Fwd: [QUAD-L] SCI

[ppacera]

You cannot have said it better.I have told this to many people over the past 
25yrs.I severed my spinal cord completely.People have told me miraculous 
stories of people who have walked after spinal cord injury.I try to tell them 
about "complete" compared to "incomplete" which makes a world of difference and 
in some instances people will heal enough that they can walk. 

- Original Message -

From: "Lori Michaelson"  
To: "greg" , "quad-list"  
Sent: Saturday, September 10, 2016 1:50:50 AM 
Subject: Re: [QUAD-L] SCI 

That has been going on for a long long time now and, yes, their success has 
been with those who are newly injured or within three years or less. 

Also, not "all" spinal cord injuries have "spinal cords" that are severed (like 
mine). Some people (quads) have "fractured" vertebrae that make them "quads." 
Or some are "incomplete" and not "complete" quads which also gives them the 
edge on making stem cells work. 

Too many scenarios come into play and of course they are going to report the 
good news first without the specific details of the injured individual. 

Not cynicism... just reality :-) 

On Fri, Sep 9, 2016 at 9:12 PM, greg < g...@eskimo.com > wrote: 



Saw on the new a quad now using his arms after stem cells. 
A new injury, not sure it will ever work on us old quads. Dried up cords. 
Unless it can regrow. 
Greg 






-- 
"Petting, scratching and cuddling a dog could be soothing to the mind and heart 
and deep meditation and almost as good for the soul as prayer." ~Dean Koontz 

[QUAD-L] website

[ppacera]

Hi Everyone, 

There is a website with a wealth of information.It is Carecure Community.Check 
it out. 

Thank you! 
Paul 

[QUAD-L] pressure

[ppacera]

Hi Everyone, 

My doctor told me one course of action for my stage 4 pressure ulcer might be a 
wound vac.Has anyone have any expierence using this device? 

Thank you! 
Paul 

[QUAD-L] pulse

[ppacera]

Hi All. 

Back in the day when I was sexual active (10yrs a ago) my urologist prescribed 
me 100 mg of viagra and penile injections with good results. 

Thank you! 
Paul 

[QUAD-L] lift

[ppacera]

Hello All, 

What is the best way to direct 2 or more people to lift you out of your 
wheelchair? 

Thank you! 
Paul 

[QUAD-L] baclofen

[ppacera]

I take 30mg. 5x a day plus 3 4mg. zanaflex a day.This is the highest amount my 
neurologist will prescribe.It works for me. 

Thank you! 
Paul 

[QUAD-L] help

[ppacera]

I am laying in bed waiting on my aide.She has been with me for a few years and 
I can't take her lateness and attitude towards the job.I have had enough and so 
has she. 

Can you good folks give me some advice in finding a new aide? Do I advertise? 
Do you know a good interview process? Can you direct me to some resources? Any 
thought is appreciated.This is difficult for me.I am a C5/6 quad who lives 
alone. 

Thank you all, 
Paul 

[QUAD-L] help

[ppacera]

Thank you all for your thoughts and advice.I am going to get up tomorrow and 
start the ball rolling.I have one month to find a new aide.Peace,Karma and love 
to all. 

Thank you! 
Paul 

Re: [QUAD-L] Do you use a mattress overlay

[ppacera]

- Original Message -

From: Don Price donpric...@yahoo.com 
To: Lissette Whitehead lissw...@hotmail.com, Naomi Hudson 
ladyno...@aol.com, wheelch...@aol.com, quad-list@eskimo.com 
Sent: Monday, May 19, 2014 1:45:16 PM 
Subject: Re: [QUAD-L] Do you use a mattress overlay 

Bob, 

I use a standard foam mattress overlay that I buy at Walmart. It seems to work 
ok for me, but I still have to turn myself at night. It does provide some 
pressure relief though, as I can tell a difference when I don't use it. I'd be 
happy to talk to you more about it, but what I've written above is about all I 
know on the subject. :) 

However, I have a friend who found a clever [I think] solution: He cut a square 
out of his twin mattress where his tailbone would be and inserted a Roho 
cushion into that cutout square, so his butt is on the Roho cushion at night. 
He tells me it works well. Of course, that would only work with certain kinds 
of mattresses. 

Don Price 
On Sunday, May 18, 2014 8:53 PM, Lissette Whitehead lissw...@hotmail.com 
wrote: 


Since I've been injured (8 years) I've had an intelli-gel mattress topper and I 
just love it. It's super comfortable. I sleep on my back all night, I never get 
repositioned and I've never had a sore. It also never loses it's shape. 


Lissette Whitehead 
416 W. San Ysidro Blvd. 
San Ysidro, CA 92173 
www.lwgripgloves.com 




To: wheelch...@aol.com; quad-list@eskimo.com 
Subject: Re: [QUAD-L] Do you use a mattress overlay 
From: ladyno...@aol.com 
Date: Sun, 18 May 2014 23:21:42 -0400 

I have a foam mattress topper, but it's not the waffle type. I just started 
using it about three weeks ago. I also put pillows under my calves to keep my 
heels elevated. I also put a pillow under my back to keep my tailbone off the 
bed. I still do it even with the overlay, because I'm afraid of taking it out 
and risk my ulcer opening up again. 

I once used an air mattress, but I felt like I was sleeping in a life raft and 
it made me very claustrophobic. It also made it impossible for me to sit on the 
side of the bed so I stopped using it. My insurance will not pay for me to get 
an alternating bed. 

I was recently in the rehab for a few months and I had a Roho overlay. It 
worked great for me. The mattress that was on the bed when I arrived was 
definitely too hard for me to lay on, so they added the Roho overlay and I used 
it until the day I left. I was thinking about getting one for my bed at home, 
but the prices were too steep for me. 


C-4 quadriplegic 
since July 2, 2005 
due to Transverse Myelitis 


-Original Message- 
From: wheelchair wheelch...@aol.com 
To: rhvshark rhvsh...@mac.com; quad-list quad-list@eskimo.com 
Sent: Sat, May 17, 2014 4:07 pm 
Subject: Re: [QUAD-L] Do you use a mattress overlay 

An inexpensive, but effective overlay is the EHOB, made in Indianapolis, IN. 
The waffle cushion and air seat cushion is ok for some. 
Best Wishes 
In a message dated 5/17/2014 2:16:13 P.M. Central Daylight Time, 
rhvsh...@mac.com writes: 


Does anybody use a mattress overlay, 

I'm doing an article on mattress overlays. In my early days as a T10 para, 
Medical routinely paid for 
a a foam egg crate overlay to help prevent pressure ulcers. Over time I stopped 
using them, but these days 
my skin is getting more sensitive--case in point, I sleep with a pillow under 
my calves to keep my feet 
elevated so there is no pressure on my heels. 

Do you use a mattress overlay? If so, what kind?--foam egg crate? Air pump 
driven overlay? 
Variable Alternating air pump driving overlay? Gel overlay? Roho overlay? 

If you use one of these what do you like, or dislike about it? 

And, is it OK if I contact you for more information? 

Thanks in advance! 

Sincerely, 
Bob Vogel 

Re: [QUAD-L] Speeding Up The Bowel Program

[ppacera]

Paul.I have had the same experience.My neurologist told me if it works then no 
problem.It has changed my bowel program for the better. 

- Original Message -

From: Paul Jacobson pjacob...@san.rr.com 
To: Quad List quad-list@eskimo.com 
Sent: Friday, May 9, 2014 8:17:56 PM 
Subject: [QUAD-L] Speeding Up The Bowel Program 

Hi, for the past 10 years I have been using the Magic Bullet every other day. 
It has worked very well but it takes between 75 and 90 minutes. I used a 
Fleet Enema the other day for the first time. It only took 15 minutes and 
cleared the most stool in a very long time. Thinking about switching. 
Anyone have any thoughts on this? 
Thanks, 
Paul c5/6 complete 50 years old 
San Diego, CA 

[QUAD-L] belly

[ppacera]

Hi All, 


My quad belly is big.It used to bother me and I was so concerned with my body 
image and what others think.I now embrace it as a part of me.Life is so short 
that I don't have time to worry about my budda belly.I am beautiful even with 
my quad belly. 


Take care, 
Paul 

[QUAD-L] permobil

[ppacera]

Hi All, 


I went to the wheelchair seating clinic yesterday.I went through all the steps 
with the seating specialist (weight,measurements and all accessories).I 


Thank you! 
Paul 

[QUAD-L] permobil

[ppacera]

Hi All, 


I cut my e-mail short earlier.I am looking at purchasing a Permobil Corpus 
350.I sat in one yesterday and it felt so comfortable.I am getting tilt/recline 
and elevating seat with elevating leg-rests .Does anyone have any experience 
with Permobil wheelchairs? Could you share your opinions concerning the chair? 


Thank you and keep on rolling and smiling! 
Paul 

[QUAD-L] website

[ppacera]

Hi everyone, 


Do you all know the CareCure Community website? It is a very informative 
website and has a wealth of subjects to talk about.Check it out. 


Thank you! 
Paul 

[QUAD-L] List

[ppacera]

Paul Pacera C5/6 complete 1991 48yrs. old. 


Thank you! 
Paul 

[QUAD-L] botox

[ppacera]

Hi, 


I had botox injections in my legs about ten years ago for spasticity .It helped 
for a week or two.I had it done twice.I would not recommend having it done even 
though my neurologist suggested it. 


Thank you! 
Paul 

[QUAD-L] botox

[ppacera]

Hi, 


I stopped botox injections because they did not stop my spasms more than a few 
weeks in my case.My doctor prescribed zanaflex and that has helped me better 
than the botox .It is just MY experience with botox . 


Thank you! 
Paul 

[QUAD-L] test

[ppacera]

test 


Thank you! 
Paul 

[QUAD-L] sore

[ppacera]

Hi Everyone, 


I just had a small pressure sore open up on my right ankle.I would like to ask 
you all which is your first line of defense when this happens? 


Thank you! 
Paul