Re: [QUAD-L] serious health questions
Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: Quad-list post quad-list@eskimo.com Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] serious health questions
haha, 84 lbs nowi take 10mg 3 times day. t crook [EMAIL PROTECTED] wrote:Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: Quad-list post quad-list@eskimo.com Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] serious health questions
I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. Debbie C4 incomplete/April 2005 --- On Sat, 8/2/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions To: [EMAIL PROTECTED], quad-list@eskimo.com Date: Saturday, August 2, 2008, 11:22 AM haha, 84 lbs nowi take 10mg 3 times day. t crook [EMAIL PROTECTED] wrote: Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: Quad-list post quad-list@eskimo.com Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] Supra Pubic Change
My husband changes mine about every four to six weeks. If it's working fine I
like to go to the six weeks. I had a urologist tell me if it works go longer,
when that's changed is when you can introduce bacteria. I also take 1 g of
urex per day. I know this has helped me not get bladder infections.
Debbie
C4 incomplete/April 2005
--- On Thu, 7/24/08, LTeasley [EMAIL PROTECTED] wrote:
From: LTeasley [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Supra Pubic Change
To: Merrill [EMAIL PROTECTED], quad-list@eskimo.com
Date: Thursday, July 24, 2008, 7:47 PM
i change mine every three weeks.
lucinda
c-4/5 july 31, '05
mpls., mn
--- On Thu, 7/24/08, KK [EMAIL PROTECTED] wrote:
From: KK [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Supra Pubic Change
To: Merrill [EMAIL PROTECTED], quad-list@eskimo.com
Date: Thursday, July 24, 2008, 5:34 PM
#yiv31142051 yiv475744391 DIV {
MARGIN: 0px
}
Mine gets changed every 3 weeks. Started out every 4 weeks but kept getting
infections.
- Original Message
From: Merrill [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Thursday, July 24, 2008 4:31:45 PM
Subject: [QUAD-L] Supra Pubic Change
I would like knowing how long at a time people go before changing their supra
pubics. Mine has been changed near every six weeks but I would prefer to go
longer. Thank you.
Merrill
Re: [QUAD-L] dizzy spells
It happens every time I eat. I just take a midodrine about 15 minutes before I eat a big meal and works great. Debbie C4 incomplete/April 2005 --- On Fri, 7/18/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: [QUAD-L] dizzy spells To: Dwain Powell [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Friday, July 18, 2008, 2:39 PM I also suffer from this malady and have so for the majority of the 13 years I have spent in this chair. The first three years of my chairbound existence was largely spent lying back in my wheelchair. My problem is especially acute when I stay down for an entire day and then get up and try to eat a heavy meal. It usually takes me an hour and a half to get my blood pressure up to a level where I can go into my office to work. I also find it extremely difficult to eat within an hour or so of getting up and then get into my Van to be driven around. Here are my suggestions: 1. Have someone take your blood pressure when this is transpiring to get a good idea how low it is actually going. 2. Start wearing an abdominal Binder if you are not already doing so. In doing so helps contract the diaphragm and increases the blood pressure, at least in my case. 3. If your BP is going to low, you might want to talk to your physician about having ephedrine on hand for really difficult times. 4. If it is at all possible, you need to eat lighter meals. For me this is impractical as I am alone most of the day and need to maintain my blood sugar, but I try to factor in that I will usually have to sit back for anywhere from 30 minutes to one hour before getting on with my normal daily activities. 5. I also had a doctor suggests that I sleep with my head inclined at a 30° angle. I haven't been able to do this too much, but when I do I have noticed I am able to get going much quicker. I hope this helps. Also make sure you take a look at all the other responses as they additionally have a lot of experience dealing with issues like this. Quadius On 7/16/08, Dwain Powell [EMAIL PROTECTED] wrote: Hi, I am new at this so I really don't know how this works, so here it goes. I am a 49 yr. old C 3-4 quad. I can not move anything below my shoulders but I am not on a vent. I am going on my 24th year. The past 2 to 2 1/2 years I have been having dizzy spells to where if I don't tilt back in my w/c I will pass completely out. It happens after I eat a meal. I have been to different Dr.'s about this and the only thing they can tell me is that my blood is going into my digestion system. The only problem is it doesn't happen every time I eat. Has anyone ever heard of a problem like this? I also have scoliosis bad. My spine curves bad right in between my shoulders. Could this have anything to do with it? Any reply would be helpful. Time for vacation? WIN what you need. Enter Now!
Re: [QUAD-L] serious health questions
Hi All, Is there a chance your recently lower-than-youir-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... interesting to say the least. Best of luck! --Tod Debbie Hamilton [EMAIL PROTECTED] wrote: I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. Debbie C4 incomplete/April 2005 --- On Sat, 8/2/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions To: [EMAIL PROTECTED], quad-list@eskimo.com Date: Saturday, August 2, 2008, 11:22 AM haha, 84 lbs nowi take 10mg 3 times day. t crook [EMAIL PROTECTED] wrote: Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: Quad-list post quad-list@eskimo.com Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] serious health questions
When you go from sitting to standing your blood pressure drops 15 points. My kids would pass out at school their teachers would call me all upset demanding I do something. Doctor said just change positions slowly. That seems to have stopped it for my kids.
Windows 7 and Re:[QUAD-L] Windows Vista voice program
Sorry Danny but I thanked you too soon for misinformation. Windows 7 is going to be AWHILE in coming. Even at this EXTREEMLY early date, Microsoft is saying that Windows 7 won't be ready until (AT THE EARLIEST) after late January 2010. I am not sure where you got your information, but even based upon Microsoft's history with delays of OS releases, the end of this year is ludricrous. There isn't even anything in Beta testing right now, let alone Windows 7, Mohave, or whatever. Microsoft is too busy right now trying to bolster Vista's image to worry about an entirely new OS. You'll see. :-) Lori Michaelson Age - 44 C4/5 complete quad, 28 years post Tucson, AZ From: Danny Espinoza [EMAIL PROTECTED] Date: Jul 31, 2008 4:55 PM Subject: RE: [QUAD-L] Windows Vista voice program To: Quadius [EMAIL PROTECTED], quad-list@eskimo.com Vista's speech recognition is ok but nowhere near as good as Dragon naturally speaking. I use Dragon naturally speaking 9b pro on a vista machine. I would recommend holding off on buying a new machine because Vista is being replaced at the end of the year by Microsoft's new operating system Windows 7. Hope this helps! Danny Espinoza 25/m/California Accident happened March 5th 2006 3 days before my birthday Occupation before accident - Network engineer / SR. Network security engineer Certifications A+, N+, LPI, CCNA, CCNP, CCSP IRC: irc.nexlinks.net Handle: Static Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://spinalcordinjured.net http://www.myspace.com/dannylnx *From:* Quadius [mailto:[EMAIL PROTECTED] *Sent:* Thursday, July 31, 2008 12:45 PM *To:* quad-list@eskimo.com *Subject:* [QUAD-L] Windows Vista voice program I am considering getting a new computer within the next few months and I am thinking about trying the Vista voice recognition software. For those of you who have switched from Dragon NaturallySpeaking to the Vista program, does the program offer the ability to move the mouse vocally? Is it almost as efficient as Dragon NaturallySpeaking? I would love to hear your input. I am also considering switching over to a Macintosh. I have heard that Dragon NaturallySpeaking now has software for the Macs, but I have found very little online about this product. I don't know how much it cost or whether it is as good as the normal version. I think it would be nice to go over to a system which is much more stable. It would be a big change for me, but what the heck. Quadius -- Lori C4/5 complete quad, 27 years post Tucson, AZ
Re: [QUAD-L] Re: Check out our new website
I believe it should be socialized so when someone needs a miracle, we can dump them in Canada, like Canada does with their socialized system. If you do not do volunteer time at a hospital or nursing home, you have no idea what not caring really is. They just cut what doctors can get paid by Medicare by 10%. The only doctors that care are the ones that do boob jobs Best wishes john - Original Message From: Dylan [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Friday, August 1, 2008 9:37:11 PM Subject: [QUAD-L] Re: Check out our new website Yeah, they're absolutely right about US healthcare being in crisis. I recently came back to Canada(lucky for me I have dual citizenship) and its night and day compared to the US. The problem with petitioning down there in my opinion is that they REALLY DON'T CARE. If there were some caring people in power things would be done right, and judging from the evidence, caring is furthest from their mind. Not that we shouldn't petition, just try to get these people to have a heart. Excuse my rambling but I am shocked by the difference between the people in healthcare here, and those in florida where I came from. Dylan c5/6 23yrs 08/10/08 - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Friday, August 1, 2008 11:30:37 AM Subject: [QUAD-L] Re: Check out our new website Dear Dana Wray, Our brand new Stand Up for Health Care website is already making a big splash. Thousands of people have visited the site to learn about the health care crisis and take action in support of guaranteed quality, affordable health care for all. Together, we're going to make a major impact on the national health care debate. But that will only happen if activists like you continue to come together to make a strong, united call for real health care reform. You can do your part by signing our petition to John McCain and Barack Obama. The petition sends a clear message that the American people will hold the candidates accountable for improving our nation's health care system so that no one is left out. Stand Up for Health Care by signing our petition right now: http://www.standupforhealthcare.org/signthepetition Looking at the comments from the thousands of petition signers so far, I got a strong reminder of why this issue is so important for all Americans. Here's what some of our supporters had to say: Life, Liberty and the Pursuit of Happiness - these are fundamental principles which form the basis of our Constitution. All of these aims are dependent on access to affordable health care. -- William from Arizona We need better health care for our citizens. I'm one of the lucky ones. As a teacher I have good benefits. But many of my students and their families aren't so lucky, and can't get the treatment that they need. -- Meredith from Pennsylvania Because one is not in perfect health is no reason to deny health insurance. After all, health insurance is for when you are sick and in need of it! -- Jack from Oregon Adequate, affordable health care should be a civil right, guaranteed to all residents of the United States. It is criminal that insurance companies can cherry pick who they cover and what services they feel like paying for. The frequency of bankrupcy caused by health care expenses is appalling. I expect whoever wins the presidency to make health care a priority!!! -- Carol from Pennsylvania Join William, Meredith, Jack, Carol and thousands of others by adding your name to our petition for quality, affordable health care for all: http://www.standupforhealthcare.org/signthepetition The movement for health care reform has been growing for years, and now the time has finally come to get real results. Thank you for being part of this effort. Sincerely, Julia Eisman eAdvocacy Coordinator p.s. Special note to our longtime Health Action advocates: We hope you'll find the Stand Up For Health Care project exciting, but it’s important to mention that you will still receive the same legislative and policy Health Action alerts that you are accustomed to. Visit the web address below to tell your friends to Stand Up for Health Care! Tell-a-friend! If you received this message from a friend, you can sign up for Families USA. This message was sent to [EMAIL PROTECTED] Visit your subscription management page to modify your email communication preferences or update your personal profile. To stop ALL email from Families USA, click to remove yourself from our lists (or reply via email with remove or unsubscribe in the subject line). Families USA | 1201 New York Ave., NW, Suite 1100, Washington, DC 20005 www.familiesusa.org | [EMAIL PROTECTED] Looking for a car that's sporty, fun and fits in your budget?
Re: [QUAD-L] Baclofen Pump?
Wheels, I'm proud to be a friend of Lil Quad! I see she has posted a health question on the Q-List, so maybe Quadius will be able to get an answer right from the Lil Lady herself! With Love, CtrlAltDel aka Dave C4/5 Complete - 32 Years Post Texas, USA [EMAIL PROTECTED] wrote: Amen Quad, That was Amye of Texas LiL Quad, and a friend of Dave. Maybe he has heard from her Best Wishes In a message dated 7/31/2008 2:37:00 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: The last person I recall having one of these put in on this list was little quad. At least I think that's what her name was. I don't believe I have seen anything from her in quite a while. Anyone know what's going on. Quadius On 7/30/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: For those who have them or were selected to be candidates for the internal pump, most are pleased for several reasons. Less amount of actual drug used. The drug is presented to the actual site rather than having to be processed first. Its automatic, no forgetting. Those who previously have violent spasms, noticed the difference within the first 24 hours. Keep in mind, this is always a private matter between the candidate and their doctors. Best Wishes In a message dated 7/30/2008 1:26:06 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: i have a boclofen pump it has saved my life honestly except recently it got infected and i was in hospital for 2 wks.bot fun.but i would recommend it to anyone. --- On Tue, 7/29/08, Greg [EMAIL PROTECTED] wrote: From: Greg [EMAIL PROTECTED] Subject: [QUAD-L] Baclofen Pump? To: quad-list@eskimo.com Date: Tuesday, July 29, 2008, 8:00 PM Are there any on the List who have the Baclofen Pump? I have been corresponding with a lady who¢s son-in-law was just in an accident and paralyzed C/4/5. He has very bad spasms and pain and they want to get a Baclofen Pump and would like to talk to a few people who have been through it. If you could answer a few questions for her could you let me know? Thank you very much, Greg - Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. - Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today.
RE: [QUAD-L] serious health questions
All good advice. Also check your meds. Baclophin (spelling) and some other bladder pills lower BP as do anti spasmodic and pain meds. I would always pass out in the shower after removing the binder. Have someone hold a fist into the abdomen helps if you can not bend forwards or way back. Merrill -Original Message- From: Tod E. Santee [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 11:51 AM To: quad-list@eskimo.com; [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions Hi All, Is there a chance your recently lower-than-youir-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... interesting to say the least. Best of luck! --Tod Debbie Hamilton [EMAIL PROTECTED] wrote: I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. Debbie C4 incomplete/April 2005 --- On Sat, 8/2/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions To: [EMAIL PROTECTED], quad-list@eskimo.com Date: Saturday, August 2, 2008, 11:22 AM haha, 84 lbs nowi take 10mg 3 times day. t crook [EMAIL PROTECTED] wrote: Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ [EMAIL PROTECTED] wrote: From: ~LittleQuad~ [EMAIL PROTECTED] Subject: [QUAD-L] serious health questions To: Quad-list post quad-list@eskimo.com Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
[QUAD-L] Baclofen pump
I received your email on pumps. i was 26 when i got mine, 2 yrs ago and 8 yrs post sci. if i had had that when 1st injured.wow my life would have been so much easier. every move or touch wouldnt have made me spasm everywhere. at night there wouldnt have been spasms ALL night every time i moved to adjust causing me to wake someone and readjust my legs. it is a life-changing small instrument. please tell them to have the baclofen pump trial, if it will work they will notice quickly. best wishes littlequad
RE: [QUAD-L] serious health questions
The tightest fitting TED hose might help the low bp. Check the stoma as the cause. Near everything in those pumps will lower bp so countering with a med might not have desirable affects where you are lowering. Fine line between raising bp and hyper tension. Merrill _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 10:24 AM To: Merrill Subject: RE: [QUAD-L] serious health questions with my stoma pump binder not possible Merrill [EMAIL PROTECTED] wrote: My bp is on someday better than yours but not all days. I must wear an abdominal binder or I will pass out. On marginal days I drink a double espresso Merrill _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Friday, August 01, 2008 7:08 PM To: Quad-list post Subject: [QUAD-L] serious health questions i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
Re: [QUAD-L] dizzy spells
i only eat small meals, i pass out tilted back too or trying to tilt back to stop it...trust me i know my hormones are imbalanced..i am woman? John S. [EMAIL PROTECTED] wrote: Do you folks not have tilt-in-space on your chairs? When you get dizzy, tilt back. All quads have low blood pressure. It is from hormonal imbalances and muscle atrophy and laying in bed too much. Don't eat big meals. Remember, small portions. :D I do wish you all the best. john - Original Message From: Debbie Hamilton [EMAIL PROTECTED] To: Quad-list@eskimo.com Cc: quad-list@eskimo.com Sent: Saturday, August 2, 2008 2:50:38 PM Subject: Re: [QUAD-L] dizzy spells It happens every time I eat. I just take a midodrine about 15 minutes before I eat a big meal and works great. Debbie C4 incomplete/April 2005 --- On Fri, 7/18/08, Quadius [EMAIL PROTECTED] wrote: From: Quadius [EMAIL PROTECTED] Subject: Re: [QUAD-L] dizzy spells To: Dwain Powell [EMAIL PROTECTED] Cc: quad-list@eskimo.com Date: Friday, July 18, 2008, 2:39 PM I also suffer from this malady and have so for the majority of the 13 years I have spent in this chair. The first three years of my chairbound existence was largely spent lying back in my wheelchair. My problem is especially acute when I stay down for an entire day and then get up and try to eat a heavy meal. It usually takes me an hour and a half to get my blood pressure up to a level where I can go into my office to work. I also find it extremely difficult to eat within an hour or so of getting up and then get into my Van to be driven around. Here are my suggestions: 1. Have someone take your blood pressure when this is transpiring to get a good idea how low it is actually going. 2. Start wearing an abdominal Binder if you are not already doing so. In doing so helps contract the diaphragm and increases the blood pressure, at least in my case. 3. If your BP is going to low, you might want to talk to your physician about having ephedrine on hand for really difficult times. 4. If it is at all possible, you need to eat lighter meals. For me this is impractical as I am alone most of the day and need to maintain my blood sugar, but I try to factor in that I will usually have to sit back for anywhere from 30 minutes to one hour before getting on with my normal daily activities. 5. I also had a doctor suggests that I sleep with my head inclined at a 30° angle. I haven't been able to do this too much, but when I do I have noticed I am able to get going much quicker. I hope this helps. Also make sure you take a look at all the other responses as they additionally have a lot of experience dealing with issues like this. Quadius On 7/16/08, Dwain Powell [EMAIL PROTECTED] wrote: Hi, I am new at this so I really don't know how this works, so here it goes. I am a 49 yr. old C 3-4 quad. I can not move anything below my shoulders but I am not on a vent. I am going on my 24th year. The past 2 to 2 1/2 years I have been having dizzy spells to where if I don't tilt back in my w/c I will pass completely out. It happens after I eat a meal. I have been to different Dr.'s about this and the only thing they can tell me is that my blood is going into my digestion system. The only problem is it doesn't happen every time I eat. Has anyone ever heard of a problem like this? I also have scoliosis bad. My spine curves bad right in between my shoulders. Could this have anything to do with it? Any reply would be helpful. - Time for vacation? WIN what you need. Enter Now!
FW: [QUAD-L] serious health questions - heat
Lack of enough water is often over looked as lowering BP and major cause for UTIs. Need more in the summer so it is a good reason to push fluids. What bothers me is having low BP and feeling so tired at night. The moment my head hits the pillow I am awake all night. Next day you bet my BP is low. I do not take meds for prostate or bladder so raising my BP is not fighting these. The double espresso in the AM will raise blood pressure in moments. I use the supra pubic so my bladder and prostate can get as tight as they want. Merrill _ From: ~LittleQuad~ [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 5:26 PM To: Tod E. Santee; quad-list@eskimo.com; [EMAIL PROTECTED] Subject: Re: [QUAD-L] serious health questions - heat i've never had it like this before, this summer isn't as hot as last summer and i was literally riding in my chair around tyler last summer Tod E. Santee [EMAIL PROTECTED] wrote: Hi All, Is there a chance your recently lower-than-youir-average BP and fainting could be related to the summer heat or humidity? Or are you in A/C all day... including not waiting for a vehicle A/C to cool off? My BP drops every summer and even more if I go out in the heat. (It makes work in a geenhouse... uh... interesting to say the least. Best of luck! --Tod Debbie Hamilton wrote: I have low blood pressure too. I also take midodrine, they are 5 mg tabs I usually take three per day. Another thing I was given to combat low blood pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor about Sudafed. I still wear Ted hose and a waistband. I feel so much better when my blood pressure is above a hundred systolic. When I need a midodrine I know it's about 70 systolic or lower. Good luck. Debbie C4 incomplete/April 2005 --- On Sat, 8/2/08, ~LittleQuad~ wrote: From: ~LittleQuad~ Subject: Re: [QUAD-L] serious health questions To: [EMAIL PROTECTED], quad-list@eskimo.com Date: Saturday, August 2, 2008, 11:22 AM haha, 84 lbs nowi take 10mg 3 times day. t crook wrote: Hey Lil'- Long time no hear from. I have been going through the same thing (except the UTI's, I did have a bad one a couple of months ago, it was only my second UTI in almost 20 yrs) and am now on midodrine also. I am feeling better until the midodrine wears off after 3 hours. My blood pressure has always been low; but I have had alot more lows with near passing out with always feeling tired and light-headed. My lab work came back good, and so did my adrenal gland test. I am and always have been lean, but I am wondering if the atrophy I have had has something to do with it.? Kind of sounds like we are in the same boat, as I recall you are just a lil'-thing... haha! How much midodrine are you taking? Tim --- On Fri, 8/1/08, ~LittleQuad~ wrote: From: ~LittleQuad~ Subject: [QUAD-L] serious health questions To: Quad-list post Date: Friday, August 1, 2008, 9:08 PM i have really low bp, like 50/30s and started med for it but not helping, plus i'm fainting at least 2 times a days.(i have fainted all my life, when scared real bad or hurt but never daily unttil last few months) then i'm so exhausted from that i don't want to do much. my son (10 yrs old) has been gone while this problem has become so invading and i'm worried what he'll think we he realizes it, he worries about me a lot anyway, never admit it though. my pcp had mri brain, cervical area, ecg, and vascular ultrasound of neck done, all results were normal. so referral to cardiac doc and he ran ekg, seemed ok, but put me on 24/7 heart moniter for 30 days, several spells in 3 days. he doubled the midodrine* plus referred me to a Electrophysiologist (the names are getting weirder). it is really scary cuz i was the youngest patient in 4 story building by 20 years i'm only 28! i keep getting uti's, will cure one 2 weeks later its on the way back. my urologist and rehab doc don't like each other or agree on what to do and i don't know which to go with. the rehab doc wants to fight the uti's by inserting some bacteria, he says iss new procedure, my uro says the rehab doc is young dodo for nice terms. ugh so i'm going to go see uro again to see what to do. anyone else have similar probs? thankslittlequad
RE: Windows 7 and Re:[QUAD-L] Windows Vista voice program
Ya I meant at the end of 2009 Sorry I get my information from Chris Pirillo, Slashdot, Wikipedia and my friends btw... Windows 7 (formerly known as http://en.wikipedia.org/wiki/List_of_Microsoft_codenames Blackcomb and Vienna) is the working name for the next major version of Microsoft http://en.wikipedia.org/wiki/Microsoft_Windows Windows as the successor to Windows http://en.wikipedia.org/wiki/Windows_Vista Vista.[3] http://en.wikipedia.org/wiki/Windows_7#cite_note-2 Microsoft has announced that it is scoping Windows 7 development to a three-year timeframe, and that the specific release date will ultimately be determined by meeting the quality bar.[4] http://en.wikipedia.org/wiki/Windows_7#cite_note-zdnet592-3 Windows 7 is expected to be released by 2009 or near January 2010.[2] http://en.wikipedia.org/wiki/Windows_7#cite_note-win7release-1 The client versions of Windows 7 will ship in both 32-bit http://en.wikipedia.org/wiki/32-bit and 64-bit http://en.wikipedia.org/wiki/64-bit versions.[4] http://en.wikipedia.org/wiki/Windows_7#cite_note-zdnet592-3 A server variant, codenamed Windows http://en.wikipedia.org/wiki/Windows_Server_7 Server 7, is also under development. Danny Espinoza 25/m/California Accident happened March 5th 2006 3 days before my birthday Occupation before accident - Network engineer / SR. Network security engineer Certifications A+, N+, LPI, CCNA, CCNP, CCSP IRC: irc.nexlinks.net Handle: Static Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://spinalcordinjured.net http://www.myspace.com/dannylnx From: Lori Michaelson [mailto:[EMAIL PROTECTED] Sent: Saturday, August 02, 2008 12:53 PM To: Quadius; [EMAIL PROTECTED]; quad-list@eskimo.com Subject: Windows 7 and Re:[QUAD-L] Windows Vista voice program Sorry Danny but I thanked you too soon for misinformation. Windows 7 is going to be AWHILE in coming. Even at this EXTREEMLY early date, Microsoft is saying that Windows 7 won't be ready until (AT THE EARLIEST) after late January 2010. I am not sure where you got your information, but even based upon Microsoft's history with delays of OS releases, the end of this year is ludricrous. There isn't even anything in Beta testing right now, let alone Windows 7, Mohave, or whatever. Microsoft is too busy right now trying to bolster Vista's image to worry about an entirely new OS. You'll see. :-) Lori Michaelson Age - 44 C4/5 complete quad, 28 years post Tucson, AZ From: Danny Espinoza [EMAIL PROTECTED] Date: Jul 31, 2008 4:55 PM Subject: RE: [QUAD-L] Windows Vista voice program To: Quadius [EMAIL PROTECTED], quad-list@eskimo.com Vista's speech recognition is ok but nowhere near as good as Dragon naturally speaking. I use Dragon naturally speaking 9b pro on a vista machine. I would recommend holding off on buying a new machine because Vista is being replaced at the end of the year by Microsoft's new operating system Windows 7. Hope this helps! Danny Espinoza 25/m/California Accident happened March 5th 2006 3 days before my birthday Occupation before accident - Network engineer / SR. Network security engineer Certifications A+, N+, LPI, CCNA, CCNP, CCSP IRC: irc.nexlinks.net http://irc.nexlinks.net/ Handle: Static Broke c2,c6,c7 and doner bone at c2 TBI from blood going to central cortex from spinal cord off a vent woohoo however only one diaphragm works right now due to asymmetric SCI http://spinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx From: Quadius [mailto:[EMAIL PROTECTED] Sent: Thursday, July 31, 2008 12:45 PM To: quad-list@eskimo.com Subject: [QUAD-L] Windows Vista voice program I am considering getting a new computer within the next few months and I am thinking about trying the Vista voice recognition software. For those of you who have switched from Dragon NaturallySpeaking to the Vista program, does the program offer the ability to move the mouse vocally? Is it almost as efficient as Dragon NaturallySpeaking? I would love to hear your input. I am also considering switching over to a Macintosh. I have heard that Dragon NaturallySpeaking now has software for the Macs, but I have found very little online about this product. I don't know how much it cost or whether it is as good as the normal version. I think it would be nice to go over to a system which is much more stable. It would be a big change for me, but what the heck. Quadius -- Lori C4/5 complete quad, 27 years post Tucson, AZ
