Re: [QUAD-L] What would you have done.

2006-08-07 Thread River Wolfe
W,Your subject line asks "what would you have done?"  That depends on which perspective one is coming from.  Had I been the quad I probably would not have made such a dangerous trip and instead have some arrangement made to move my mother closer to me.  Had I been you, well... I don't know what your role is/was in this situation so I can't answer that question.Sounds like a nightmare for everyone involved.RiverOn Aug 6, 2006, at 10:52 PM, [EMAIL PROTECTED] wrote:  This week has been crazy.  Let me try to explain   Mr. X of New Jersey called a couple of months ago to tell me that he was coming to Chicago for a week to visit his aging Mother and celebrate her 100 year birthday and see a couple of Chicago baseball games before returning to New Jersey.  His method of travel was AMTRAK.   Mr. X is a 62+ C5 quad, trach user, prostate cancer and bad lungs that need mechanical cleaning 4 times a day.  Mr. X chose to travel with his girlfriend which is 1/2 his age and his mentality.  Mr. X doesn't wish to fly so its AMTRAK for him to Chicago.  His arrival was supposed to be a week ago Friday at 9am.  He actually arrived 3 hours late and his lung cleaning broke down 1/2 way to Chicago. He uses a Permobil wheelchair and he had 16 pieces of luggage 6 critical and 10 bags of clothes and tubes. No charger for his chair or cell phone.  I proceeded to take Mr. X and his 1/2 x girlfriend to an assisted living center in a community North of the city.  My plan was to leave the van with him to use while he was in town.  I used public transportation to work my way back to my office some 65-70 miles away.   6 days later, I had heard nothing from Mr. X or his 1/2 x girlfriend.  I call the center where I dropped him and discovered that he left the center the day after I dropped him and hadn't return, but my van was still at the center.  I called his 100 year old mother only to discover that he was admitted to the city hospital on the past Saturday and was still there. I used public bus to find the hospital that was 3 miles away and  yes he was there in the pulmonary ward and isolated.  He missed his Thursday Amtrak departure and the hospital didn't know when he would be released because of his condition.  Mr. X made a command decision that he would release himself the next day and asked me to be at the hospital at 9am to help 1/2 x to remove his luggage from the center he wasn't staying at.  The center bill had been prepaid so he didn't receive a refund.  I headed by to the hospital with his 16 bags and he was signing the release papers against the wishes of his doctors and nurses. They were concerned that fluid would build up in his lungs during the 15+ hour return to NY and AMTRAK would not stop the train if there was a 911 event.  You can imagine the tensive situation of this.  He signed the paperwork anyway and was released... under written protest. I took Mr. X and 1/2 x and 16 bags to the AMTRAK Station 90 minutes before the train was to leave.  There must have been 250 people standing in lines, on a Friday before the weekend, waiting to take the train to New York.  I caught a red cap and loaded 10 tag'd bags on his cart and said that they were going to NY.  The other 6 bags with critical needs I keep for the Xs to take on the train.  60 minutes later 1/2 x comes out of customer service crying and having a tissy fit.  Apparently when they missed the train on Thursday, they thought that they would be rescheduled to the next day.  AMTRAK didn't think that way and placed them on a train leaving "this" Thursday.   So here's the situation for those who haven't kept up with this story.  Every hotel and motel is booked solid for the Lollapaloza Music Fest. Mr. X and 1/2 x have no where to go and no place to stay.  The Amtrak train leaves full without them and its 8pm in Chicago on a Friday NIght.  He hasn't had his lungs suction'd and the sitution doesn't look promising.   --   I take Mr. X and 1/2x back to the hospital emergency room and advise them that his running a temperature and needs his lungs cleaned.  I got him re-admitted thru the ER and finally got to leave about 1am on Saturday.  I called him today Sunday and asked how he was doing. The original cultures from his previous stay had finally come back and the bacteria was ID'd and Mr. X was on 3 IV drips.  1/2  x was sleeping by his bedside.   I told him that I would call him Wednesday this week while I was on my way to St. Louis to see how thing were going.   I only ask that you think of this ... the next time you plan on traveling. W

Re: [QUAD-L] Awake-Sex

2006-08-07 Thread River Wolfe
For the record, I have never lied about sex ;-) On Aug 6, 2006, at 8:16 PM, Coveleskie wrote:CLINTON LIED ABOUT WAS SEX WE'VE ALL DONE THAT.LOL River

Re: [QUAD-L] What would you have done.

2006-08-07 Thread Bill_J



Mr. X and 1/2 x need their 
heads examined. Thank you for taking care of them, 
Wheel.

Bill age 56C6 
Incomplete since 7/20/68Leesburg, FLIt's scary when you start making the 
same noises as your coffee maker.

  - Original Message - 
  From: 
  [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Sunday, August 06, 2006 10:52 
  PM
  Subject: [QUAD-L] What would you have 
  done.
  
  This week has been crazy. Let me try to explain
  
  Mr. X of New Jersey called a couple of months ago to tell me that he was 
  coming to Chicago for a week to visit his aging Mother and celebrate her 100 
  year birthday and see a couple of Chicago baseball games before returning to 
  New Jersey. His method of travel was AMTRAK.
  
  Mr. X is a 62+ C5 quad, trach user, prostate cancer and bad lungs that 
  need mechanical cleaning 4 times a day. Mr. X chose to travel with his 
  girlfriend which is 1/2 his age and his mentality. Mr. X doesn't wish to 
  fly so its AMTRAK for him to Chicago. His arrival was supposed to be a 
  week ago Friday at 9am. He actually arrived 3 hours late and his lung 
  cleaning broke down 1/2 way to Chicago.He uses a Permobil wheelchair and 
  hehad 16 pieces of luggage 6 critical and 10 bags of clothes and tubes. 
  No charger for his chair or cell phone. I proceeded to take Mr. X and 
  his 1/2 x girlfriend
  to an assisted living center in a community North of the city. My 
  plan was to leave the van with him to use while he was in town. I used 
  public transportation to work my way back to my office some 65-70 miles 
  away.
  
  6 days later, I had heard nothing from Mr. X or his 1/2 x 
  girlfriend. I call the center where I dropped him and discovered that he 
  left the center the day after I dropped him and hadn't
  return, but my van was still at the center. I called his 100 year 
  old mother only to discover that he was admitted to the city hospital on the 
  past Saturday and was still there.
  I used public bus to find the hospital that was 3 miles away and  yes 
  he was there in the pulmonary ward and isolated. He missed his Thursday 
  Amtrak departure and the hospital didn't know when he would be released 
  because of his condition. Mr. X made a command decision that he would 
  release himself the next day and asked me to be at the hospital at 9am to help 
  1/2 x to remove his luggage from the center he wasn't staying at. The 
  center bill had been prepaid so he didn't receive a refund. I headed by 
  to the hospital with his 16 bags and he was signing the release papers against 
  the wishes of his doctors and nurses.
  They were concerned that fluid would build up in his lungs during the 15+ 
  hour return to NY and AMTRAK would not stop the train if there was a 911 
  event. You can imagine the tensive
  situation of this. He signed the paperwork anyway and was 
  released... under written protest.
  I took Mr. X and 1/2 x and 16 bags to the AMTRAK Station 90 minutes 
  before the train was to leave. There must have been 250 people standing 
  in lines, on a Friday before the weekend, waiting to take the train to New 
  York. I caught a red cap and loaded 10 tag'd bags on his cart and said 
  that they were going to NY. The other 6 bags with critical needs I keep 
  for the Xs to take on the train. 60 minutes later 1/2 x comes out of 
  customer service crying and having a tissy fit. Apparently when they 
  missed the train on Thursday, they thought that they would be rescheduled to 
  the next day. AMTRAK didn't think that way and placed them on a train 
  leaving "this" Thursday.
  
  So here's the situation for those who haven't kept up with this 
  story. Every hotel and motel is booked solid for the Lollapaloza Music 
  Fest. Mr. X and 1/2 x have no where to go and no place to stay. The 
  Amtrak train leaves full without them and its 8pm in Chicago on a Friday 
  NIght. He hasn't had his lungs suction'd and the sitution doesn't look 
  promising.
  
  --
  
  I take Mr. X and 1/2x back to the hospital emergency room and advise them 
  that his running a temperature and needs his lungs cleaned. I got him 
  re-admitted thru the ER and finally got to leave about 1am on Saturday. 
  I called him today Sunday and asked how he was doing.
  The original cultures from his previous stay had finally come back and 
  the bacteria was ID'd and Mr. X was on 3 IV drips. 1/2 x was 
  sleeping by his bedside.
  
  I told him that I would call him Wednesday this week while I was on my 
  way to St. Louis to see how thing were going.
  
  I only ask that you think of this ... the next time you plan on 
  traveling.
  W


[QUAD-L] What would you have done.

2006-08-07 Thread wheelchair




LOL. Yes you are most right. Mr. X is very intelligent and 
knows his rights on the road and in any hospital. They are greatful for my 
extra effort, but I can't help agreeing with you on this.
More will comes when he is finally released and can go back to NJ with 1/2 
x.
W


In a message dated 8/7/2006 8:39:34 AM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Mr. X and 1/2 x need 
  their heads examined. Thank you for taking care of them, 
  Wheel.
  
  Bill age 56C6 
  Incomplete since 7/20/68Leesburg, FLIt's scary when you start making 
  the same noises as your coffee 
maker.




Re: [QUAD-L] What would you have done.

2006-08-07 Thread Dan

At 10:16 AM 8/7/2006 -0400, [EMAIL PROTECTED] said something that
elicited my response:
 
Wheel, you went far and beyond what even most
family members would do. My hats' off to you my friend. 

Dan V  


[QUAD-L] What would you have done.

2006-08-07 Thread wheelchair




It is, it was and will continue to be that nightmare for all until he and 
his are returned to their home state of Jersey.

I also forget to mention that Mr X also has a bowel pouch. 1/2 x, has 
never been out of the State of NJ and didn't know her way around Chicago.

I was only supposed to drop a van for them at Union Station in Chicago and 
then pick it up from them when they returned the following Thursday. It is 
very difficult for me to communicate with him as his cell phone battery was dead 
upon arrival and he didn't bring his charger with him. He also forgot the 
charger for his Permobil and the batteries are running low.
W

In a message dated 8/7/2006 8:34:55 AM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Your subject line asks "what would you have done?" That depends on 
  which perspective one is coming from. Had I been the quad I probably 
  would not have made such a dangerous trip and instead have some arrangement 
  made to move my mother closer to me. Had I been you, well... I don't 
  know what your role is/was in this situation so I can't answer that 
  question.
  
  Sounds like a nightmare for everyone 
involved.




Re: [QUAD-L] What would you have done.

2006-08-07 Thread wheelchair




In a message dated 8/7/2006 9:41:18 AM Central Daylight Time, 
[EMAIL PROTECTED] writes:
Wheel, you went far and beyond what even most family members 
  would do. My hats' off to you my friend. Dan V 


Thanks, but the story is not over with yet. I'm hoping for his 
release sometime this week and that AMTRAK will honor their 
commitment.
W


Re: [QUAD-L] Let's see if anyone is awake

2006-08-07 Thread StubanRN



The same reason they call congress CONgress instead of PROgress. Sandy 



Re: [QUAD-L] What happen?

2006-08-07 Thread DeLiMiTeD4



Gosh,, the things I could say about religion and politicssure wish I had more to say about sex.
I don't watch PBS often, too many commercials. I don't think the gov't should subsidize a toy for the rich and British. If I want culture I'll grow some. 
How can you tell if blue man isn't being plagiarized?
Oh yes!, I'm a pinko liberal SOB that thinks we are responsible for each other as well as what we do.

john

In a message dated 8/6/2006 9:07:35 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

You didn't run anyone away, Carol. :o) I'm still here! I just don't have anything to say regarding politics or religion, but I'm game for other topics! Right now, I'm watching The Blue Men concert on PBS - anyone else viewing this? It's an awesome show, man,I'd love to be able to see these guys live!

Steph



Re: [QUAD-L] What happen?

2006-08-07 Thread River Wolfe
Let me make it clear right now...I am not responsible for what John says or does.  ;-)Peace,RiverOn Aug 7, 2006, at 1:25 PM, [EMAIL PROTECTED] wrote:  Gosh,, the things I could say about religion and politicssure wish I had more to say about sex. I don't watch PBS often, too many commercials. I don't think the gov't should subsidize a toy for  the rich and British. If I want culture I'll grow some.  How can you tell if blue man isn't being plagiarized? Oh yes!, I'm a pinko liberal SOB that thinks we are responsible for each other as well as what we do.   john   In a message dated 8/6/2006 9:07:35 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:  You didn't run anyone away, Carol. :o) I'm still here! I just don't have anything to say regarding politics or religion, but I'm game for other topics! Right now, I'm watching The Blue Men concert on PBS - anyone else viewing this? It's an awesome show, man, I'd love to be able to see these guys live!   Steph 

[QUAD-L] What happen?

2006-08-07 Thread wheelchair




Only if they are covered in RED. Actually, there are about 8-10 teams 
of Blue Man working the planet. You wouldn't believe the physical 
requirements considered when auditioning to be a BlueManGroup.
W


In a message dated 8/7/2006 12:26:49 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Gosh,, the things I could say about religion and politicssure wish I 
  had more to say about sex.
  I don't watch PBS often, too many commercials. I don't think the gov't 
  should subsidize a toy for the rich and British. If I want culture I'll 
  grow some. 
  How can you tell if blue man isn't being plagiarized?
  Oh yes!, I'm a pinko liberal SOB that thinks we are responsible for each 
  other as well as what we do.
  
  john




Re: [QUAD-L] What would you have done.

2006-08-07 Thread DeLiMiTeD4



Some folks just don't know how to travel.

john

In a message dated 8/7/2006 9:35:37 AM Eastern Daylight Time, [EMAIL PROTECTED] writes:
W, 

Your subject line asks "what would you have done?" That depends on which perspective one is coming from. Had I been the quad I probably would not have made such a dangerous trip and instead have some arrangement made to move my mother closer to me. Had I been you, well... I don't know what your role is/was in this situation so I can't answer that question.

Sounds like a nightmare for everyone involved.

River

On Aug 6, 2006, at 10:52 PM, [EMAIL PROTECTED] wrote:

This week has been crazy. Let me try to explain

Mr. X of New Jersey called a couple of months ago to tell me that he was coming to Chicago for a week to visit his aging Mother and celebrate her 100 year birthday and see a couple of Chicago baseball games before returning to New Jersey. His method of travel was AMTRAK.

Mr. X is a 62+ C5 quad, trach user, prostate cancer and bad lungs that need mechanical cleaning 4 times a day. Mr. X chose to travel with his girlfriend which is 1/2 his age and his mentality. Mr. X doesn't wish to fly so its AMTRAK for him to Chicago. His arrival was supposed to be a week ago Friday at 9am. He actually arrived 3 hours late and his lung cleaning broke down 1/2 way to Chicago.He uses a Permobil wheelchair and hehad 16 pieces of luggage 6 critical and 10 bags of clothes and tubes. No charger for his chair or cell phone. I proceeded to take Mr. X and his 1/2 x girlfriend
to an assisted living center in a community North of the city. My plan was to leave the van with him to use while he was in town. I used public transportation to work my way back to my office some 65-70 miles away.

6 days later, I had heard nothing from Mr. X or his 1/2 x girlfriend. I call the center where I dropped him and discovered that he left the center the day after I dropped him and hadn't
return, but my van was still at the center. I called his 100 year old mother only to discover that he was admitted to the city hospital on the past Saturday and was still there.
I used public bus to find the hospital that was 3 miles away and  yes he was there in the pulmonary ward and isolated. He missed his Thursday Amtrak departure and the hospital didn't know when he would be released because of his condition. Mr. X made a command decision that he would release himself the next day and asked me to be at the hospital at 9am to help 1/2 x to remove his luggage from the center he wasn't staying at. The center bill had been prepaid so he didn't receive a refund. I headed by to the hospital with his 16 bags and he was signing the release papers against the wishes of his doctors and nurses.
They were concerned that fluid would build up in his lungs during the 15+ hour return to NY and AMTRAK would not stop the train if there was a 911 event. You can imagine the tensive
situation of this. He signed the paperwork anyway and was released... under written protest.
I took Mr. X and 1/2 x and 16 bags to the AMTRAK Station 90 minutes before the train was to leave. There must have been 250 people standing in lines, on a Friday before the weekend, waiting to take the train to New York. I caught a red cap and loaded 10 tag'd bags on his cart and said that they were going to NY. The other 6 bags with critical needs I keep for the Xs to take on the train. 60 minutes later 1/2 x comes out of customer service crying and having a tissy fit. Apparently when they missed the train on Thursday, they thought that they would be rescheduled to the next day. AMTRAK didn't think that way and placed them on a train leaving "this" Thursday.

So here's the situation for those who haven't kept up with this story. Every hotel and motel is booked solid for the Lollapaloza Music Fest. Mr. X and 1/2 x have no where to go and no place to stay. The Amtrak train leaves full without them and its 8pm in Chicago on a Friday NIght. He hasn't had his lungs suction'd and the sitution doesn't look promising.

--

I take Mr. X and 1/2x back to the hospital emergency room and advise them that his running a temperature and needs his lungs cleaned. I got him re-admitted thru the ER and finally got to leave about 1am on Saturday. I called him today Sunday and asked how he was doing.
The original cultures from his previous stay had finally come back and the bacteria was ID'd and Mr. X was on 3 IV drips. 1/2 x was sleeping by his bedside.

I told him that I would call him Wednesday this week while I was on my way to St. Louis to see how thing were going.

I only ask that you think of this ... the next time you plan on traveling.
W



Re: [QUAD-L] What would you have done.

2006-08-07 Thread DeLiMiTeD4



That is one more thing I hate about Amtrac!

john



In a message dated 8/6/2006 10:55:22 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:

This week has been crazy. Let me try to explain

Mr. X of New Jersey called a couple of months ago to tell me that he was coming to Chicago for a week to visit his aging Mother and celebrate her 100 year birthday and see a couple of Chicago baseball games before returning to New Jersey. His method of travel was AMTRAK.

Mr. X is a 62+ C5 quad, trach user, prostate cancer and bad lungs that need mechanical cleaning 4 times a day. Mr. X chose to travel with his girlfriend which is 1/2 his age and his mentality. Mr. X doesn't wish to fly so its AMTRAK for him to Chicago. His arrival was supposed to be a week ago Friday at 9am. He actually arrived 3 hours late and his lung cleaning broke down 1/2 way to Chicago.He uses a Permobil wheelchair and hehad 16 pieces of luggage 6 critical and 10 bags of clothes and tubes. No charger for his chair or cell phone. I proceeded to take Mr. X and his 1/2 x girlfriend
to an assisted living center in a community North of the city. My plan was to leave the van with him to use while he was in town. I used public transportation to work my way back to my office some 65-70 miles away.

6 days later, I had heard nothing from Mr. X or his 1/2 x girlfriend. I call the center where I dropped him and discovered that he left the center the day after I dropped him and hadn't
return, but my van was still at the center. I called his 100 year old mother only to discover that he was admitted to the city hospital on the past Saturday and was still there.
I used public bus to find the hospital that was 3 miles away and  yes he was there in the pulmonary ward and isolated. He missed his Thursday Amtrak departure and the hospital didn't know when he would be released because of his condition. Mr. X made a command decision that he would release himself the next day and asked me to be at the hospital at 9am to help 1/2 x to remove his luggage from the center he wasn't staying at. The center bill had been prepaid so he didn't receive a refund. I headed by to the hospital with his 16 bags and he was signing the release papers against the wishes of his doctors and nurses.
They were concerned that fluid would build up in his lungs during the 15+ hour return to NY and AMTRAK would not stop the train if there was a 911 event. You can imagine the tensive
situation of this. He signed the paperwork anyway and was released... under written protest.
I took Mr. X and 1/2 x and 16 bags to the AMTRAK Station 90 minutes before the train was to leave. There must have been 250 people standing in lines, on a Friday before the weekend, waiting to take the train to New York. I caught a red cap and loaded 10 tag'd bags on his cart and said that they were going to NY. The other 6 bags with critical needs I keep for the Xs to take on the train. 60 minutes later 1/2 x comes out of customer service crying and having a tissy fit. Apparently when they missed the train on Thursday, they thought that they would be rescheduled to the next day. AMTRAK didn't think that way and placed them on a train leaving "this" Thursday.

So here's the situation for those who haven't kept up with this story. Every hotel and motel is booked solid for the Lollapaloza Music Fest. Mr. X and 1/2 x have no where to go and no place to stay. The Amtrak train leaves full without them and its 8pm in Chicago on a Friday NIght. He hasn't had his lungs suction'd and the sitution doesn't look promising.

--

I take Mr. X and 1/2x back to the hospital emergency room and advise them that his running a temperature and needs his lungs cleaned. I got him re-admitted thru the ER and finally got to leave about 1am on Saturday. I called him today Sunday and asked how he was doing.
The original cultures from his previous stay had finally come back and the bacteria was ID'd and Mr. X was on 3 IV drips. 1/2 x was sleeping by his bedside.

I told him that I would call him Wednesday this week while I was on my way to St. Louis to see how thing were going.

I only ask that you think of this ... the next time you plan on traveling.
W



Re: [QUAD-L] What would you have done.

2006-08-07 Thread wheelchair




In a message dated 8/7/2006 1:05:29 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Some folks just don't know how to travel.
  

Amen. When traveling, planning is one thing, execution is the 
other.
W


Re: [QUAD-L] What would you have done.

2006-08-07 Thread StubanRN



He sounds like he has a death wish. Who travels without battery chargers? 
Plus most of us are tuned in to our bodies big time so he had to know his lungs 
were full of gunk. His actions and decisions make no sense. W, you have the 
patience of a saint! Sandy 


[QUAD-L] New Jersey gets long term care law passed

2006-08-07 Thread Bobbie299


I thought so of you out there might be interested in this bit of information.

On June 22, 2006 the Independence, Choice and Dignity in Long Term Care Act was signed into law in New Jersey.
The legislation states that "older adults and those with physical disabilities or Alzheimer's disease and other related disorders that require a nursing facility level of care should not be forced to choose between going into a nursing home or giving up the medical assistance that pays for their needed services and thereby be denied the right to choose where they receive those services." 

 Cool huh : ) Bobbie ~ living in New Jersey ~


Re: [QUAD-L] New Jersey gets long term care law passed

2006-08-07 Thread wheelchair





Great News, Bobbie!

I'm sure that Mr X and 1/2 x will also be glad to hear of this with their 
impending return to New Jersey in a week. Can't say much more as you just 
may know the fella.
Best Wishes
W

In a message dated 8/7/2006 4:29:15 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  I thought so of you out there might be interested in this bit of 
  information.
  
  On June 22, 2006 the Independence, Choice and Dignity in Long 
  Term Care Act was signed into law in New Jersey.
  The legislation states that "older adults and those with physical 
  disabilities or Alzheimer's disease and other related disorders that require a 
  nursing facility level of care should not be forced to choose between going 
  into a nursing home or giving up the medical assistance that pays for their 
  needed services and thereby be denied the right to choose where they receive 
  those services." 
  
   Cool huh : ) Bobbie ~ living 
  in New Jersey ~




[QUAD-L] What would you have done.

2006-08-07 Thread wheelchair




GeeZ. For awhile I thought that same.And I didn't want to be part of 
his thing. But 1/2 x carried a brief case with his written wishes, in the event 
of an emergency and he wanted any efforts to survive. He wife divorced him 
awhile back and his kids and extended family doesn't have anything to do with 
him since he taken up with a girl that is 1/2 his age.(lol)
My heart goes out to the guy and I'm sure that if anyone else on this board 
were faced with the same situation, they would have done the same as I.
W


In a message dated 8/7/2006 2:33:12 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  He sounds like he has a death wish. Who travels without battery chargers? 
  Plus most of us are tuned in to our bodies big time so he had to know his 
  lungs were full of gunk. His actions and decisions make no sense. W, you have 
  the patience of a saint! Sandy 




RE: [QUAD-L] What would you have done.

2006-08-07 Thread Jason Thurston





W-
I guess that's what you get sometimes for being a good Samaritan. I 
personally have been burned but never that bad. That doesn't mean that I 
wouldn't help anyone I can. I have always been that way.
JT


From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Sunday, August 06, 2006 10:53 PMTo: 
quad-list@eskimo.comSubject: [QUAD-L] What would you have 
done.

This week has been crazy. Let me try to explain

Mr. X of New Jersey called a couple of months ago to tell me that he was 
coming to Chicago for a week to visit his aging Mother and celebrate her 100 
year birthday and see a couple of Chicago baseball games before returning to New 
Jersey. His method of travel was AMTRAK.

Mr. X is a 62+ C5 quad, trach user, prostate cancer and bad lungs that need 
mechanical cleaning 4 times a day. Mr. X chose to travel with his 
girlfriend which is 1/2 his age and his mentality. Mr. X doesn't wish to 
fly so its AMTRAK for him to Chicago. His arrival was supposed to be a 
week ago Friday at 9am. He actually arrived 3 hours late and his lung 
cleaning broke down 1/2 way to Chicago.He uses a Permobil wheelchair and 
hehad 16 pieces of luggage 6 critical and 10 bags of clothes and tubes. No 
charger for his chair or cell phone. I proceeded to take Mr. X and his 1/2 
x girlfriend
to an assisted living center in a community North of the city. My 
plan was to leave the van with him to use while he was in town. I used 
public transportation to work my way back to my office some 65-70 miles 
away.

6 days later, I had heard nothing from Mr. X or his 1/2 x girlfriend. 
I call the center where I dropped him and discovered that he left the center the 
day after I dropped him and hadn't
return, but my van was still at the center. I called his 100 year old 
mother only to discover that he was admitted to the city hospital on the past 
Saturday and was still there.
I used public bus to find the hospital that was 3 miles away and  yes 
he was there in the pulmonary ward and isolated. He missed his Thursday 
Amtrak departure and the hospital didn't know when he would be released because 
of his condition. Mr. X made a command decision that he would release 
himself the next day and asked me to be at the hospital at 9am to help 1/2 x to 
remove his luggage from the center he wasn't staying at. The center bill 
had been prepaid so he didn't receive a refund. I headed by to the 
hospital with his 16 bags and he was signing the release papers against the 
wishes of his doctors and nurses.
They were concerned that fluid would build up in his lungs during the 15+ 
hour return to NY and AMTRAK would not stop the train if there was a 911 
event. You can imagine the tensive
situation of this. He signed the paperwork anyway and was released... 
under written protest.
I took Mr. X and 1/2 x and 16 bags to the AMTRAK Station 90 minutes before 
the train was to leave. There must have been 250 people standing in lines, 
on a Friday before the weekend, waiting to take the train to New York. I 
caught a red cap and loaded 10 tag'd bags on his cart and said that they were 
going to NY. The other 6 bags with critical needs I keep for the Xs to 
take on the train. 60 minutes later 1/2 x comes out of customer service 
crying and having a tissy fit. Apparently when they missed the train on 
Thursday, they thought that they would be rescheduled to the next day. 
AMTRAK didn't think that way and placed them on a train leaving "this" 
Thursday.

So here's the situation for those who haven't kept up with this 
story. Every hotel and motel is booked solid for the Lollapaloza Music 
Fest. Mr. X and 1/2 x have no where to go and no place to stay. The Amtrak 
train leaves full without them and its 8pm in Chicago on a Friday 
NIght. He hasn't had his lungs suction'd and the sitution doesn't look 
promising.

--

I take Mr. X and 1/2x back to the hospital emergency room and advise them 
that his running a temperature and needs his lungs cleaned. I got him 
re-admitted thru the ER and finally got to leave about 1am on Saturday. I 
called him today Sunday and asked how he was doing.
The original cultures from his previous stay had finally come back and the 
bacteria was ID'd and Mr. X was on 3 IV drips. 1/2 x was sleeping by 
his bedside.

I told him that I would call him Wednesday this week while I was on my way 
to St. Louis to see how thing were going.

I only ask that you think of this ... the next time you plan on 
traveling.
W


[QUAD-L] 8-2-06

2006-08-07 Thread Jason Thurston




I have been waiting to send a message to 
the group. Last year on August 2 I was reading the 12 pages of advice, most of 
which I received from the quad list. I don't post very often, but most days I 
read all of the messages. I learned a lot in the past year, especially not to 
lose hope. 
Instead of being sad or withdrawn this year 
on the second anniversary of my accident, I spent it with my new love. It was 
her birthday and I told her I had to go to work, even though I usually work from 
home on Wednesdays. I had her convinced that I wasn't going to do much for her 
birthday. 
Instead of going to work I went to a few 
stores, purchased several presents, balloons, cards, flowers, two cakes, and a 
bunch of her favorite foods. I decided to make the most of the day and be happy 
to be alive.
Just thought I'd share, since somehow I 
feel like I know most of you guys. Thank you for being there in your own way. 
What a great support network.
Bye for now JT
C6 quad, two years post-, August 2, 
2004


Re: [QUAD-L] 8-2-06

2006-08-07 Thread wheelchair




JT, You rearned an ATTABOY! Great Work.
W


In a message dated 8/7/2006 7:05:50 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  Instead of going to work I went to a few 
  stores, purchased several presents, balloons, cards, flowers, two cakes, and a 
  bunch of her favorite foods. I decided to make the most of the day and be 
  happy to be alive.
  Just thought I'd share, since somehow I 
  feel like I know most of you guys. Thank you for being there in your own way. 
  What a great support network.
  Bye for now JT
  C6 quad, two years post-, August 2, 
  2004




Re: [QUAD-L] What would you have done.

2006-08-07 Thread wheelchair




In a message dated 8/7/2006 7:04:36 PM Central Daylight Time, 
[EMAIL PROTECTED] writes:

  W-
  I guess that's what you get sometimes for being a good Samaritan. I 
  personally have been burned but never that bad. That doesn't mean that I 
  wouldn't help anyone I can. I have always been that way.
  JT

I would do it again in a heartbeat. Maybe not for the same person, 
lol, but in a heartbeat.
W


Re: [QUAD-L] 8-2-06

2006-08-07 Thread Amy Davis
JT that is the sweetest thing you could have done. She is a very lucky girl. I wish you years of happiness. So glad that you are enjoying life. That is all any of us can do...AB or quads...WAY TO GO!  AmyJason Thurston [EMAIL PROTECTED] wrote:I have been waiting to send a message to the group. Last year on August 2 I was reading the 12 pages of advice, most of which I received from the quad list. I don't post very often, but most days I read all of the messages. I learned a lot in the past year, especially not to lose hope.   Instead of being sad or withdrawn this year on the second anniversary of my accident, I spent it with my
 new love. It was her birthday and I told her I had to go to work, even though I usually work from home on Wednesdays. I had her convinced that I wasn't going to do much for her birthday.   Instead of going to work I went to a few stores, purchased several presents, balloons, cards, flowers, two cakes, and a bunch of her favorite foods. I decided to make the most of the day and be happy to be alive.  Just thought I'd share, since somehow I feel like I know most of you guys. Thank you for being there in your own way. What a great support network.  Bye for now JT  C6 quad, two years post-, August 2, 2004 
		Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls.  Great rates starting at 1¢/min.

Re: [QUAD-L] 8-2-06

2006-08-07 Thread RollinOn






I'm glad you're out celebrating life instead of mourning the past.
What a great e-mail topost showing how life's not over after sci!

Have a great time JT and post more often, it's good to hear about living with sciinstead of dealing with it.

Mark

---Original Message---


From: Jason Thurston
Date: 08/07/06 19:05:57
To: quad-list@eskimo.com
Subject: [QUAD-L] 8-2-06


I have been waiting to send a message to the group. Last year on August 2 I was reading the 12 pages of advice, most of which I received from the quad list. I don't post very often, but most days I read all of the messages. I learned a lot in the past year, especially not to lose hope. 
Instead of being sad or withdrawn this year on the second anniversary of my accident, I spent it with my new love. It was her birthday and I told her I had to go to work, even though I usually work from home on Wednesdays. I had her convinced that I wasn't going to do much for her birthday. 
Instead of going to work I went to a few stores, purchased several presents, balloons, cards, flowers, two cakes, and a bunch of her favorite foods. I decided to make the most of the day and be happy to be alive.
Just thought I'd share, since somehow I feel like I know most of you guys. Thank you for being there in your own way. What a great support network.
Bye for now JT
C6 quad, two years post-, August 2, 2004










Re: [QUAD-L] Great story Dave Oconnell

2006-08-07 Thread Oconnelldb




Ron,
Thank you so much for the note. I did much the same as all SCIs - I 
picked up what I had, and kept going the best I could. Sometimes its 
a big help NOT to know what you can't do. I feel the same way about not 
knowing the future what a blessing.
Take care,
O'C





In a message dated 8/3/2006 10:42:08 P.M. US Mountain Standard Time, 
[EMAIL PROTECTED] writes:

  Hi,
  I just wanted to tell you that I read your story and from my point of 
  view you have made a great life out of the dismal beginning after your injury. 
  My hats off to you because you did all your accomplishments before the 
  handicapped had any rights. Keep up the good work and you will have no regrets 
  on your deathbed! I hope I can attain some of what you have.
  
  
  Ron




Re: [QUAD-L] 8-2-06

2006-08-07 Thread kaye allard
Damn, 2 years? Right on.On 8/7/06, RollinOn [EMAIL PROTECTED] wrote:








I'm glad you're out celebrating life instead of mourning the past.
What a great e-mail topost showing how life's not over after sci!

Have a great time JT and post more often, it's good to hear about living with sciinstead of dealing with it.

Mark

---Original Message---


From: Jason Thurston
Date: 08/07/06 19:05:57
To: quad-list@eskimo.com
Subject: [QUAD-L] 8-2-06


I have been waiting to send a message to the group. Last year on August 2 I was reading the 12 pages of advice, most of which I received from the quad list. I don't post very often, but most days I read all of the messages. I learned a lot in the past year, especially not to lose hope. 

Instead of being sad or withdrawn this year on the second anniversary of my accident, I spent it with my new love. It was her birthday and I told her I had to go to work, even though I usually work from home on Wednesdays. I had her convinced that I wasn't going to do much for her birthday. 

Instead of going to work I went to a few stores, purchased several presents, balloons, cards, flowers, two cakes, and a bunch of her favorite foods. I decided to make the most of the day and be happy to be alive.

Just thought I'd share, since somehow I feel like I know most of you guys. Thank you for being there in your own way. What a great support network.
Bye for now JT
C6 quad, two years post-, August 2, 2004