date:20050915





i'm always too hot or too cold that's why we put my bed near my window unit 
so that i can adjustthe tempwhen i feel a flash coming on. 


luke


In a message dated 9/14/2005 11:32:45 PM Central Standard Time, 
[EMAIL PROTECTED] writes:

  I've been having a terrible time sleeping. I'm 
  either too hot or too cold.
  I wake-up shivering cold, I even took my temp, it 
  was 95.7.
  But then I pull the covers up high and wake-up 
  with my arms hurting and just baking hot.
  It's always either or.
  I'd think it a fever like thing, but I do not get 
  high temps when I'm super hot. Only low temps when I'm freezing cold. No 
  bladder infections. This happens on and off all through the year.
  When I wake up hot, it's because the pain or 
  discomfort in my arms is what wakes me.
  Anyone else get this pain when they feel too hot 
  at night? I never get this feeling in my arms when I'm over heated in the 
  daytime.
  Greg

Re: [QUAD-L] sleep




I have the same problem with being cold and piling on the blankets. 
And then getting so hot, I feel like I'm going to burn up and my temperature 
actually goes up. My normal temperature is between 9698, my temperature 
actually goes up. The only season I like is summer. It is 
getting too cold for me already and it is only getting down to the 50s. My 
arms hurt a lot because I can't stretch them out straight. When I wake up 
I put weights on my wrists to stretch and that helps relieve the pain. No 
one in the room is ever the same temperature as myself. I take blankets 
and extra sweaters if I go anywhere. It is just a battle most of the year 
with the temperature fluctuations in my body. I also have trouble sleeping 
and have more 31 years. What does everybody take for sleeping. I've 
used Ambien for over 10 years and it isn't very effective at all. Is there 
anything else to take. I also take 2 .25generic Xanax throughout the 
night. I have read that these type of medication may not be covered by the 
new Medicare prescription plan. I would really appreciate any suggestions 
on sleeping medicine that might work better for me.Thank you so much for any 
of your suggestions.Dana (C-4-5, 31 years post, 52, 
KC)

[QUAD-L] sleep





In a message dated 9/15/2005 9:49:56 AM Central Standard Time, TheOmen723 
writes:

  
  In a message dated 9/15/2005 9:42:35 AM Central Standard Time, DAANOO 
  writes:
  What 
does everybody take for sleeping. I've used Ambien for over 10 years 
and it isn't very effective at all. Is there anything else to 
take.
  
  
  When I can't sleep I take lots of late night 
  TV. You don't need a prescription and the only side effect is you become 
  a zombie! Ya, I'm cured!
  
  Luke


---BeginMessage---




In a message dated 9/15/2005 9:42:35 AM Central Standard Time, DAANOO 
writes:
What 
  does everybody take for sleeping. I've used Ambien for over 10 years and 
  it isn't very effective at all. Is there anything else to 
  take.


When I can't sleep I take lots of late night 
TV. You don't need a prescription and the only side effect is you become a 
zombie! Ya, I'm cured!

Luke
---End Message---

Re: [QUAD-L] sleep

2005-09-15 Thread Viamar64





I take Ametryptaline 3 nights a week. I don't recommend to anyone 
but, I'm an insomniac and stay up in my chair every other night. I do lots 
of weight shifts and feel more independent. 11 years and by the grace of 
God, no breakdown!

Greg c41991

www.3-7-12.com 

In a message dated 9/15/2005 10:42:35 A.M. Eastern Standard Time, DAANOO 
writes:

  I have the same problem with being cold and piling on the blankets. 
  And then getting so hot, I feel like I'm going to burn up and my temperature 
  actually goes up. My normal temperature is between 9698, my temperature 
  actually goes up. The only season I like is summer. It is 
  getting too cold for me already and it is only getting down to the 50s. 
  My arms hurt a lot because I can't stretch them out straight. When I 
  wake up I put weights on my wrists to stretch and that helps relieve the 
  pain. No one in the room is ever the same temperature as myself. I 
  take blankets and extra sweaters if I go anywhere. It is just a battle 
  most of the year with the temperature fluctuations in my body. I also 
  have trouble sleeping and have more 31 years. What does everybody take 
  for sleeping. I've used Ambien for over 10 years and it isn't very 
  effective at all. Is there anything else to take. I also take 2 
  .25generic Xanax throughout the night. I have read that these type 
  of medication may not be covered by the new Medicare prescription plan. 
  I would really appreciate any suggestions on sleeping medicine that might work 
  better for me.Thank you so much for any of your suggestions.Dana 
  (C-4-5, 31 years post, 52, KC)

Re: [QUAD-L] sleep

2005-09-15 Thread Martin T Brown





Dorminoc 2mg ... generic of
Dormican the little blue pre-med 
Martin T. Brown
Director

Radical Holdings (Pty) Ltd
T/A Radical Mobility
 
(O)  +27 11 664-6069
(F)  +27 11 955-3743
(C)  082 500 9406

[EMAIL PROTECTED]
www.radicalmobility.com
 
"Engineering Mobility for Accessibility"


[EMAIL PROTECTED] wrote:

  
  
  
  
  In a message dated 9/15/2005 9:49:56 AM Central Standard Time,
TheOmen723 writes:
  

In a message dated 9/15/2005 9:42:35 AM Central Standard Time,
DAANOO writes:
What does everybody take for sleeping. I've used Ambien for
over 10 years and it isn't very effective at all. Is there anything
else to take.


When I can't sleep I take lots
of late night TV. You don't need a prescription and the only side
effect is you become a zombie! Ya, I'm cured!

Luke

  
  
  
  
  

  

Subject:

Re: [QUAD-L] sleep
  
  

From: 
[EMAIL PROTECTED]
  
  

Date: 
Thu, 15 Sep 2005 10:49:56 EDT
  
  

To: 
[EMAIL PROTECTED]
  

  
  

  

To: 
[EMAIL PROTECTED]
  

  
  
  
  
  
  
  In a message dated 9/15/2005 9:42:35 AM Central Standard Time,
DAANOO writes:
  What does everybody take for sleeping. I've used Ambien for
over 10 years and it isn't very effective at all. Is there anything
else to take.
  
  
  When I can't sleep I take lots of
late night TV. You don't need a prescription and the only side effect
is you become a zombie! Ya, I'm cured!
  
  Luke

[QUAD-L] info about spasms





Spinal Cord Injury - InfoSheet 
#16Level - ConsumerDate: December, 2001 

What is Spastic Hypertonia? 
Spastic Hypertonia (SH) is a term that doctors are now using to offer a more 
complete description of spasticity and various conditions of extreme muscle 
tension. Spastic Hypertonia refers to uncontrollable “jerking” movement (muscle 
spasms), stiffening or straightening out of muscles (rigidities), shock-like 
contractions of all or part of a muscle or group of muscles (myoclonus), and 
abnormal tone in the muscles (dystonia). 
Understanding Sensation  Reflex 
When people touch something hot, their first reaction to the sensation of 
heat is to quickly jerk away from the heat. This is an example of a reflex 
reaction to touch or pain. The body reacts to signals that are sent through 
nerves from the area of sensation to the various reflex centers of the body. The 
reflex center in the brain works best at identifying sensations and sending 
signals back through nerves in the spinal cord to tell your body how to react. 
Other reflex centers are located at different levels of the spinal cord, but 
these reflex centers are not as accurate as the brain in identifying sensations 
and telling the body how to react to those sensations. The body reacts best when 
all of the body’s reflex centers are working together to identify sensations and 
tell the body how to react.
After a Spinal Cord Injury 
Spastic Hypertonia does not occur immediately after spinal cord injury. When 
individuals are first injured, their muscles are weak and flexible because their 
body’s reflexes are absent below the level of injury. This condition is known as 
“spinal shock,” which can last for a few weeks or several months. 
Once the spinal shock is over, reflex activity returns. However, the normal 
flow of nerve signals below the level of injury is interrupted. Those signals 
may not reach the reflex center of the brain. If all of the body’s reflex 
centers cannot work together to moderate the body’s response to those signals, 
the reflex centers of the spinal cord attempt to moderate the body’s response. 
Because the spinal cord is not as efficient as the brain, the signals that are 
sent back to the site of the sensation are often over exaggerated. This is an 
over active muscle response and now referred to by doctors as Spastic 
Hypertonia. 
Most individuals with SCI experience Spastic Hypertonia in some form, but 
they do not necessarily experience SH all of the time. Persons with tetraplegia 
and persons with incomplete injuries are more likely than persons with 
paraplegia and persons with complete injuries to experience SH. It is most 
common for individuals with SCI to experience muscle spasms that bend the elbow 
(flexor) or extend the leg (extensor). These spasms usually occur as a result of 
an automatic response to painful sensations. Many individuals who are newly 
injured often mistake their first movements caused by SH as a return in motor 
movement. 
Effects of Spastic Hypertonia 
Many individuals with SCI take advantage of their muscle spasms to help them 
perform activities of everyday living. For example, some individuals learn to 
trigger spasms in their hands and fingers to help pick up light items such as a 
pencil or magazine. Some people may learn to use their spasms to help empty 
their bladder, do pressure reliefs, transfer, dress, and even stand or walk. 
It is normal for individuals who are newly injured to experience changes in 
their muscle tone and central nervous system soon after injury. However, a 
change in your spasms after your initial injury can act as a warning sign that 
there is a problem in areas where you may have no feeling. If you do not 
normally have SH and start to experience muscle spasms or if your spasms get 
worse or even decrease, you should talk to your doctor. Any type of change can 
be a warning sign for problems such as a pressure sore, urinary tract infection, 
ingrown toenail, tight clothing or constipation. You may have a cyst on your 
spinal cord, a tumor, Guillain-Barre syndrome, transverse myelitis or a spinal 
cord stroke. 

Possible Advantages of Spastic Hypertonia 

  Maintain muscle tone and mass. 
  Reduce bone loss and decrease the risk for osteoporosis. 
  Increase metabolic requirements such as promoting blood circulation and 
  improving breathing. 
  Better perform daily self-care routines such as assisting in pressure 
  reliefs to prevent pressure sores and emptying reflex bladder and bowel. 
  Better perform daily functions such as picking up items, transferring or 
  walking with braces. 
  Warn when there is a problem in areas where the body has no feeling. 
Possible Disadvantages of Spastic Hypertonia 

  Limit range of motion. 
  Cause pain due to stress put on joints and muscles. 
  Interfere with daily functions such driving, walking with braces, and 
  other activities. 
  Cause unwanted bladder or bowel release. 
  Interfere with other activities

Re: [QUAD-L] sleep

2005-09-15 Thread Jkrocks



 

I'm almost the same as both of you guys except when I get warm I feel 
anxious and if I overheat too bad I start to have trouble breathing with 
congestion and when I get too cold my arms posture up to my chin up and I can't 
put them back down. Also, I will start to shiver and my teeth will start 
to chatter to where I have to hold my jaw open so I do not chip my teeth. 
I have shivered for up to five hours because of being too cold and even put a 
mouth guard in so I do not chip my teeth.

Jim

Re: [QUAD-L] sleep

2005-09-15 Thread Silas Shelburne




Man I know exactly where your coming from, is there anything we can do to 
improve our COL.? 
Silas

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; quad-list@eskimo.com 
  Sent: Thursday, September 15, 2005 11:06 
  AM
  Subject: Re: [QUAD-L] sleep
   

  I'm almost the same as both of you guys except when I get warm I feel 
  anxious and if I overheat too bad I start to have trouble breathing with 
  congestion and when I get too cold my arms posture up to my chin up and I 
  can't put them back down. Also, I will start to shiver and my teeth will 
  start to chatter to where I have to hold my jaw open so I do not chip my 
  teeth. I have shivered for up to five hours because of being too cold 
  and even put a mouth guard in so I do not chip my teeth.
  
  Jim

Re [QUAD-L] Shivering




I am going to cure all the shivering that goes 
around with this damn spinal cord injury stuff for everyone. I shivered 
regularly for 15 years until I met my wife who bought me one of these Hot Herbal 
Heat Packs. Here is the web site; the best investment you ever 
made:

http://www.reliefmart.com/

Re: [QUAD-L] sleep







Same here! Relaxing the arms is close to impossible! I, too, have shivered for many hours
to warm up under 3 blankets. Therefore it took me hours to get to sleep. I'd cover my
head with 2-3 blankets and the sheet!

I still cover my head at bedtime or if I'm laying flat resting. It's a comfort zone under something.

If I'm too warm .. I can cool off almost instantly. If I'm cold ... it's hell. I spent 35 yrs in the northeast and
my muscles "learned" to be tense. So even though I'm in la-la land in the southwest ... I notice that I
consciously have to will my shoulders and neck to relax.

I hope to never have to live in a cold climate again.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


---Original Message---


From: [EMAIL PROTECTED]
Date: 09/15/05 11:08:50
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com
Subject: Re: [QUAD-L] sleep
 
I'm almost the same as both of you guys except when I get warm I feel anxious and if I overheat too bad I start to have trouble breathing with congestion and when I get too cold my arms posture up to my chin up and I can't put them back down. Also, I will start to shiver and my teeth will start to chatter to where I have to hold my jaw open so I do not chip my teeth. I have shivered for up to five hours because of being too cold and even put a mouth guard in so I do not chip my teeth.

Jim

[QUAD-L] Re: sleep meds







I started taking Amitriptyline (Elavil) in 1994 for pain  spasms. 50mgs at bedtime. It knocked me out then
which I loved. I still take it but it doesn't work like it did then.

I take an overnight over-the-counter sleep aid often now too.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


---Original Message---


From: [EMAIL PROTECTED]
Date: 09/15/05 07:44:04
To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]; [EMAIL PROTECTED]
Subject: Re: [QUAD-L] sleep

I have the same problem with being cold and piling on the blankets. And then getting so hot, I feel like I'm going to burn up and my temperature actually goes up. My normal temperature is between 9698, my temperature actually goes up. The only season I like is summer. It is getting too cold for me already and it is only getting down to the 50s. My arms hurt a lot because I can't stretch them out straight. When I wake up I put weights on my wrists to stretch and that helps relieve the pain. No one in the room is ever the same temperature as myself. I take blankets and extra sweaters if I go anywhere. It is just a battle most of the year with the temperature fluctuations in my body. I also have trouble sleeping and have more 31 years. What does everybody take for sleeping. I've used Ambien for over 10 years and it isn't very effective at all. Is there anything else to take. I also take 2 .25generic Xanax throughout the night. I have read that these type of medication may not be covered by the new Medicare prescription plan. I would really appreciate any suggestions on sleeping medicine that might work better for me.Thank you so much for any of your suggestions.Dana (C-4-5, 31 years post, 52, KC)

[QUAD-L] Re: sleep pain







Greg wrote:
"When I wake up hot, it's because the pain or discomfort in my arms is what wakes me.

Anyone else get this pain when they feel too hot at night? I never get this feeling in my arms when I'm over heated in the daytime.
Greg"

The pain for me is there overnight cold or warm. Torso pain, arm pins  needles. I can even feel
it when I'm half-in and half-out of sleeping. Like it WANTS to keep me awake.

It depends but it IS better for me daytimes and in the HEAT.

When one neurologist looked at my MRIs of my pine ... she commented briefly
of seeing arthritis there. Unsure if she was full of it or not.

I attribute my pain to syringomyelia and stiffness and JUST BEING A QUAD where
pain is arbritrary.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ

Re: [QUAD-L] sleep

2005-09-15 Thread Jeremy Dickinson

I've had a simular situation. 2 days ago, I got shivers and fever 
between 100 and 102. It lasted abt 12 hrs. Any ideas?



Jeremy Dickinson
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
Yahoo: jkdclick
http://www.avantbrowser.com
http://www.mozilla.org/products/thunderbird/


Greg wrote:


I've been having a terrible time sleeping. I'm either too hot or too cold.
I wake-up shivering cold, I even took my temp, it was 95.7.
But then I pull the covers up high and wake-up with my arms hurting 
and just baking hot.

It's always either or.
I'd think it a fever like thing, but I do not get high temps when I'm 
super hot. Only low temps when I'm freezing cold. No bladder 
infections. This happens on and off all through the year.
When I wake up hot, it's because the pain or discomfort in my arms is 
what wakes me.
Anyone else get this pain when they feel too hot at night? I never get 
this feeling in my arms when I'm over heated in the daytime.

Greg

RE: [QUAD-L] Re: sleep pain

2005-09-15 Thread Aaron Mann




I've been living with 
pain so long that I actually feel weird when I have bouts of no 
pain...



From: Lori Michaelson 
[mailto:[EMAIL PROTECTED] Sent: Thursday, September 15, 2005 
3:27 PMTo: QuadSubject: [QUAD-L] Re: sleep  
pain


  
  

  Greg wrote:
  "When I wake up hot, it's because the 
  pain or discomfort in my arms is what wakes me.
  
  Anyone else get this pain when they feel too 
  hot at night? I never get this feeling in my arms when I'm over heated in 
  the daytime.
  Greg"
  
  The pain for me is there overnight cold or 
  warm. Torso pain, arm pins  needles. I can even 
  feel
  it when I'm half-in and half-out of 
  sleeping. Like it WANTS to keep me awake.
  
  It depends but it IS better for me daytimes and 
  in the HEAT.
  
  When one neurologist looked at my MRIs of my pine 
  ... she commented briefly
  of seeing arthritis there. Unsure if she 
  was full of it or not.
  
  I attribute my pain to syringomyelia and 
  stiffness and JUST BEING A QUAD where
  pain is arbritrary.
  
  Lori Michaelson
  C4/5 complete quad, 25 years post
  Tucson, AZ

[QUAD-L] new member-old member

2005-09-15 Thread ROBERT WHO

hi group-robert darden from virginia--  polio quad-use vent-power 
chair---  cheers R

-Original Message-
From: Aaron Mann
Sent: Thu, 15 Sep 2005 13:41:48 -0700
To: Lori Michaelson, Quad
Subject: RE: [QUAD-L] Re: sleep  pain

I've been living with pain so long that I actually feel weird when I
have bouts of no pain...

  _  

From: Lori Michaelson [mailto:[EMAIL PROTECTED] 
Sent: Thursday, September 15, 2005 3:27 PM
To: Quad
Subject: [QUAD-L] Re: sleep  pain

Greg wrote: 
 When I wake up hot, it's because the pain or discomfort in my arms is
what wakes me.
Anyone else get this pain when they feel too hot at night? I never get
this feeling in my arms when I'm over heated in the daytime.
Greg

The pain for me is there overnight cold or warm.  Torso pain, arm pins 
needles.  I can even feel
it when I'm half-in and half-out of sleeping.  Like it WANTS to keep me
awake.

It depends but it IS better for me daytimes and in the HEAT.

When one neurologist looked at my MRIs of my pine ... she commented
briefly
of seeing arthritis there.  Unsure if she was full of it or not.

I attribute my pain to syringomyelia and stiffness and JUST BEING A QUAD
where
pain is arbritrary.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ

[QUAD-L] Disabled Evacuees

2005-09-15 Thread QuadPirate

- Original Message -
From: Marcie Roth
To: [EMAIL PROTECTED]
Sent: Wednesday, September 14, 2005 8:48 AM
Subject: Disabled evacuees languish

http://www.ajc.com/metro/content/metro/0905/14katmetdisabled.html
Disabled evacuees languish
Advocates: Help for special-needs victims lacking
By Patricia Guthrie
The Atlanta Journal-Constitution
09/14/05
Dwayne Russ needs his electric wheelchair. Janelle Lytle needs her constant companion.
Both temporary residents at Roswell Nursing and Rehabilitation Center, they face additional challenges that some local advocates say aren't being met for "special-needs" survivors of Hurricane Katrina.
They need wheelchairs, scooters and walkers that were destroyed or left behind. They need medication and their government disability checks. They need to know how they will ever live independently again.
At the same time, they're still tormented by the recent past. Many people just like them, they say, were left to die.
"It became self-preservation," says Russ, 44, who is paralyzed. He was among the last medically fragile residents rescued from New Orleans' floodwaters. "That's a sad thing. If you got your health and strength, you got out."
In metro Atlanta, 79 evacuees from Louisiana ended up at more than a dozen nursing and long-term care centers, said Edna Jackson with Georgia's Office of Aging. The majority are at the Roswell home because it had 50 beds open.
A few already have been reunited with family or friends, traveling with donated frequent-flier miles.
"The memories are very fresh and painful at this point," administrator Michelle Giesken said of the evacuees now at the Roswell home. "Many just don't understand the gravity of the situation. They've asked our social workers to cancel their doctor's appointment in New Orleans, things like that."
About 10 storm survivors were transferred from Louisiana mental-health care facilities to Georgia's mental health system, said Gwen Skinner, director of the Georgia Division for Mental Health, Developmental Disabilities and Addictive Diseases.
Hundreds more physically and mentally disabled and elderly evacuees who require supportive care are probably in Georgia, advocates and state officials say.
But there's little, if any, coordination of government services, or transportation, for them, said Mark Johnson, director of advocacy at the Shepherd Center, a specialty hospital and rehabilitation center in Midtown. He said the state needs to form an outreach team for disabled evacuees.
"Wouldn't it make sense for some disability specialist to go to nursing homes instead of expecting people in wheelchairs who don't even know what city they're in, who don't know how to get accessible transportation, to find the Red Cross and other assistance?" Johnson said. "Haven't they been through enough?"
Many evacuees are dependent on Social Security disability checks and Medicaid, the government health plan for the poor and disabled. Some of the disabled who are veterans are getting help at the Atlanta VA Medical Center.
Georgia's Department of Human Resources says numerous agencies are signing up evacuees for help at the one-stop "super service centers" for hurricane relief.
"Every social service agency is busy right now," Skinner said. The state also provides mental-health counselors to all shelters, she said.
However, Skinner added: "There is no single agency that is categorized or classified, that is serving people with special needs."
Regaining independence for the disabled and elderly who preferred, and were proud, to live alone is another challenge facing Atlanta and other cities who've accepted evacuees.
Russ had lived independently in a specially outfitted apartment and maneuvered around in an electric wheelchair. This week, he plans to join family members from New Orleans who are staying with relatives in Houston.
"If I have to learn my way around, I'll be disconnected from the support I'm used to getting. I'm concerned about that," Russ said.
He also worried about whether he would be eligible for Red Cross and Federal Emergency Management Agency emergency benefits if he leaves Georgia. He didn't know who to ask.
In the end, help came from Johnson, who drove Russ around in a wheelchair-accessible van to buy clothes and other items at Wal-Mart. He also connected Russ with an independent-living organization in Houston.
"Dwayne is just one person but he demonstrates there's lots of people out there in his same predicament who are not getting the help they need," Johnson said.
Lytle, 53, got tired of waiting for "official" help to arrive at the Roswell nursing home. She took matters into her own hands.
But it cost $80 in roundtrip taxi fare to get to the nearest Social Security Administration office last week. Suffering from the pain of bone cancer, Lytle waited in line in a wheelchair for eight hours, finally receiving her check.
The next day, Social Security showed up at the nursing home to deliver checks to remaining evacuees.

Re: [QUAD-L] new member-old member

2005-09-15 Thread QuadPirate







Hey Robert,
Welcome aboard or Welcome back I guess!

I'mMark a C5/6 quadfrom diving it's nice to meet you.

Mark

---Original Message---


From: ROBERT WHO
Date: 09/15/05 16:25:24
To: Aaron Mann; Lori Michaelson; Quad
Subject: [QUAD-L] new member-old member

hi group-robert darden from virginia--polio quad-use vent-power chair---cheers R

-Original Message-
From: Aaron Mann
Sent: Thu, 15 Sep 2005 13:41:48 -0700
To: Lori Michaelson, Quad
Subject: RE: [QUAD-L] Re: sleep  pain

I've been living with pain so long that I actually feel weird when I
have bouts of no pain...


_

From: Lori Michaelson [mailto:[EMAIL PROTECTED]]
Sent: Thursday, September 15, 2005 3:27 PM
To: Quad
Subject: [QUAD-L] Re: sleep  pain


Greg wrote:
 "When I wake up hot, it's because the pain or discomfort in my arms is
what wakes me.
Anyone else get this pain when they feel too hot at night? I never get
this feeling in my arms when I'm over heated in the daytime.
Greg"

The pain for me is there overnight cold or warm.Torso pain, arm pins 
needles.I can even feel
it when I'm half-in and half-out of sleeping.Like it WANTS to keep me
awake.

It depends but it IS better for me daytimes and in the HEAT.

When one neurologist looked at my MRIs of my pine ... she commented
briefly
of seeing arthritis there.Unsure if she was full of it or not.

I attribute my pain to syringomyelia and stiffness and JUST BEING A QUAD
where
pain is arbritrary.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


.

[QUAD-L] Lori, and others with indwelling type caths.

2005-09-15 Thread Quietstream25322




 Lori, I know you had quite a problem with a 
PROTEUS infection. I had a very serious PSEUDAMONAS infection that put in into 
the hospital for 1 week on IV drugs about a year and a half back, that my 
Urologist said he knew about but wanted to let it go, to see if I could get 
better on my own.Well it really messed me up and destroyed much of my white 
blood cells back then. NOW this Urologist say's I must go to my family Doc for 
all bladder infections. Well my family Doctor just told me I got Pseudamoas 
AGAIN Today ! He wants to try and treat it with ORAL anti-biotics -- 
Levequin. Do any of you know if the more serious types of bacteria can be 
treated like that or do they require IV Drugs ?? I'm Lost and confused on 
this...as my Doctors seem unsure themselves. I just gave blood today to see if 
my blood cells are messed up again 
Thanks, Dan

Re: [QUAD-L] sleep

Hi Dana,

When a person disconnects their body's thermostat, the body doesn't automatically cool or warn-up anymore, so we have to control our body temps manually. Myaverage body temp is 96-97 but I do generate heat. At night my body cools down when I'm asleep so I cover it up. I use a mediumblanket with a lighter 'airplane blanket' across my shoulders. I use a 6" fan to move the air above my head when I sleep. I can turn the fan off or on while lying down, and the 'airplane blanket'is easy to push off, so I'm ready for whatever my body decides to do at night. Medication plays a big part in how your body feels. I take a 5mg Diazepam before I go to bed, and I do my workouts when I wake-up in the morning. I am a vivid dreamerand I am able to slip in and out of sleep without disrupting my rest.

With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA [EMAIL PROTECTED] wrote:

I have the same problem with being cold and piling on the blankets. And then getting so hot, I feel like I'm going to burn up and my temperature actually goes up. My normal temperature is between 9698, my temperature actually goes up. The only season I like is summer. It is getting too cold for me already and it is only getting down to the 50s. My arms hurt a lot because I can't stretch them out straight. When I wake up I put weights on my wrists to stretch and that helps relieve the pain. No one in the room is ever the same temperature as myself. I take blankets and extra sweaters if I go anywhere. It is just a battle most of the year with the temperature fluctuations in my body. I also have trouble sleeping and have more 31 years. What does everybody take for sleeping. I've used Ambien for over 10 years and it isn't very effective at all. Is there anything else to take. I also ta!
ke 2
.25generic Xanax throughout the night. I have read that these type of medication may not be covered by the new Medicare prescription plan. I would really appreciate any suggestions on sleeping medicine that might work better for me.Thank you so much for any of your suggestions.Dana (C-4-5, 31 years post, 52, KC)

Re: [QUAD-L] new member-old member





Hi Robert,

Glad to have you aboard our group. I know you will have a lot to 
add.Dana (C4-5, 31 years post, 52, KC)
 In a message dated 9/15/2005 4:42:09 P.M. Central Daylight Time, 
[EMAIL PROTECTED] writes:
 

  
  


  
Hey Robert,
Welcome aboard or Welcome back I guess!

I'mMark a C5/6 quadfrom diving it's nice to meet 
you.

Mark

---Original 
Message---


From: ROBERT 
WHO
Date: 09/15/05 
16:25:24
To: Aaron 
Mann; Lori Michaelson; Quad
Subject: [QUAD-L] new 
member-old member

hi group-robert darden from virginia--polio 
quad-use vent-power 
chair---cheers 
R

-Original Message-
From: Aaron Mann
Sent: Thu, 15 Sep 2005 13:41:48 -0700
To: Lori Michaelson, Quad
Subject: RE: [QUAD-L] Re: sleep  pain

I've been living with pain so long that I actually feel weird when 
I
have bouts of no pain...


_

From: Lori Michaelson [mailto:[EMAIL PROTECTED]]
Sent: Thursday, September 15, 2005 3:27 PM
To: Quad
Subject: [QUAD-L] Re: sleep  pain


Greg wrote:
 "When I wake up hot, it's because the pain or discomfort in 
my arms is
what wakes me.
Anyone else get this pain when they feel too hot at night? I never 
get
this feeling in my arms when I'm over heated in the daytime.
Greg"

The pain for me is there overnight cold or warm.Torso 
pain, arm pins 
needles.I can even feel
it when I'm half-in and half-out of sleeping.Like it 
WANTS to keep me
awake.

It depends but it IS better for me daytimes and in the HEAT.

When one neurologist looked at my MRIs of my pine ... she 
commented
briefly
of seeing arthritis there.Unsure if she was full of it 
or not.

I attribute my pain to syringomyelia and stiffness and JUST BEING A 
QUAD
where
pain is arbritrary.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


.

[QUAD-L] Disabled Evacuees

2005-09-15 Thread wheelchair

Thanks Mark,
This might be another excellent reason to put your name on your chair, should
you become seperated from it for a short or longer period.
W

In a message dated 9/15/05 4:33:47 PM, [EMAIL PROTECTED] writes:

 They need wheelchairs, scooters and walkers that were destroyed or left

behind. They need medication and their government disability checks. They

need to know how they will ever live independently again.

Re: [QUAD-L] Lori, and others with indwelling type caths.





Hi Dan,

I don't know that leviquen will work with Pseudomonas as it did not with 
me. I was on 2 IV' s four over one month and another month of one of the 
same medications in my nebulizer at home that the visiting nurses taught my aid 
to do. It was a long ordeal. I was sick four over two months before 
they diagnosed. The whole time being suctioned a lot. I finally went 
to a lung Doctor to get diagnosed. I went to ER twice for diagnosis.. I 
found that you must get a tracheal culture anytime to be diagnosed, now I always 
do.. I guess you are talking about urinary Pseudomonas, and mine was lung, it 
seems like they would be similar in treatment although I don't know.

. Dana (C-4-5, 31 years post, 52, KC)

 belong of In a message dated 9/15/2005 4:42:57 P.M. Central 
Daylight Time, [EMAIL PROTECTED] writes:
 

  
   Lori, I know you had quite a problem with a 
  PROTEUS infection. I had a very serious PSEUDAMONAS infection that put in into 
  the hospital for 1 week on IV drugs about a year and a half back, that my 
  Urologist said he knew about but wanted to let it go, to see if I could get 
  better on my own.Well it really messed me up and destroyed much of my 
  white blood cells back then. NOW this Urologist say's I must go to my family 
  Doc for all bladder infections. Well my family Doctor just told me I got 
  Pseudamoas AGAIN Today ! He wants to try and treat it with ORAL anti-biotics 
  -- Levequin. Do any of you know if the more serious types of bacteria 
  can be treated like that or do they require IV Drugs ?? I'm Lost and confused 
  on this...as my Doctors seem unsure themselves. I just gave blood today to see 
  if my blood cells are messed up again 
  Thanks, 
Dan

.

[QUAD-L] Shivers







Hi Jeremy.

I know when I'm cold verses the shiver/anxiety feeling I get with a fever indicating a UTI.

My anxiety began today after finishing a bout of antibiodics weeks ago. I hate this! My temp
was 98.6 and 99.2 but it's "my sign."

I took Advil. Feeling better but unsure of the problem. I can't find a caring Dr and now have a trip planned.
Grrr

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ

---Original Message---


From: Jeremy Dickinson
Date: 09/15/05 13:37:18
To: Greg
Cc: quad-list@eskimo.com
Subject: Re: [QUAD-L] sleep

I've had a simular situation. 2 days ago, I got shivers and fever
between 100 and 102. It lasted abt 12 hrs. Any ideas?


Jeremy Dickinson
[EMAIL PROTECTED] mailto:[EMAIL PROTECTED]
Yahoo: jkdclick
http://www.avantbrowser.com
http://www.mozilla.org/products/thunderbird/

[QUAD-L] pseudomonas infection ( some info about)

2005-09-15 Thread Aleo0813

Some info on pseudomonas infection, I highlighted in blue about the treatment. Hope it helps.
Penny

Pseudomonas infectionsDefinition
A pseudomonas infection is caused by a bacterium, Pseudomonas aeruginosa, and may affect any part of the body. In most cases, however, pseudomonas infections strike only persons who are very ill, usually hospitalized.Description
P. aeruginosa is a rod-shaped organism that can be found in soil, water, plants, and animals. Because it rarely causes disease in healthy persons, but infects those who are already sick or who have weakened immune systems, it is called an opportunistic pathogen. Opportunistic pathogens are organisms that do not ordinarily cause disease, but multiply freely in persons whose immune systems are weakened by illness or medication. Such persons are said to be immunocompromised. Patients with AIDS have an increased risk of developing serious pseudomonas infections. Hospitalized patients are another high- risk group, because P. aeruginosa is often found in hospitals. Infections that can be acquired in the hospital are sometimes called nosocomial diseases.
Of the 2 million nosocomial infections each year, 10% are caused by P. aeruginosa. The bacterium is the second most common cause of nosocomial pneumonia and the most common cause of intensive care unit (ICU) pneumonia. Pseudomonas infections can be spread within hospitals by health care workers, medical equipment, sinks, disinfectant solutions, and food. These infections are a very serious problem in hospitals for two reasons. First, patients who are critically ill can die from a pseudomonas infection. Second, many Pseudomonas bacteria are resistant to certain antibiotics, which makes them difficult to treat.
P. aeruginosa is able to infect many different parts of the body. Several factors make it a strong opponent. These factors include:

The ability to stick to cells
Minimal food requirements
Resistance to many antibiotics
Production of proteins that damage tissue
A protective outer coat.

Infections that can occur in specific body sites include:

Heart and blood. P. aeruginosa is the fourth most common cause of bacterial infections of the blood (bacteremia). Bacteremia is common in patients with blood cancer and patients who have pseudomonas infections elsewhere in the body. P. aeruginosa infects the heart valves of intravenous drug abusers and persons with artificial heart valves.
Bones and joints. Pseudomonas infections in these parts of the body can result from injury, the spread of infection from other body tissues, or bacteremia. Persons at risk for pseudomonas infections of the bones and joints include diabetics, intravenous drug abusers, and bone surgery patients.
Central nervous system. P. aeruginosa can cause inflammation of the tissues covering the brain and spinal cord (meningitis) and brain abscesses. These infections may result from brain injury or surgery, the spread of infection from other parts of the body, or bacteremia.
Eye and ear. P. aeruginosa can cause infections in the external ear canal--so-called "swimmer's ear"-- that usually disappear without treatment. The bacterium can cause a more serious ear infection in elderly patients, possibly leading to hearing problems, facial paralysis, or even death. Pseudomonas infections of the eye usually follow an injury. They can cause ulcers of the cornea that may cause rapid tissue destruction and eventual blindness. The risk factors for pseudomonas eye infections include: wearing soft extended-wear contact lenses; using topical corticosteroid eye medications; being in a coma; having extensive burns; undergoing treatment in an ICU; and having a tracheostomy or endotracheal tube.
Urinary tract. Urinary tract infections can be caused by catheterization, medical instruments, and surgery.
Lung. Risk factors for P. aeruginosa pneumonia include: cystic fibrosis; chronic lung disease; immunocompromised condition; being on antibiotic therapy or a respirator; and congestive heart failure. Cystic fibrosis patients often develop pseudomonas infections as children and suffer recurrent attacks of pneumonia.
Skin and soft tissue. Even healthy persons can develop a pseudomonas skin rash following exposure to the bacterium in contaminated hot tubs, water parks, whirlpools, or spas. This skin disorder is called pseudomonas or "hot tub" folliculitis, and is often confused with chickenpox. Severe skin infection may occur in patients with P. aeruginosa bacteremia. The bacterium is the second most common cause of burn wound infections in hospitalized patients.
Causes symptoms
P. aeruginosa can be sudden and severe, or slow in onset and cause little pain. Risk factors for acquiring a pseudomonas infection include: having a serious illness; being hospitalized; undergoing an invasive procedure such as surgery; having a weakened immune system; and being treated with antibiotics that kill many different kinds of bacteria (broad- spectrum

Re: [QUAD-L] Re: sleep pain




"bouts of no pain"

I NEVER have no pain, but on those odd days when it eases up I call them, 
"Livable days."
Days and I don't mind living-Peter 25yrs

  - Original Message - 
  From: 
  Aaron Mann 
  To: Lori Michaelson ; Quad 
  Sent: Thursday, September 15, 2005 4:41 
  PM
  Subject: RE: [QUAD-L] Re: sleep  
  pain
  
  I've been living with 
  pain so long that I actually feel weird when I have bouts of no 
  pain...
  
  
  
  From: Lori Michaelson 
  [mailto:[EMAIL PROTECTED] Sent: Thursday, September 15, 2005 
  3:27 PMTo: QuadSubject: [QUAD-L] Re: sleep  
  pain
  
  

  
Greg wrote:
"When I wake up hot, it's because the 
pain or discomfort in my arms is what wakes me.

Anyone else get this pain when they feel 
too hot at night? I never get this feeling in my arms when I'm over 
heated in the daytime.
Greg"

The pain for me is there overnight cold or 
warm. Torso pain, arm pins  needles. I can even 
feel
it when I'm half-in and half-out of 
sleeping. Like it WANTS to keep me awake.

It depends but it IS better for me daytimes and 
in the HEAT.

When one neurologist looked at my MRIs of my 
pine ... she commented briefly
of seeing arthritis there. Unsure if she 
was full of it or not.

I attribute my pain to syringomyelia and 
stiffness and JUST BEING A QUAD where
pain is arbritrary.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ

Re: [QUAD-L] new member-old member

Greetings Robert,
Peter from Covington Virginia. C4/C5 25yrs

- Original Message - 
From: ROBERT WHO [EMAIL PROTECTED]
To: Aaron Mann [EMAIL PROTECTED]; Lori Michaelson [EMAIL PROTECTED]; 
Quad quad-list@eskimo.com

Sent: Thursday, September 15, 2005 5:23 PM
Subject: [QUAD-L] new member-old member

hi group-robert darden from virginia--  polio quad-use vent-power 
chair---  cheers R

-Original Message-
From: Aaron Mann
Sent: Thu, 15 Sep 2005 13:41:48 -0700
To: Lori Michaelson, Quad
Subject: RE: [QUAD-L] Re: sleep  pain

I've been living with pain so long that I actually feel weird when I
have bouts of no pain...

 _

From: Lori Michaelson [mailto:[EMAIL PROTECTED]
Sent: Thursday, September 15, 2005 3:27 PM
To: Quad
Subject: [QUAD-L] Re: sleep  pain

Greg wrote:
When I wake up hot, it's because the pain or discomfort in my arms is
what wakes me.
Anyone else get this pain when they feel too hot at night? I never get
this feeling in my arms when I'm over heated in the daytime.
Greg

The pain for me is there overnight cold or warm.  Torso pain, arm pins 
needles.  I can even feel
it when I'm half-in and half-out of sleeping.  Like it WANTS to keep me
awake.

It depends but it IS better for me daytimes and in the HEAT.

When one neurologist looked at my MRIs of my pine ... she commented
briefly
of seeing arthritis there.  Unsure if she was full of it or not.

I attribute my pain to syringomyelia and stiffness and JUST BEING A QUAD
where
pain is arbritrary.

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ

Re: [QUAD-L] sleep


Hi Luck,

I'm asleep by 11 PM and wake at 5:55 AM pretty much every-night unless something is going on.

With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA[EMAIL PROTECTED] wrote:



In a message dated 9/15/2005 9:49:56 AM Central Standard Time, TheOmen723 writes:


In a message dated 9/15/2005 9:42:35 AM Central Standard Time, DAANOO writes:
What does everybody take for sleeping. I've used Ambien for over 10 years and it isn't very effective at all. Is there anything else to take.


When I can't sleep I take lots of late night TV. You don't need a prescription and the only side effect is you become a zombie! Ya, I'm cured!

Luke

From: [EMAIL PROTECTED]Date: Thu, 15 Sep 2005 10:49:56 EDTSubject: Re: [QUAD-L] sleepTo: [EMAIL PROTECTED]


In a message dated 9/15/2005 9:42:35 AM Central Standard Time, DAANOO writes:
What does everybody take for sleeping. I've used Ambien for over 10 years and it isn't very effective at all. Is there anything else to take.


When I can't sleep I take lots of late night TV. You don't need a prescription and the only side effect is you become a zombie! Ya, I'm cured!

Luke

[QUAD-L] hey,,this is normal for me,,what about you ?

2005-09-15 Thread LadyOnWheels725




Hi All,
I have to use a light 
blanket at night for the warmth and I quess just to make it cozy,,but I have my 
toes sticking out. They must be my thermostat for my body. I have to 
use a fan to circulate the air or I will start having asthma type 
symptoms. Not only do I run low fever, but my blood pressure runs 
88./49. If I have a new nurse or go to the ER they want to go into a panic 
and I have to tell them I am fine.
The people in this group 
are the only ones that can truly under-
stand each other,,because 
we live it.
Kathy in 
Mississippi

[QUAD-L] Dan - Levaquin







I forgot to mention that when I looked up Levaquin once .. it seems to be
in the Cipro family. Broad spectrum as well.

I may be wrong but I don't think it attacks Pseudemonas like Augmentin. :-(

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


---Original Message---


From: Lori Michaelson
Date: 09/15/05 16:32:35
To: Quad
Subject: Re: [QUAD-L] Lori, and others with indwelling type caths.

My Drs are so unreliable too. It's become scary. I didn't need them for so long (except for my
usual scripts) and now that I do ... I've found more ignorance and rudeness than ever before in my entire life!

My IV antibiodics got rid of the Proteus that I went ON the drip drugs for but afterward ... Pseudemonas
shows up! I just got the bill on what *I* need to pay for all the AT HOME IV antibiodics
and equipment that Medicare does not cover. To the tune of $850!

My last report showed Pseudemonasagain and it responds Augmentin.Well, Augmentin gets rid
of the symptoms AND it shows on the lab reports (when they do sensitivities) that oral Augmentin is used
for Pseudemonas.

My problem is that it keeps coming back (or never really left entirely). My Dr wanted me to see
a Uro since he was at a loss for my problems. Now, of course, the Uro wants a battery of tests
which I am responsible for 20% of the bills that Medicare doesn't cover.

And the Uro was an arrogant bitch who literally told me 20 minutes of her time was enough and she
whisked off to another patient.

My bloodwork is always fine.

I forget where you live, Dan?

Lost, confused, scared and more.

Lori Michaelson
Age - 41
C4/5 complete quad, 25 years post
Tucson, AZ


---Original Message---


From: [EMAIL PROTECTED]
Date: 09/15/05 14:42:54
To: quad-list@eskimo.com
Subject: [QUAD-L] Lori, and others with indwelling type caths.

 Lori, I know you had quite a problem with a PROTEUS infection. I had a very serious PSEUDAMONAS infection that put in into the hospital for 1 week on IV drugs about a year and a half back, that my Urologist said he knew about but wanted to let it go, to see if I could get better on my own.Well it really messed me up and destroyed much of my white blood cells back then. NOW this Urologist say's I must go to my family Doc for all bladder infections. Well my family Doctor just told me I got Pseudamoas AGAIN Today ! He wants to try and treat it with ORAL anti-biotics -- Levequin. Do any of you know if the more serious types of bacteria can be treated like that or do they require IV Drugs ?? I'm Lost and confused on this...as my Doctors seem unsure themselves. I just gave blood today to see if my blood cells are messed up again Thanks, Dan

Re: [QUAD-L] hey,,this is normal for me,,what about you ?





my bp has gotten down to 53/35 before and i didn't even feel lite 
headed. i asked my doc and she said that AS long as i feel aright when it 
gets that low i'm ok. it seems to get lower when i start working 
out.

luke

In a message dated 9/15/2005 6:25:39 PM Central Standard Time, 
[EMAIL PROTECTED] writes:
Not only do I run low fever, but my blood pressure runs 88./49.

[QUAD-L] Re: Pseudomonas infection ( some info about)







Thanks Penny!

I'm fortunate my husband knows about these bugsand whether they need to be treated
with gram positive or gram negative antibiodics.

Unfortunately he's at a loss as to why it won't go away. I was on IV Zosyn (as mentioned below)
but that didn't help completely.

My husband guessed as to why the critters won't leave and THAT was listed -- sticks to cells.
Or embeds itself into the lining of the bladder wall hiding.

Grief!

Lori Michaelson
C4/5 complete quad, 25 years post
Tucson, AZ


---Original Message---


From: [EMAIL PROTECTED]
Date: 09/15/05 15:45:29
To: quad-list@eskimo.com
Subject: [QUAD-L] pseudomonas infection ( some info about)


Some info on pseudomonas infection, I highlighted in blue about the treatment. Hope it helps.
Penny


Pseudomonas infectionsDefinition 
A pseudomonas infection is caused by a bacterium, Pseudomonas aeruginosa, and may affect any part of the body. In most cases, however, pseudomonas infections strike only persons who are very ill, usually hospitalized.Description 
P. aeruginosa is a rod-shaped organism that can be found in soil, water, plants, and animals. Because it rarely causes disease in healthy persons, but infects those who are already sick or who have weakened immune systems, it is called an opportunistic pathogen. Opportunistic pathogens are organisms that do not ordinarily cause disease, but multiply freely in persons whose immune systems are weakened by illness or medication. Such persons are said to be immunocompromised. Patients with AIDS have an increased risk of developing serious pseudomonas infections. Hospitalized patients are another high- risk group, because P. aeruginosa is often found in hospitals. Infections that can be acquired in the hospital are sometimes called nosocomial diseases.
Of the 2 million nosocomial infections each year, 10% are caused by P. aeruginosa. The bacterium is the second most common cause of nosocomial pneumonia and the most common cause of intensive care unit (ICU) pneumonia. Pseudomonas infections can be spread within hospitals by health care workers, medical equipment, sinks, disinfectant solutions, and food. These infections are a very serious problem in hospitals for two reasons. First, patients who are critically ill can die from a pseudomonas infection. Second, many Pseudomonas bacteria are resistant to certain antibiotics, which makes them difficult to treat.
P. aeruginosa is able to infect many different parts of the body. Several factors make it a strong opponent. These factors include: 

The ability to stick to cells 
Minimal food requirements 
Resistance to many antibiotics 
Production of proteins that damage tissue 
A protective outer coat. 

Infections that can occur in specific body sites include: 

Heart and blood. P. aeruginosa is the fourth most common cause of bacterial infections of the blood (bacteremia). Bacteremia is common in patients with blood cancer and patients who have pseudomonas infections elsewhere in the body. P. aeruginosa infects the heart valves of intravenous drug abusers and persons with artificial heart valves. 
Bones and joints. Pseudomonas infections in these parts of the body can result from injury, the spread of infection from other body tissues, or bacteremia. Persons at risk for pseudomonas infections of the bones and joints include diabetics, intravenous drug abusers, and bone surgery patients. 
Central nervous system. P. aeruginosa can cause inflammation of the tissues covering the brain and spinal cord (meningitis) and brain abscesses. These infections may result from brain injury or surgery, the spread of infection from other parts of the body, or bacteremia. 
Eye and ear. P. aeruginosa can cause infections in the external ear canal--so-called "swimmer's ear"-- that usually disappear without treatment. The bacterium can cause a more serious ear infection in elderly patients, possibly leading to hearing problems, facial paralysis, or even death. Pseudomonas infections of the eye usually follow an injury. They can cause ulcers of the cornea that may cause rapid tissue destruction and eventual blindness. The risk factors for pseudomonas eye infections include: wearing soft extended-wear contact lenses; using topical corticosteroid eye medications; being in a coma; having extensive burns; undergoing treatment in an ICU; and having a tracheostomy or endotracheal tube. 
Urinary tract. Urinary tract infections can be caused by catheterization, medical instruments, and surgery. 
Lung. Risk factors for P. aeruginosa pneumonia include: cystic fibrosis; chronic lung disease; immunocompromised condition; being on antibiotic therapy or a respirator; and congestive heart failure. Cystic fibrosis patients often develop pseudomonas infections as children and suffer recurrent attacks of pneumonia. 
Skin and soft tissue. Even healthy persons can develop a pseudomonas skin rash following exposure to the bacterium in contaminated hot tubs, water parks, whirlpools, or

[QUAD-L] Fwd: Hurricane Highlights Problems in Medicare Drug Benefit

More Medicare information.Dana (C 4-5, 31 years post, 52,
KC)
---BeginMessage---

Asclepios

Your Weekly Medicare Consumer Advocacy Update

ACT NOW: Hurricane Highlights Problems in Medicare Drug Benefit

September 15, 2005 Volume 5, Issue 37

A Houston pharmacist opens up this morning to find Mary Bracken, a new patient, waiting. Displaced by Hurricane Katrina, she doesn't know the name of her HMO from Louisiana, she has no way to contact her doctors office, and she has never enrolled in Medicaid and has no idea if she is eligible. She knows she is supposed to take four different pills every day, but she doesnt even know their names.

The pharmacist shrugs, sympathetically but helplessly.

The health crisis brought about by Hurricane Katrina is visible to anyone who looks. It has exposed a fragmented health care system that erects financial and bureaucratic obstacles to care, leaving the most vulnerable unprotected. For health care consumers in America, the fragmentation is getting worse, not better.

Hidden catastrophes face ill Americans each day, catastrophes that are only noticed in the wake of a natural disaster. The poorer you are, the greater the risk for catastrophe.

But some Americans have been protected from the harsh reality of the health care market bazaar: they have been among the 43 million Americans who have Medicare health coverage.

Elderly and disabled Americans have for decades been protected by Medicare, a health insurance program governed by rules that allow near universal enrollment, provide access to a standard benefit, and protect people from financial ruin when they need costly health care.

It is a model that has worked for 40 years, yet it is a model consistently rejected by this generations political leaders. This fall, two of those rejections will be felt hard by Americans in need: those displaced by Hurricane Katrina and those striving to find benefit in the 2006 Medicare prescription drug plans.

No serious consideration is being given by the White House or Congress to a Disaster Relief Medicare, the most practical way to bring immediate health care to people displaced by Hurricane Katrina. Congress could offer Medicare eligibility to displaced persons, opening up virtually every health care provider to the men, women and children far from home scattered across the nation.

In all states nearly every doctor, hospitals and clinic accepts Medicare. The American health care infrastructure could be opened up tomorrow to care for middle class families far from their insurance networks and poor families quartered in shelters in states from New England to Texas.

The political will to make this happen is absent.

And come January not just hurricane victims will be offered sympathetic but helpless shrugs at pharmacies across the nation. That is because Congress and the White House, in enacting the 2006 Medicare prescription drug benefit, threw overboard the simplicity and fairness inherent in Medicares structure.

The 2006 Medicare drug benefit requires an individual to select among scores of private plans a single plan that may not allow purchases in certain pharmacies, that may not cover needed drugs, that may charge hundreds of dollars in co-payments for needed prescriptions and that may not work out-of-state.

Some people are eligible for special financial help, but only if they meet stiff income and asset tests and navigate the application maze. People in great need will be systematically excluded from the drug help they need because the structure of the benefit will be too much to master.

There are many flaws in this new drug benefit, 11 of which have been reviewed over the past three months by Asclepios, named for the Greek god of health. What these flaws have in common is that each is based on the rejection by our political leadership of the well established virtues of Original Medicare: reliability, clear national standards, automatic enrollment and clinical decision-making left in the hands of doctors and patients.

The White House and the Congressional leadership insist that there will be no fix to the drug benefit this year. Next year will be too late to save some people who will be lost. But, heres a recap, bullet by bullet, of 11 ways to fix the Medicare drug benefit:

Create a nationwide, Medicare-administered prescription drug plan.

Allow Medicare to negotiate prescription drug prices directly with drug makers.

Extend Medicaid drug coverage during the transition to Medicare Part D.

Automatically provide extra help to people who meet the low-income subsidy (LIS) eligibility criteria.

Eliminate the asset limit for the low-income subsidy.

Ban Medicare drug plans from changing their benefit packages during the course of the year.

Ensure doctors are prescribing psychiatric drugs, not private plans.

Remove benzodiazepines from the list of Medicare excludable drugs.

Bar telemarketing so that people will not be subject to

Re: [QUAD-L] hey,,this is normal for me,,what about you ?




I passed out on the commode 24 years ago (after a serious dumb) in a 
rehabilitation center from low blood pressure. They left me in there and 
forgot about me. When my eyes opened I was lying in bed with a doctor in 
an orderly beside me. The doctor told me notto worry, you cannot die 
from low blood pressure. That was very reassuring-Peter 25yrs

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Thursday, September 15, 2005 7:41 
  PM
  Subject: Re: [QUAD-L] hey,,this is normal 
  for me,,what about you ?
  
  
  my bp has gotten down to 53/35 before and i didn't even feel lite 
  headed. i asked my doc and she said that AS long as i feel aright when 
  it gets that low i'm ok. it seems to get lower when i start working 
  out.
  
  luke
  
  In a message dated 9/15/2005 6:25:39 PM Central Standard Time, [EMAIL PROTECTED] 
writes:
  Not only do I run low fever, but my blood pressure runs 88./49.

Re: [QUAD-L] Lori, and others with indwelling type caths.

2005-09-15 Thread Ol' Man River

i've been on LEVEQUIN a few times this year - all for UTI flareups. they just never seem to get completely gone. i thought there for a while that LEVEQUIN was a miracle drug, maybe it's not as hot as i thought...

[EMAIL PROTECTED] wrote:


 Lori, I know you had quite a problem with a PROTEUS infection. I had a very serious PSEUDAMONAS infection that put in into the hospital for 1 week on IV drugs about a year and a half back, that my Urologist said he knew about but wanted to let it go, to see if I could get better on my own.Well it really messed me up and destroyed much of my white blood cells back then. NOW this Urologist say's I must go to my family Doc for all bladder infections. Well my family Doctor just told me I got Pseudamoas AGAIN Today ! He wants to try and treat it with ORAL anti-biotics -- Levequin. Do any of you know if the more serious types of bacteria can be treated like that or do they require IV Drugs ?? I'm Lost and confused on this...as my Doctors seem unsure themselves. I just gave blood today to see if my blood cells are messed up again Thanks, DanDave - C3, 1967, Phoenix AZ
		Yahoo! for Good 
Click here to donate to the Hurricane Katrina relief effort.

Re: [QUAD-L] sleep

2005-09-15 Thread tahouston

I thought I was the only one who uses the 
pillow method!

  - Original Message - 
  From: 
  Aaron Mann 
  To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; 
  quad-list@eskimo.com 
  Sent: Thursday, September 15, 2005 9:23 
  AM
  Subject: RE: [QUAD-L] sleep

  Try using a pillow 
  rather than a blanket. I find that as long as I cover where I can feel 
  it regulates my temperature. AND, I can pull the pillow around with my 
  good arm or by mouth to cover/uncover myself.

  From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
  Sent: Thursday, September 15, 2005 9:18 AMTo: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.comSubject: 
  Re: [QUAD-L] sleep

  My name's also Greg and I always feel 10 degrees colder than everyone 
  else in the room. In the winter, I'll cover my head with the blanket 
  completely and finally fall asleep. About 3 hours later, I wake up 
  screaming for someone to take it off because I'm burning up!
  Always struggling to be comfortable

  Greg c41991

  www.3-7-12.com 

  In a message dated 9/15/2005 9:37:55 A.M. Eastern Standard Time, 
  [EMAIL PROTECTED] writes:

I do the same thing you 
and Greg do with temperature changes.
I never feel hot 
when I am outside, even if it is 100 degrees. I can tell it would be 
hot for others,,,but it doesn't register that way for me. I have to 
rely on others to tell me my skin is turning red, or I need to go in. 
But if I am on the inside and start having a "hot flash" I feel 
like I am out in the sun and burning up. Sometimes the burning and 
itching gets so bad I have to take benadryl and that makes it so much 
better.
I cannot stand the cold 
anytime of the year. It is so painful that I don't even want to 
move. I have a lap blanket anytime I ride in the car or go grocery 
shopping. I go to Sams with sweater on and a lap blanket on my legs so 
I can go around the meat and freezers and before I go outside I have to peel 
off the layers.
Kathy in 
Mississippi

[QUAD-L] POWER PUDDING

2005-09-15 Thread Ol' Man River


has anyone ever tried this..??

POWER PUDDINGPower pudding," an easy-to-prepare supplement, is both a source of fiber and a colonic stimulant. Patients can prepare it at home and often find it more palatable than other high-fiber options. The recipe is simple:2 cups miller's bran2 cups applesauce1 cup unsweetened prune Juice The mixture should be refrigerated and served in 2- to 3-tablespoon portions twice a day.Dave - C3, 1967, Phoenix AZ__Do You Yahoo!?Tired o!
 f spam? 
 Yahoo! Mail has the best spam protection around http://mail.yahoo.com

Re: [QUAD-L] Dan - Levaquin

2005-09-15 Thread Quietstream25322




 Thanks, Lori and others for your input on this. I live 
in Missouri in a suburb area outside of St. Louis . Yes, I agree the medical 
costs can drive you nuts Lori, My wife pay's $ 75 per week out of her 
salary for ours and they told us it's going up in January., Plus we still pay 
$20 for each Doc visit and $20 per prescription plus a percent on hospital 
stay's...I tell you the common folks are going under these day's. Anyway good 
luck -- hope these infection problems give us a break soon. ;-( 
 
Dan

Re: [QUAD-L] pseudomonas infection ( some info about)

2005-09-15 Thread Quietstream25322




 Thank you 
Penny, 
Dan

Re: [QUAD-L] new member-old member

Hi Robert,

Welcome to the Quad-List. I hope we hear from you whenever you feel you can offer input. We accept all opinions - as you may know if you've been reading long. Have a good evening.

With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA ROBERT WHO [EMAIL PROTECTED] wrote:
hi group-robert darden from virginia-- polio quad-use vent-power chair--- cheers R-Original Message-From: Aaron MannSent: Thu, 15 Sep 2005 13:41:48 -0700To: Lori Michaelson, QuadSubject: RE: [QUAD-L] Re: sleep  painI've been living with pain so long that I actually feel weird when Ihave bouts of no pain..._ From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Thursday, September 15, 2005 3:27 PMTo: QuadSubject: [QUAD-L] Re: sleep  painGreg wrote: "When I wake up hot, it's because the pain or discomfort in my arms iswhat wakes me.Anyone else get this pain when they feel too hot at night? I never getthis feeling in my arms when I'm over heated in the daytime.Greg"The pain for me is there overnight cold or warm. Torso pain, arm pins
 needles. I can even feelit when I'm half-in and half-out of sleeping. Like it WANTS to keep meawake.It depends but it IS better for me daytimes and in the HEAT.When one neurologist looked at my MRIs of my pine ... she commentedbrieflyof seeing arthritis there. Unsure if she was full of it or not.I attribute my pain to syringomyelia and stiffness and JUST BEING A QUADwherepain is arbritrary.Lori MichaelsonC4/5 complete quad, 25 years postTucson, AZ

Re: [QUAD-L] sleep

and Luke, too!"David K. Kelmer" [EMAIL PROTECTED] wrote:


Hi Luck,

I'm asleep by 11 PM and wake at 5:55 AM pretty much every-night unless something is going on.

With Love,
CtrlAltDel aka DaveC4/5 Complete - 29 Years PostTexas, USA[EMAIL PROTECTED] wrote:



In a message dated 9/15/2005 9:49:56 AM Central Standard Time, TheOmen723 writes:


In a message dated 9/15/2005 9:42:35 AM Central Standard Time, DAANOO writes:
What does everybody take for sleeping. I've used Ambien for over 10 years and it isn't very effective at all. Is there anything else to take.


When I can't sleep I take lots of late night TV. You don't need a prescription and the only side effect is you become a zombie! Ya, I'm cured!

Luke

From: [EMAIL PROTECTED]Date: Thu, 15 Sep 2005 10:49:56 EDTSubject: Re: [QUAD-L] sleepTo: [EMAIL PROTECTED]


In a message dated 9/15/2005 9:42:35 AM Central Standard Time, DAANOO writes:
What does everybody take for sleeping. I've used Ambien for over 10 years and it isn't very effective at all. Is there anything else to take.


When I can't sleep I take lots of late night TV. You don't need a prescription and the only side effect is you become a zombie! Ya, I'm cured!

Luke

Re: [QUAD-L] sleep