegroups.com 
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>  
> .

-- 
The following 

Re: OT: A bit of personal news

[tim m]

Very nice and I hope it works out for you.


On 4/4/2022 5:41 PM, 'Donna Goodin' via MacVisionaries wrote:

Hi all,

Warning, this is a little long.  I’ve debated whether or not to share 
this with the list, but I’ve known many of you in this community for a 
long time now, so I thought I would, since it could potentially be of 
interest to others here who have my same visual condition.  If you 
don’t want to read, feel free to hit the delete key. :)


Last fall, , National Public Radio did a story about a clinical trial 
that was being conducted using a new gene editing technique called 
CRISPR to treat Liber’s Congenital Amaurosis, which is the condition 
that caused my blindness. Being an inquisitive sort, I decided to try 
and find out more.  My cousin who works in genetics was able to track 
down the study, and I subsequently volunteered to be a participant.


The whole story is long, but here’s a synopsis.  I went to Portland OR 
in November, where they had to do a genetic panel to make sure I was a 
match for the specific genetic mutation that they’re studying. 
 Shortly before Christmas, I received the news that I am in fact a 
match, and that I had been accepted for participation in the trial. 
 There followed a fair amount of pre-surgery stuff, such as having a 
congenital cataract removed in order to give the surgeon better access 
to my retina.  But all that is now done, and I leave on Wednesday for 
Portland.  The procedure will be performed on April 12.


Crispr is pretty amazing stuff.  It has a lot of promise in a wide 
variety of applications that could make many people’s lives better. 
 My layperson’s explanation of it is that they will turn a tiny bot 
armed with scissors loose in my retina.  The bots’ job will be to cut 
out the malfunctioning area of the gene and mend it, so that the gene 
starts to produce the necessary proteins to send visual information to 
the brain.  Over time, this is expected to produce a gradual 
improvement in my vision.  For a more medically based explanation, you 
can check out this link: 
https://www.nature.com/articles/s41587-020-0493-4.


I know that we all have different feelings about the “cure.”  As for 
me personally, I have never sought it out.  In fact, many who know me 
were surprised that I volunteered for the trial—to some extent, 
including myself. I do have some vision, and I do use the vision that 
I have, so I wouldn’t say no to any improvement, should that be the 
outcome.  But my primary motivation for volunteering was to help 
further the science, and whatever my personal outcome, I’m excited to 
be a part of that.  So far, none of the participants has had reason to 
go out and buy a new car, so, my expectation is that, while I may see 
better, the overall picture of my life won’t change that much.



Though I do experience moments when I wonder if I’m certifiably insane 
for letting someone take a pair of pruning shears to my genes, I’m 
 optimistic and excited at the prospect of leaving this legacy for 
others who have LCA.


If you’ve read all this, thanks for reading.  It is not currently my 
plan to send updates to the list, because it is off-topic and will not 
be of interest to everyone.  But if you want to be updated, let me 
know, and I can email you privately.

Cheers,
Donna
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You 

Re: OT: A bit of personal news

['Donna Goodin' via MacVisionaries]

Hi everyone,

Just a quick note to say thank you to all for the good wishes.
Cheers,
Donna

> On Apr 5, 2022, at 6:45 AM, Anders Holmberg  wrote:
> 
> Hi!
> I can only wish you good luck.
> Its so great that Science has come so far.
> Bless!
> /A
> 
>> 4 apr. 2022 kl. 23:41 skrev 'Donna Goodin' via MacVisionaries 
>> mailto:macvisionaries@googlegroups.com>>:
>> 
>> Hi all,
>> 
>> Warning, this is a little long.  I’ve debated whether or not to share this 
>> with the list, but I’ve known many of you in this community for a long time 
>> now, so I thought I would, since it could potentially be of interest to 
>> others here who have my same visual condition.  If you don’t want to read, 
>> feel free to hit the delete key. :)
>> 
>> Last fall, , National Public Radio did a story about a clinical trial that 
>> was being conducted using a new gene editing technique called CRISPR to 
>> treat Liber’s Congenital Amaurosis, which is the condition that caused my 
>> blindness.  Being an inquisitive sort, I decided to try and find out more.  
>> My cousin who works in genetics was able to track down the study, and I 
>> subsequently volunteered to be a participant.
>> 
>> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
>> November, where they had to do a genetic panel to make sure I was a match 
>> for the specific genetic mutation that they’re studying.  Shortly before 
>> Christmas, I received the news that I am in fact a match, and that I had 
>> been accepted for participation in the trial.  There followed a fair amount 
>> of pre-surgery stuff, such as having a congenital cataract removed in order 
>> to give the surgeon better access to my retina.  But all that is now done, 
>> and I leave on Wednesday for Portland.  The procedure will be performed on 
>> April 12.
>> 
>> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety 
>> of applications that could make many people’s lives better.  My layperson’s 
>> explanation of it is that they will turn a tiny bot armed with scissors 
>> loose in my retina.  The bots’ job will be to cut out the malfunctioning 
>> area of the gene and mend it, so that the gene starts to produce the 
>> necessary proteins to send visual information to the brain.  Over time, this 
>> is expected to produce a gradual improvement in my vision.  For a more 
>> medically based explanation, you can check out this link: 
>> https://www.nature.com/articles/s41587-020-0493-4 
>> .
>> 
>> I know that we all have different feelings about the “cure.”  As for me 
>> personally, I have never sought it out.  In fact, many who know me were 
>> surprised that I volunteered for the trial—to some extent, including myself. 
>> I do have some vision, and I do use the vision that I have, so I wouldn’t 
>> say no to any improvement, should that be the outcome.  But my primary 
>> motivation for volunteering was to help further the science, and whatever my 
>> personal outcome, I’m excited to be a part of that.  So far, none of the 
>> participants has had reason to go out and buy a new car, so, my expectation 
>> is that, while I may see better, the overall picture of my life won’t change 
>> that much.
>> 
>> 
>> Though I do experience moments when I wonder if I’m certifiably insane for 
>> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
>> and excited at the prospect of leaving this legacy for others who have LCA.
>> 
>> If you’ve read all this, thanks for reading.  It is not currently my plan to 
>> send updates to the list, because it is off-topic and will not be of 
>> interest to everyone.  But if you want to be updated, let me know, and I can 
>> email you privately.
>> Cheers,
>> Donna
>> 
>> -- 
>> The following information is important for all members of the Mac 
>> Visionaries list.
>>  
>> If you have any questions or concerns about the running of this list, or if 
>> you feel that a member's post is inappropriate, please contact the owners or 
>> moderators directly rather than posting on the list itself.
>>  
>> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
>> mk...@ucla.edu  and your owner is Cara Quinn - you 
>> can reach Cara at caraqu...@caraquinn.com 
>>  
>> The archives for this list can be searched at:
>> http://www.mail-archive.com/macvisionaries@googlegroups.com/ 
>> 
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "MacVisionaries" group.
>> To unsubscribe from this group and stop receiving emails from it, send an 
>> email to macvisionaries+unsubscr...@googlegroups.com 
>> .
>> To view this discussion on the web visit 
>> https://groups.google.com/d/msgid/macvisionaries/C504A918-43B5-4DE8-901A-0CC413240D20%40me.com
>>  

Re: OT: A bit of personal news

['Donna Goodin' via MacVisionaries]

Hey Alia,

I totally get where you’re coming from.  I would never want to go through a 
surgery where the minute they ripped off the bandages, I had 20/20 vision. I 
can’t even imagine how overstimulating that would be. The reason I’m 
comfortable with this is that the improvement,—if there is any—happens slowly 
over time, so it seems like a much easier adjustment.

Anyway, thanks for the good wishes.
Cheers,
Donna


> On Apr 5, 2022, at 4:53 AM, alia robinson  wrote:
> 
> I personally don’t want to see, but I would never fault those who do or want 
> better vission. I hope it turns out like you want it to, good luck to you.  I 
> don’t think science will be fixing detached retinas anytime soon, so I 
> suppose I’ll never have to grapple with this problem.
> 
>> On Apr 4, 2022, at 5:41 PM, 'Donna Goodin' via MacVisionaries 
>> mailto:macvisionaries@googlegroups.com>> 
>> wrote:
>> 
>> Hi all,
>> 
>> Warning, this is a little long.  I’ve debated whether or not to share this 
>> with the list, but I’ve known many of you in this community for a long time 
>> now, so I thought I would, since it could potentially be of interest to 
>> others here who have my same visual condition.  If you don’t want to read, 
>> feel free to hit the delete key. :)
>> 
>> Last fall, , National Public Radio did a story about a clinical trial that 
>> was being conducted using a new gene editing technique called CRISPR to 
>> treat Liber’s Congenital Amaurosis, which is the condition that caused my 
>> blindness.  Being an inquisitive sort, I decided to try and find out more.  
>> My cousin who works in genetics was able to track down the study, and I 
>> subsequently volunteered to be a participant.
>> 
>> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
>> November, where they had to do a genetic panel to make sure I was a match 
>> for the specific genetic mutation that they’re studying.  Shortly before 
>> Christmas, I received the news that I am in fact a match, and that I had 
>> been accepted for participation in the trial.  There followed a fair amount 
>> of pre-surgery stuff, such as having a congenital cataract removed in order 
>> to give the surgeon better access to my retina.  But all that is now done, 
>> and I leave on Wednesday for Portland.  The procedure will be performed on 
>> April 12.
>> 
>> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety 
>> of applications that could make many people’s lives better.  My layperson’s 
>> explanation of it is that they will turn a tiny bot armed with scissors 
>> loose in my retina.  The bots’ job will be to cut out the malfunctioning 
>> area of the gene and mend it, so that the gene starts to produce the 
>> necessary proteins to send visual information to the brain.  Over time, this 
>> is expected to produce a gradual improvement in my vision.  For a more 
>> medically based explanation, you can check out this link: 
>> https://www.nature.com/articles/s41587-020-0493-4 
>> .
>> 
>> I know that we all have different feelings about the “cure.”  As for me 
>> personally, I have never sought it out.  In fact, many who know me were 
>> surprised that I volunteered for the trial—to some extent, including myself. 
>> I do have some vision, and I do use the vision that I have, so I wouldn’t 
>> say no to any improvement, should that be the outcome.  But my primary 
>> motivation for volunteering was to help further the science, and whatever my 
>> personal outcome, I’m excited to be a part of that.  So far, none of the 
>> participants has had reason to go out and buy a new car, so, my expectation 
>> is that, while I may see better, the overall picture of my life won’t change 
>> that much.
>> 
>> 
>> Though I do experience moments when I wonder if I’m certifiably insane for 
>> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
>> and excited at the prospect of leaving this legacy for others who have LCA.
>> 
>> If you’ve read all this, thanks for reading.  It is not currently my plan to 
>> send updates to the list, because it is off-topic and will not be of 
>> interest to everyone.  But if you want to be updated, let me know, and I can 
>> email you privately.
>> Cheers,
>> Donna
>> 
>> -- 
>> The following information is important for all members of the Mac 
>> Visionaries list.
>>  
>> If you have any questions or concerns about the running of this list, or if 
>> you feel that a member's post is inappropriate, please contact the owners or 
>> moderators directly rather than posting on the list itself.
>>  
>> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
>> mk...@ucla.edu  and your owner is Cara Quinn - you 
>> can reach Cara at caraqu...@caraquinn.com 
>>  
>> The archives for this list can be searched at:
>> 

Re: OT: A bit of personal news

[Anders Holmberg]

Hi!
I can only wish you good luck.
Its so great that Science has come so far.
Bless!
/A

> 4 apr. 2022 kl. 23:41 skrev 'Donna Goodin' via MacVisionaries 
> :
> 
> Hi all,
> 
> Warning, this is a little long.  I’ve debated whether or not to share this 
> with the list, but I’ve known many of you in this community for a long time 
> now, so I thought I would, since it could potentially be of interest to 
> others here who have my same visual condition.  If you don’t want to read, 
> feel free to hit the delete key. :)
> 
> Last fall, , National Public Radio did a story about a clinical trial that 
> was being conducted using a new gene editing technique called CRISPR to treat 
> Liber’s Congenital Amaurosis, which is the condition that caused my 
> blindness.  Being an inquisitive sort, I decided to try and find out more.  
> My cousin who works in genetics was able to track down the study, and I 
> subsequently volunteered to be a participant.
> 
> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
> November, where they had to do a genetic panel to make sure I was a match for 
> the specific genetic mutation that they’re studying.  Shortly before 
> Christmas, I received the news that I am in fact a match, and that I had been 
> accepted for participation in the trial.  There followed a fair amount of 
> pre-surgery stuff, such as having a congenital cataract removed in order to 
> give the surgeon better access to my retina.  But all that is now done, and I 
> leave on Wednesday for Portland.  The procedure will be performed on April 12.
> 
> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety of 
> applications that could make many people’s lives better.  My layperson’s 
> explanation of it is that they will turn a tiny bot armed with scissors loose 
> in my retina.  The bots’ job will be to cut out the malfunctioning area of 
> the gene and mend it, so that the gene starts to produce the necessary 
> proteins to send visual information to the brain.  Over time, this is 
> expected to produce a gradual improvement in my vision.  For a more medically 
> based explanation, you can check out this link: 
> https://www.nature.com/articles/s41587-020-0493-4 
> .
> 
> I know that we all have different feelings about the “cure.”  As for me 
> personally, I have never sought it out.  In fact, many who know me were 
> surprised that I volunteered for the trial—to some extent, including myself. 
> I do have some vision, and I do use the vision that I have, so I wouldn’t say 
> no to any improvement, should that be the outcome.  But my primary motivation 
> for volunteering was to help further the science, and whatever my personal 
> outcome, I’m excited to be a part of that.  So far, none of the participants 
> has had reason to go out and buy a new car, so, my expectation is that, while 
> I may see better, the overall picture of my life won’t change that much.
> 
> 
> Though I do experience moments when I wonder if I’m certifiably insane for 
> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
> and excited at the prospect of leaving this legacy for others who have LCA.
> 
> If you’ve read all this, thanks for reading.  It is not currently my plan to 
> send updates to the list, because it is off-topic and will not be of interest 
> to everyone.  But if you want to be updated, let me know, and I can email you 
> privately.
> Cheers,
> Donna
> 
> -- 
> The following information is important for all members of the Mac Visionaries 
> list.
>  
> If you have any questions or concerns about the running of this list, or if 
> you feel that a member's post is inappropriate, please contact the owners or 
> moderators directly rather than posting on the list itself.
>  
> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
> mk...@ucla.edu and your owner is Cara Quinn - you can reach Cara at 
> caraqu...@caraquinn.com
>  
> The archives for this list can be searched at:
> http://www.mail-archive.com/macvisionaries@googlegroups.com/ 
> 
> --- 
> You received this message because you are subscribed to the Google Groups 
> "MacVisionaries" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to macvisionaries+unsubscr...@googlegroups.com 
> .
> To view this discussion on the web visit 
> https://groups.google.com/d/msgid/macvisionaries/C504A918-43B5-4DE8-901A-0CC413240D20%40me.com
>  
> .

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If you have any questions or concerns about the running of this list, or if you 
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Re: OT: A bit of personal news

[Bill Gallik]

Pardon me, but I’m posting on the list because I do not have Donna’s personal 
e-mail address.  I am very interested in her upcoming procedure and would like 
to be kept up to date.  I’m going to include my more private e-mail address 
(not the gmail account with which I’m subscribed to this list) in hopes that 
Donna will be able to send updates.  And, of course, I wish you the very best 
in this endeavor!

My “more private” e-mail address is:

wfgal...@icloud.com 



* * * * * * * * * * * *
- Bill from Ino, Wisconsin
- "If you're going to be able to look back on something and laugh about it,"
- "you might as well laugh about it now."
- Marie Osmond

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Re: OT: A bit of personal news

[alia robinson]

I personally don’t want to see, but I would never fault those who do or want 
better vission. I hope it turns out like you want it to, good luck to you.  I 
don’t think science will be fixing detached retinas anytime soon, so I suppose 
I’ll never have to grapple with this problem.

> On Apr 4, 2022, at 5:41 PM, 'Donna Goodin' via MacVisionaries 
>  wrote:
> 
> Hi all,
> 
> Warning, this is a little long.  I’ve debated whether or not to share this 
> with the list, but I’ve known many of you in this community for a long time 
> now, so I thought I would, since it could potentially be of interest to 
> others here who have my same visual condition.  If you don’t want to read, 
> feel free to hit the delete key. :)
> 
> Last fall, , National Public Radio did a story about a clinical trial that 
> was being conducted using a new gene editing technique called CRISPR to treat 
> Liber’s Congenital Amaurosis, which is the condition that caused my 
> blindness.  Being an inquisitive sort, I decided to try and find out more.  
> My cousin who works in genetics was able to track down the study, and I 
> subsequently volunteered to be a participant.
> 
> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
> November, where they had to do a genetic panel to make sure I was a match for 
> the specific genetic mutation that they’re studying.  Shortly before 
> Christmas, I received the news that I am in fact a match, and that I had been 
> accepted for participation in the trial.  There followed a fair amount of 
> pre-surgery stuff, such as having a congenital cataract removed in order to 
> give the surgeon better access to my retina.  But all that is now done, and I 
> leave on Wednesday for Portland.  The procedure will be performed on April 12.
> 
> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety of 
> applications that could make many people’s lives better.  My layperson’s 
> explanation of it is that they will turn a tiny bot armed with scissors loose 
> in my retina.  The bots’ job will be to cut out the malfunctioning area of 
> the gene and mend it, so that the gene starts to produce the necessary 
> proteins to send visual information to the brain.  Over time, this is 
> expected to produce a gradual improvement in my vision.  For a more medically 
> based explanation, you can check out this link: 
> https://www.nature.com/articles/s41587-020-0493-4 
> .
> 
> I know that we all have different feelings about the “cure.”  As for me 
> personally, I have never sought it out.  In fact, many who know me were 
> surprised that I volunteered for the trial—to some extent, including myself. 
> I do have some vision, and I do use the vision that I have, so I wouldn’t say 
> no to any improvement, should that be the outcome.  But my primary motivation 
> for volunteering was to help further the science, and whatever my personal 
> outcome, I’m excited to be a part of that.  So far, none of the participants 
> has had reason to go out and buy a new car, so, my expectation is that, while 
> I may see better, the overall picture of my life won’t change that much.
> 
> 
> Though I do experience moments when I wonder if I’m certifiably insane for 
> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
> and excited at the prospect of leaving this legacy for others who have LCA.
> 
> If you’ve read all this, thanks for reading.  It is not currently my plan to 
> send updates to the list, because it is off-topic and will not be of interest 
> to everyone.  But if you want to be updated, let me know, and I can email you 
> privately.
> Cheers,
> Donna
> 
> -- 
> The following information is important for all members of the Mac Visionaries 
> list.
>  
> If you have any questions or concerns about the running of this list, or if 
> you feel that a member's post is inappropriate, please contact the owners or 
> moderators directly rather than posting on the list itself.
>  
> Your Mac Visionaries list moderator is Mark Taylor. You can reach mark at: 
> mk...@ucla.edu and your owner is Cara Quinn - you can reach Cara at 
> caraqu...@caraquinn.com
>  
> The archives for this list can be searched at:
> http://www.mail-archive.com/macvisionaries@googlegroups.com/ 
> 
> --- 
> You received this message because you are subscribed to the Google Groups 
> "MacVisionaries" group.
> To unsubscribe from this group and stop receiving emails from it, send an 
> email to macvisionaries+unsubscr...@googlegroups.com 
> .
> To view this discussion on the web visit 
> https://groups.google.com/d/msgid/macvisionaries/C504A918-43B5-4DE8-901A-0CC413240D20%40me.com
>  
> .

-- 
The following 

Re: OT: A bit of personal news

[Tali Sarnetzky]

Best of luck to you!

On 4/5/22, 'Donna Goodin' via MacVisionaries
 wrote:
> Hi all,
>
> Warning, this is a little long.  I’ve debated whether or not to share this
> with the list, but I’ve known many of you in this community for a long time
> now, so I thought I would, since it could potentially be of interest to
> others here who have my same visual condition.  If you don’t want to read,
> feel free to hit the delete key. :)
>
> Last fall, , National Public Radio did a story about a clinical trial that
> was being conducted using a new gene editing technique called CRISPR to
> treat Liber’s Congenital Amaurosis, which is the condition that caused my
> blindness.  Being an inquisitive sort, I decided to try and find out more.
> My cousin who works in genetics was able to track down the study, and I
> subsequently volunteered to be a participant.
>
> The whole story is long, but here’s a synopsis.  I went to Portland OR in
> November, where they had to do a genetic panel to make sure I was a match
> for the specific genetic mutation that they’re studying.  Shortly before
> Christmas, I received the news that I am in fact a match, and that I had
> been accepted for participation in the trial.  There followed a fair amount
> of pre-surgery stuff, such as having a congenital cataract removed in order
> to give the surgeon better access to my retina.  But all that is now done,
> and I leave on Wednesday for Portland.  The procedure will be performed on
> April 12.
>
> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety
> of applications that could make many people’s lives better.  My layperson’s
> explanation of it is that they will turn a tiny bot armed with scissors
> loose in my retina.  The bots’ job will be to cut out the malfunctioning
> area of the gene and mend it, so that the gene starts to produce the
> necessary proteins to send visual information to the brain.  Over time, this
> is expected to produce a gradual improvement in my vision.  For a more
> medically based explanation, you can check out this link:
> https://www.nature.com/articles/s41587-020-0493-4.
>
> I know that we all have different feelings about the “cure.”  As for me
> personally, I have never sought it out.  In fact, many who know me were
> surprised that I volunteered for the trial—to some extent, including myself.
> I do have some vision, and I do use the vision that I have, so I wouldn’t
> say no to any improvement, should that be the outcome.  But my primary
> motivation for volunteering was to help further the science, and whatever my
> personal outcome, I’m excited to be a part of that.  So far, none of the
> participants has had reason to go out and buy a new car, so, my expectation
> is that, while I may see better, the overall picture of my life won’t change
> that much.
>
>
> Though I do experience moments when I wonder if I’m certifiably insane for
> letting someone take a pair of pruning shears to my genes, I’m  optimistic
> and excited at the prospect of leaving this legacy for others who have LCA.
>
> If you’ve read all this, thanks for reading.  It is not currently my plan to
> send updates to the list, because it is off-topic and will not be of
> interest to everyone.  But if you want to be updated, let me know, and I can
> email you privately.
> Cheers,
> Donna
>
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Re: OT: A bit of personal news

[Julie Rattray]

Well good luck and hope it all turns out the way you want it to 

> On 4 Apr 2022, at 22:41, 'Donna Goodin' via MacVisionaries 
>  wrote:
> 
> Hi all,
> 
> Warning, this is a little long.  I’ve debated whether or not to share this 
> with the list, but I’ve known many of you in this community for a long time 
> now, so I thought I would, since it could potentially be of interest to 
> others here who have my same visual condition.  If you don’t want to read, 
> feel free to hit the delete key. :)
> 
> Last fall, , National Public Radio did a story about a clinical trial that 
> was being conducted using a new gene editing technique called CRISPR to treat 
> Liber’s Congenital Amaurosis, which is the condition that caused my 
> blindness.  Being an inquisitive sort, I decided to try and find out more.  
> My cousin who works in genetics was able to track down the study, and I 
> subsequently volunteered to be a participant.
> 
> The whole story is long, but here’s a synopsis.  I went to Portland OR in 
> November, where they had to do a genetic panel to make sure I was a match for 
> the specific genetic mutation that they’re studying.  Shortly before 
> Christmas, I received the news that I am in fact a match, and that I had been 
> accepted for participation in the trial.  There followed a fair amount of 
> pre-surgery stuff, such as having a congenital cataract removed in order to 
> give the surgeon better access to my retina.  But all that is now done, and I 
> leave on Wednesday for Portland.  The procedure will be performed on April 12.
> 
> Crispr is pretty amazing stuff.  It has a lot of promise in a wide variety of 
> applications that could make many people’s lives better.  My layperson’s 
> explanation of it is that they will turn a tiny bot armed with scissors loose 
> in my retina.  The bots’ job will be to cut out the malfunctioning area of 
> the gene and mend it, so that the gene starts to produce the necessary 
> proteins to send visual information to the brain.  Over time, this is 
> expected to produce a gradual improvement in my vision.  For a more medically 
> based explanation, you can check out this link: 
> https://www.nature.com/articles/s41587-020-0493-4 
> .
> 
> I know that we all have different feelings about the “cure.”  As for me 
> personally, I have never sought it out.  In fact, many who know me were 
> surprised that I volunteered for the trial—to some extent, including myself. 
> I do have some vision, and I do use the vision that I have, so I wouldn’t say 
> no to any improvement, should that be the outcome.  But my primary motivation 
> for volunteering was to help further the science, and whatever my personal 
> outcome, I’m excited to be a part of that.  So far, none of the participants 
> has had reason to go out and buy a new car, so, my expectation is that, while 
> I may see better, the overall picture of my life won’t change that much.
> 
> 
> Though I do experience moments when I wonder if I’m certifiably insane for 
> letting someone take a pair of pruning shears to my genes, I’m  optimistic 
> and excited at the prospect of leaving this legacy for others who have LCA.
> 
> If you’ve read all this, thanks for reading.  It is not currently my plan to 
> send updates to the list, because it is off-topic and will not be of interest 
> to everyone.  But if you want to be updated, let me know, and I can email you 
> privately.
> Cheers,
> Donna
> 
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