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- Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Monday, April 28, 2008 1:46 PM Subject: Re: [QUAD-L] Wheelchair Monologue Amen John! You have seen the light, lol. For those with sight impairments, that might not be possible. For others in scooters, wheelchairs, walkers and those with developmental disabilities who are not represented, may not have the necessary support network and advocates working on their behalf and betterment. Each day it seems like ADA and what it represents is getting watered down to benefit another town crier. We need to get the word out daily, not once a decade. Best Wishes In a message dated 4/28/2008 12:23:13 P.M. Central Daylight Time, [EMAIL PROTECTED] writes: Sure, the WC video is not aimed at people in WC's but it is in good taste and frankly, we aren't building much of a lobby in Washington DC by keeping quiet. I can't bring myself to say anything discouraging to someone that is pushing a positive message for me and those like me. I've done that work before and people bitched because it didn't represent their specific problem. One size doesn't fit all. Think how left out blind quads feel? If we get anyone to listen at all we are doing good. I thank the guy kindly for his effort and wish him more luck if he should try again. I did some work with state and county engineers to establish standardized structural codes and design guidelines for accessible buildings back in the 1970's. Those codes, I'm sure, are outdated by the ADA now. It was nice to get paid to come lookie. Best to y'all, john - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Monday, April 28, 2008 12:29:34 PM Subject: Re: [QUAD-L] Wheelchair Monologue My cousin was the V.P. of a college in Owosso, MI. They had just spent $35 million to make the campus accessible (in 1989). He asked me to look at what they had done. With me in my electric chair and him in my manual chair, we toured the campus. Some sidewalks had a slant (sideways) of up to 8 degrees which landed him in the grass. There were concrete ramps with no guardrails; doors with no auto-openers and to heavy for a quad to open; switch-back turns in narrow spaces; restrooms too small; etc., etc. He brought the deficiencies to the Board of Directors who consulted a builder. The additional costs would be $25 million because some fixes involved structural changes. If only some of us could consult that way BEFORE buildings and streets are changed... I can't travel on sidewalks here because of missing or bad curb cuts and really bad sidewalks. In a message dated 4/28/2008 12:14:13 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: But I could say the same thing about so many others on this list, including its owner Jim. His actions and abilities speak for themselves. Bill aka Ding Very funny, Scotty. Now beam up my clothes. Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. -- Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.
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Re: [QUAD-L] RE: Baclofen pump
HI littleQuad, I have the baclofen pump for 5yrs. and it has changed my life. Before I got it I had spasms so bad that they caused AD. I very rarely have spasms now. It also helped the pain I had. I wish you good luck and I hope you have as good results as I did. Gayle - Original Message - From: ~LittleQuad~ To: [EMAIL PROTECTED] ; Quad-list post Sent: Thursday, July 06, 2006 2:40 PM Subject: Re: [QUAD-L] RE: Baclofen pump wow, so sorry to hear the pain and trouble!! i go for the trial next thursday, hoping have better results! do you no longer have it period? what are you doing for spasms? thanks ton[EMAIL PROTECTED] wrote: I have heard that the pump has helped a lot of people but me personally i had a bunch of problems with it. the skin over the pump was very painful to the touch. my spasms kept getting worse the more they raised the dosage. the doctor found bacteria in the baclofen fluid so i told them to remove the pump. afterthe surgery to remove mypump i went home for about an hour when my mom noticed a puddle of clear liquid on the ground under my chair. IT WAS SPINAL FLUID. so i went to the emergency room had my back double stichted and glued then i went home again. more fluid leaked out and i ended up staying in the hospital for 3 days on my back. all of this went on in a 1 1/2 yr. period. oh yea not to mention the other 5 surgeries i had to test the pump to find out why it wasn't working. luke
Re: [QUAD-L] NEW TO LIST, KIND OF.
Silas, your a nutt case. lol. I guess that would be a sigth to behold. Gayle - Original Message - From: Silas To: Eric Olson ; [EMAIL PROTECTED] Cc: quad Sent: Thursday, June 29, 2006 5:24 PM Subject: Re: [QUAD-L] NEW TO LIST, KIND OF. Ok Eric, Believe me I know first hand that any sore is no laughing matter, but I just keep that picture in my mind. Lol. Can you imagine someone walking in with your butt cheeks taped to the rails (oh my have you had a hair cut what happend to your other eye) Hope this hasn't caused any anger, I just couldn't help myself. But hey if its works I say go for it! Oh my! Lol. Sorry! Silas P.S. Gayle please know no disrespect intended! But if you try this please send pictures! - Original Message - From: Eric Olson To: [EMAIL PROTECTED] Cc: quad Sent: Thursday, June 29, 2006 1:38 PM Subject: Re: [QUAD-L] NEW TO LIST, KIND OF. I'm having trouble visualizing where your sore is. Do you have to actually spread your cheeks to see it? If so, it might just need some air. Find a way to keep your cheeks apart while you lie on your side or better yet your stomach. For hemorrhoid surgery, you lie on your stomach and they tape your butt cheeks to the bed rails to hold them apart. Careful with the tape if you try that. Don't want to get sore from the tape. Eric [EMAIL PROTECTED] wrote: Hello everyone, My name is Gayle, I am a c-5/c-6 quad, 8yrss. post. I have been lurking on the quad-list for several years now. I have only posted maybe two times, so Iam realitivly new to the list. It is hard for me to type, but good excercise for my arms. I am fighting a sore in the crack of my butt. It has been there for 3yrs. now. The wound doctor at Shepherd Center say that it is not from pressure. I think it started when I was pulled across the bed with a draw sheet to turn me on my side. I believe the movement from my bowel program(DIGITAL STEM) causes it to stay open. I and my husband are so frustrated with it. We have tried everything. I don't consider surgery a option, because I do not handle being put to sleep well. Now after reading Stacy's post I am truly scared. I did my rehab at SHEPHED CENTER. It is a geat place. I have a baclophen pump that has made my life so much better. My husband is my caregiver. The company he worked for moved to Germany 2yrs. ago and he stays home with me. I was injured in a car arash, caused by a uninsured drunk driver. On impact my seatbelt broke and my airbag deployed breaking my neck at c2. I was paralyzed by a bleed in my spinal cord. I sued the car company and won a very large amount, which really helps with all the expenses of being a quad. My arm is tired so I must go for now, but I will be back! sincerely, Gayle (48yrs. old)
Re: [QUAD-L] Arizona
Acworth, Georgia, about 30 miles north of Atlanta. Gayle - Original Message - From: [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Wednesday, June 28, 2006 4:00 PM Subject: Re: [QUAD-L] Arizona Ray age 45 C-5 C-6 Incomplete since 3/17/2001 GSW (gun shot wound)Poland Juction, Arizona-Original Message-From: Bill_J [EMAIL PROTECTED]To: quad-list@eskimo.comSent: Tue, 27 Jun 2006 09:30:54 -0400Subject: Re: [QUAD-L] Arizona Bill age 55C6 Incomplete since 7/20/68Leesburg, FLHe had a mind like a Post-It note; it held things but not real tight. - Original Message - From: Marjorie Fergerson To: quad-list@eskimo.com Sent: Monday, June 26, 2006 9:12 PM Subject: [QUAD-L] Arizona We live in Topock Arizona Marji Mom to Byron Injured 4/27/03 @ age 24 C4/5 complete Never give upHope! Check out AOL.com today. Breaking news, video search, pictures, email and IM. All on demand. Always Free.
Re: [QUAD-L] Love, music, stories and love again
I also have a grandaughter named Issabella, and she is the most beautiful baby on the planet! She is 5mos. old and the joy of our lives. Irealize why they are called "grand" now. Gayle - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; quad-list@eskimo.com Sent: Wednesday, June 28, 2006 3:04 PM Subject: Re: [QUAD-L] Love, music, stories and love again In a message dated 6/28/2006 12:37:12 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: the tuff one was picking up my 3 month old off the kitchen floor w/o pulling his little arm or leg off. any guesses how i did it? (he rolled of the kitchen table in the middle of a diaper chg) THAT'S SCARY if that wuda happened to me with isabella, someone wuda been changing me too! corey, the coolest 3 yr old on the planeti beg to differ isabella is! at any rate, don't be letting anymore babies roll off the table, you have too much experience for that, ya 'ole f HEY, when is the baby shower for katie? dd
